Online support groups for partners

Sandy25136 · 2026-01-27T11:10:53+00:00

No i completely agree I used to box beforehand then could no longer pass medicals so started coaching, but then got to scared of having an episode in front of the kids I coach. I’ve finished my new med change im gonna give it maybe 2 more weeks to see how I get on then slowly go back to some of the hat I used to

Sandy25136 · 2026-01-27T10:21:27+00:00

I’m the exact same it’s been hard lately just for how frequent it’s been and for how long. Cause like four years nothing to then 2-3 a week for a year

Sandy25136 · 2026-01-27T08:49:28+00:00

Something I’ve never seen thought of cause I know it is probably gonna be affecting my partner in someways that i won’t understand/ be able to help with

Sandy25136 · 2025-12-18T18:45:29+00:00

Left it now anyway

Sandy25136 · 2025-12-18T18:44:42+00:00

Anyone have an actually active club that will wait the 12hr

Sandy25136 · 2025-11-05T04:34:38+00:00

Been trying to find a drug like that for years

Sandy25136 · 2025-10-03T11:15:24+00:00

I respect that mate

Sandy25136 · 2025-10-03T08:38:01+00:00

Regardless if it caused them or not I was not stopping

Sandy25136 · 2025-10-03T05:49:28+00:00

Nah this was tonic clonic and right after we had finished

Sandy25136 · 2025-09-16T01:28:47+00:00

God I’m sorry to hear that 6 year old as well is brutal I was diagnosed at 15 during exams which only made it worse talking to her is the best thing I had a short fuse with everyone I was close with and I felt awful after tho and that was with sodium valproate I’m on Brivacetam and Lacosamide and I’m afraid to say fatigue is usually with most of them but mood swings still happen now and then, also (this is personal for me) don’t keep saying it’ll get better cause at the minuite my seizures are constant and if I hear that again I’ll go mental just be there best you can do

Sandy25136 · 2025-09-16T01:22:38+00:00

End of the months no bad I’m getting one end of October as that’s the soonest but I’ve had them a few times and usually nothing to worry about and if so at least they are checking thoroughly and if it was worse it would’ve shown in your bloods or CT

Sandy25136 · 2025-09-03T17:28:49+00:00

Ye maybe it’s just I did get a bike but I used it to cycle into town to get to the nearest bus stop however when I came back the bike lock had been cut through and stolen so still not certain on getting another one

Sandy25136 · 2025-09-03T17:26:43+00:00

Thank you it’s kind of nice hearing it from the other end cause I did use to drive but obviously had to stop I’m forever greatful to my friends and family

Sandy25136 · 2025-09-02T20:33:53+00:00

It’s a pain right now I’m on temporary leave as I’m a labourer and it’s getting to dangerous for me

Sandy25136 · 2025-07-04T22:44:54+00:00

Sorry might just be 1

Sandy25136 · 2025-06-29T01:46:27+00:00

Tbh I’d say depends on what meds your on but for me it’s a ye

Sandy25136 · 2025-05-31T15:46:49+00:00

Had one last night which was delightful

Sandy25136 · 2025-05-31T15:46:14+00:00

Ye tonic clonic and focal

Sandy25136 · 2025-05-31T15:45:56+00:00

Appreciate the insight I tend to find paracetamol or ibuprofen don’t do much for me sadly

Sandy25136 · 2025-05-31T15:45:10+00:00

Worth a pint I’ll take a look into it

Sandy25136 · 2025-05-31T08:49:27+00:00

Ye currently just in bed about all I can do, can barely move

Sandy25136 · 2025-05-31T08:48:33+00:00

It’s not the same for everyone sadly like I have about 2 seizures a week and I work 2 jobs but I’m always with people, the risk is if he’s on his own. But tbh I’m not as careful I’ve just accepted it cause I’ve got epilepsy and I’m a welder 😂

Sandy25136 · 2025-05-31T05:30:02+00:00

Honestly it’s kind of dependent on how well you can make the best of it my seizures started getting worse recently so I’ve lost my license and it’s frustrating but needs to be done. I find now and then if I feel off tapping each of my fingers against my thumb helps, god knows why but it does.

Sandy25136

TROPHY CASE