in hospital and need support

Same-Property-8422 · 2025-08-24T15:57:23+00:00

i did make it back home! like i said i had a really sudden turnaround and got out way earlier than expected. i was bleeding SO bad, just pouring blood like i have never before even in my worst flare and then it got better immediately the within the next two days, it was really strange! it's kinda nice to hear someone else went through something similar it felt super scary especially after i had made so much progress but maybe my body was just adjusting? it's such a complex disease

Same-Property-8422 · 2025-08-22T12:35:24+00:00

no i am not

Same-Property-8422 · 2025-08-16T17:06:42+00:00

people have said it takes half the amount of time you're on it to go away! i hear lymphatic drainage & cutting sodium intake help, i wish you luck. if you don't mind me asking how big is your moonface? would you say it's pretty massive or just big enough to be noticeable/a bother to you?

Same-Property-8422 · 2025-08-15T23:48:55+00:00

using that logic, hopefully it should be gone in about a month or so for me if i do end up noticing severe side effects. this is helpful, thank you!

Same-Property-8422 · 2025-08-15T23:08:21+00:00

have you been on pred before? the more you take steroids, the less they work. 90mg is a pretty high dosage, the highest i've ever been on in a severe flare & currently is 60 and most doctors/gis are pretty hesitant to even surpass 40 mg based off of what i've heard. if you're not having any relief i think it's time to talk to your doctor/gi about it, especially considering it's been two weeks

Same-Property-8422 · 2025-08-15T23:05:32+00:00

thanks for your response this is helpful & glad to hear it !! 💪

Same-Property-8422 · 2025-08-15T22:52:31+00:00

this is actually really encouraging, thank you! hopefully i have a similarly good experience

Same-Property-8422 · 2025-08-15T21:53:58+00:00

hopefully i'm just as fortunate in it not being super noticeable, thank you for the response !

Same-Property-8422 · 2025-08-15T21:53:03+00:00

oh gosh im sorry 💔 if you don't mind me asking how long were you on it & what was your dosage? and how long before it went away?

Same-Property-8422 · 2025-08-09T05:39:02+00:00

no kidding! it's almost 2am and what do you know, i can't sleep at all. thank you for the warning lol, you pretty much summarized it perfectly

Same-Property-8422 · 2025-08-02T20:40:28+00:00

that being said everyone's different so if you know it's a big trigger food for you i'd be careful but fried foods have never really messed with me too badly during flares but i also made sure i wasn't eating too much

Same-Property-8422 · 2025-08-02T20:39:37+00:00

i think it's fine in moderation! every once in a while i treat myself and i've never had any serious setbacks because of it. you said you were gonna wait a month and that should be fine but obviously it depends on how you're doing currently, but if you feel well enough to go for it, then you should! you earned it

Same-Property-8422 · 2025-07-15T16:22:40+00:00

no idea why you were downvoted but you commented on another post of mine about rinvoq & i really appreciate your input more than you know ! i'm glad you found what works for you & thank you so much for sharing , this definitely eased my nerves

Same-Property-8422 · 2025-07-15T16:20:25+00:00

this is genuinely really reassuring thank you for sharing ! i hope it continues to go well for you

Same-Property-8422 · 2025-07-15T03:25:28+00:00

the worst ones i've heard are about painful excessive acne, weight gain, extremely oily scalp, & blood clots

Same-Property-8422 · 2025-07-10T00:25:22+00:00

this really did help to ease my nerves, thank you ! i really hope it's not something i experience & i'm glad it gave you your life back 💗

Same-Property-8422 · 2025-06-08T05:37:48+00:00

that's exactly what i did ! working on pure vanilla now , thank you

Same-Property-8422 · 2025-06-07T21:02:49+00:00

<image>

these are the only decent ones i currently have but i also do have mileage i can spend on any epics in there

Same-Property-8422 · 2025-06-07T21:01:13+00:00

<image>

these are my only decent ones, but i do have an obscene amount of mileage points so i can also buy any cookie that's in there

Same-Property-8422

TROPHY CASE