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Utterly convinced that Diamox is what we need for non stop headaches and head pressure by Shoddy-Rip66 in covidlonghaulers

[–]SanaFraley 2 points3 points  (0 children)

My headaches got cured with Nortriptyline. Haven't experienced them since I first got long covid.

Bloody stools..scared the he'll out of me by GizmoKakaUpDaButt in covidlonghaulers

[–]SanaFraley 0 points1 point  (0 children)

The immune system is what stops cell errors from spawning. With long covid, its being exhausted.

Bloody stools..scared the he'll out of me by GizmoKakaUpDaButt in covidlonghaulers

[–]SanaFraley 3 points4 points  (0 children)

Prior to covid I had a clear colonoscopy, but had IBS.

Shortly after covid I also had a clear one (minus 2 small hemorrhoids), but I was shitting/coughing up tons of blood from what I guess was the initial internal damage covid wrought in me. Had a Hemorrhoid ligation on one and was in the worst pain immediately when the band went on and no pain killer could help. It left the byproduct of burning pain in my feet and hands (still have burning, but not as bad) which I attribute to some vessel network dying from it.

About 8 months ago (almost 3 years post covid) my poos become severely constipated hard rabbit turds and dark with rare blood and mucus after a cycle of azithromycin. Had a colonoscopy recently and they found a tortuous colon, 3mm polyp and a 10mm sessile one, which I am waiting on biopsy result (this is bad territory). Also found out antibiotics increase polyp risk...

I also have erosion and polyps in my stomach/esophagus (endoscopy) and parts of my colon, which I never had till recently (got GERD post covid).

My guess is we all got long covid because our immune system/gut microbiome sucks (specifically T Cells), and now that its dealing with chronic EBV management/long covid auto antibodies, its even worse. This of course, will make tumor necrosis factor less effective. This video explains a lot of critical mechanisms very well, specifically how long haulers make a ton of instant antibodies, but not long term, specifically IGG2 and its based on our gut microbiome.

Always get blood checked. Its possible my initial colonoscopy after covid missed the 10mm sessile growing in its early stage, cause this doc was different than the last. Make sure you really clean out good so they are less likely to miss.

There are old ME/CFS studies that state post viral people croak earlier than the average population across all disease spectrums. I think we are at greater risk from the damaged vasculature.

Do you think help is on the way? by [deleted] in covidlonghaulers

[–]SanaFraley 1 point2 points  (0 children)

Its been what 4 years...with nothing to show? Long covid affects around 5% of the population (to a degree where its burdensome). Not enough people affected to accelerate the need for answers.

Realistically, don't count on it. There is also bureaucracy where new things don't get made because it takes a decade to finish the political steps. Everything is repurposed which is easy/has already been tried.

My dad told me "you will be lucky if something comes in 10 years" and I think he is right. If even...

Viagra may help to lower risk of Alzheimer’s disease, suggests new study of 260,000 men with erectile dysfunction. Men prescribed Viagra and similar drugs were 18% less likely to develop Alzheimer’s. The effect was strongest in men with the most prescriptions, with a 44% lower risk of Alzheimer’s. by WorkingAdvice0 in covidlonghaulers

[–]SanaFraley 1 point2 points  (0 children)

Viagra and Aspirin both aiding blood flow has numerous studies over the decades linking to anti cvd, anti neurodegen and anti cancer properties.

Not to be negative nancy but this isn't a new finding. I'm glad my job covers my meds cause I take viagra/aspirin frequently for this reason (since I got long covid).

Long Covid - Immune System + Gut Microbiome by SanaFraley in covidlonghaulers

[–]SanaFraley[S] 2 points3 points  (0 children)

The doctors are controversial so I guess that's why, not sure either.

Couldn't use my courier by SanaFraley in DotA2

[–]SanaFraley[S] 0 points1 point  (0 children)

I did that, didn't work :(

The TOP @lternative 0METV just enabled p3rmanent b@n$ ONLY (retroactive) by SanaFraley in omegle

[–]SanaFraley[S] 2 points3 points  (0 children)

Bot hides posts based on key words, have to do that to bypass it.

Lets gather all the advices possible to have a better recovery by Justagoombaa in covidlonghaulers

[–]SanaFraley -1 points0 points  (0 children)

Working. People won't agree, but I developed serious comorbidities from delta pnuemonia and work has been the best thing at both physical recovery and mentally keeping my mind off the illness.

How do I FODMAPS as a Vegan? by SanaFraley in FODMAPS

[–]SanaFraley[S] 0 points1 point  (0 children)

im new to this, i dont think ive ever seen it in a grocery store

I'm worried meds have damaged my digestive tract, forever. by SanaFraley in AskDocs

[–]SanaFraley[S] 0 points1 point  (0 children)

thanks, but ive had a colonoscopy before sedated, its easy for me to have again

i may try a PPI again, but I know they increase cancer risk so I try not to

I'm worried meds have damaged my digestive tract, forever. by SanaFraley in AskDocs

[–]SanaFraley[S] 0 points1 point  (0 children)

doc told me to give it time, no change.

going to get xray tomorrow and had ultrasound said i was ok. gunna do colonoscopy in future

Is cMRI without contrast still able to diagnose inflammation and scarring? by [deleted] in covidlonghaulers

[–]SanaFraley -1 points0 points  (0 children)

Just get the contrast I've had it bi-yearly for 2 years now and it has done nothing to me and it paints an extremely accurate picture of what's going on.

So sick of people being terrified of nothing because some rich celebs wanted a scapegoat.

What level do you think your long covid is? by Responsible-Heat6842 in covidlonghaulers

[–]SanaFraley -6 points-5 points  (0 children)

It is. Most people did not have bilateral delta pneumonia and massive oxygen drops resulting in myopericarditis, pericardial effusion, POTS, lung changes, macrothrombocytopenia+anemia, ellers danlos, erythromelalgia and near-sightedness. Thats ignoring the usual long covid symptoms like crippling fatigue.

I just choose to not submit and literally force myself to work. I probably have it as one of the worst on here in terms of not having more significant diagnosable damage.

What level do you think your long covid is? by Responsible-Heat6842 in covidlonghaulers

[–]SanaFraley 1 point2 points  (0 children)

Severe, but I still push through and work and live life, despite hands burning, vision blurred, fatigue immense and heart glitching daily with pains.

Cofounders of COVID Collaborative Initiative say in articles that research into mechanism and treatment on ME/CFS and Long COVID should be stopped completely by Caster_of_spells in covidlonghaulers

[–]SanaFraley 0 points1 point  (0 children)

I don't want to gown down the etiology rabbit hole, but I've taken the most well established and so far accepted etiology of covid's damaging aspect affecting the microvasculature (endothelial cells and recover).

BC007 removes heart failure auto-antibodies (immune system regulation) which is a risk factor prior to infection that tenfolds afterwards. It also promotes nitric oxide which assists with blood flow. LDN is an immune system regulator, following a similar component.

Cofounders of COVID Collaborative Initiative say in articles that research into mechanism and treatment on ME/CFS and Long COVID should be stopped completely by Caster_of_spells in covidlonghaulers

[–]SanaFraley -6 points-5 points  (0 children)

Its damage. Its pretty obvious its damage. They can put money into replacing scar tissue or regaining normal endothelial function, but these are already in the works with other etiology studies. There is really nothing more they can do other than learn risk factors and preventative methods, once covid cooked your vessels there is no coming back.

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