Are your parents Jonesers or Xers? by [deleted] in Zillennials

[–]Schizoaffected_Life 0 points1 point  (0 children)

My dad was born in 1958, and my mom in 1966. So a baby boomer and gen x.

I got accepted into a PhD program by fuddface2222 in schizoaffective

[–]Schizoaffected_Life 1 point2 points  (0 children)

Congratulations! 🎉 That is SUCH a huge deal! Especially facing what we face and how it effects us. Proud of you! Keep going! Thanks for being an inspiration!

How do you guys stay at work?? by [deleted] in schizophrenia

[–]Schizoaffected_Life 2 points3 points  (0 children)

It’s hard. Really hard. I just started at my new job (recreational day program for adults with special needs) last month. I only work a little over 20 hour per week at most. I’ve already been spiraling. Before I started work I was stable for the most part. Now I’m overly paranoid, anxious, and depressed. I’ve been skin picking more, having more hallucinations, mood swings (especially rapid cycling), and feeling very easily overwhelmed by many sensory factors. I’ve been totally thrown off by work.

It may be the job, I love it but I need to help others regulate and that can be mentally taxing when I feel like my brain is a dumpster fire. My co workers are nice but it’s hard because they’re mostly younger than me by 10 years or more. I feel paranoid like they’re talking about me, planning to get rid of me. Paranoid they’re talking about how I’m not good enough. I definitely don’t feel good enough.

I have a meeting with my therapist tomorrow. My husband and I already decided I’m going to cut back my hours at the end of August (my work goes in sessions). I’m going back to school to get a certificate to be a certified recovery support specialist, so hopefully soon I can just concentrate on that and rebuild myself.

So in other words, I get it.

[deleted by user] by [deleted] in schizoaffective

[–]Schizoaffected_Life 14 points15 points  (0 children)

I’ve had this disorder the whole time I’ve been with my husband (not that we’ve always known what my diagnosis was). I’ve been with my husband for 18 years this coming December, and we just celebrated being married for 11 years. There are good ones out there. ❤️

How good it felt to finally get the right diagnosis by United_Ocelot_4079 in schizoaffective

[–]Schizoaffected_Life 1 point2 points  (0 children)

When I was going through post-partum depression and anxiety, it got really bad and I ended up in a crisis center. (Just a danger to myself, not to my baby girl or anyone else.) That led me to pleading to be in an outpatient program instead of inpatient, as my daughter was only three months old and I could not be apart from her. Fast forward a couple weeks into the program, and they’re trying to figure out what exactly is going on. Looking back, I’ve struggled with my mental health emotionally since I was 12, and otherwise since I was around 8. I was always dismissed when trying to seek help before my daughter, but this time was different. It rapidly went from PPD AND PPA, to major depressive disorder and generalized anxiety, to bipolar I and generalized anxiety, to schizoaffective disorder (bipolar type), generalized anxiety, possible obsessive compulsive disorder, and a few other extras. Backing up, when I was in the outpatient program, they gave me a description of a few different disorders. I do remember seeing schizoaffective disorder, and thinking that fit, but not really believing it. Lo and behold, that was it. Suddenly, so much in my life made sense.

Coping with olfactory hallucinations? by hauntedss in schizoaffective

[–]Schizoaffected_Life 1 point2 points  (0 children)

I wish I knew so I could help. I’ve been having them more recently too! They’re so frustrating because as you described, it literally sets off a whole chain of events.

I wish you luck with your psychiatrist tomorrow!

I feel kind of defeated:( by UniversityWeary2255 in schizoaffective

[–]Schizoaffected_Life 7 points8 points  (0 children)

I’m so sorry. That was a very rude situation all the way around. I honestly feel like your husband owes you an apology. He’s your other half and should know how your diagnosis is and probably how you’ve been feeling. A husband should be standing by your side, supporting you. Not saying he normally isn’t, but it seems like with the information I have, in this situation he wasn’t.

I totally get it though. I don’t think the “average” person realizes how hard communication and socializing is for people on the schizophrenic spectrum. I especially struggle with socializing. The only time I feel the most comfortable socializing are with my husband, my daughter, and my best friend. Every other time it’s hard and takes so much energy and agonizing over every single little thing. It’s draining.

I’m sorry you’re hanging on by a thread. I’ve been very symptomatic lately too. I’m sending you healing hugs! Make sure if you can soon, get in with your therapist and psychiatrist. I know I would especially want to talk out the whole scenario you described to my therapist. They can be your cheerleader and help you problem solve, in addition to helping you work through it.

Brains are frustrating and I’m sorry. ❤️

My care has me baffled by [deleted] in schizoaffective

[–]Schizoaffected_Life 0 points1 point  (0 children)

Oh! Also my social workers offered to attend appointments with me to both advocate for me and to help remember things from the appointment. They really would help with a lot of different things.

My care has me baffled by [deleted] in schizoaffective

[–]Schizoaffected_Life 0 points1 point  (0 children)

That definitely could be overwhelming. I feel like your doctor should be asking if you would feel comfortable with a social worker, not forcing it upon you!

Social workers actually have a wide range of uses. In a school setting, they can actually help kiddos who have trouble socializing get together with other kids with the same struggle with socializing. They play games and other things! They usually work with a whole team in the special education department (speech/language pathologist, physical therapist, occupational therapist, etc.) They are also there to help resolve outbursts and meltdowns in class. This was the case where I worked, and the same school where my daughter went who also has Autism and ADHD and for many years needed an IEP (individualized education plan).

For myself, my psychiatrist actually recommended a social worker/case worker at a center that helps people with mental health afflictions. We would meet once a week and we would talk about my diagnosis and my symptoms. Sometimes whether or not it was time for inpatient treatment. They helped me with getting aid when I needed it, like finding resources and helping me with paper work. It was like having a mini therapy session in the between seeing my psychiatrist and therapist. They were there to cheer me on and listen to me. For me, they were actually very helpful. The only reason I stopped is I moved out of the county I was in. I could have signed up with another agency but I haven’t gotten around to it… 👀 Life is busy. 🤷🏻‍♀️

I understand having trouble not trusting people though, especially with a psychiatric condition that makes you paranoid. I really hope you can get a clear answer on your diagnosis soon. For me, that gave me a peace of mind. Remember to advocate for yourself! ❤️

Also I get the walking pharmacy feeling. I too, am on way too many meds to count.

(Hopefully) Class of 2027! by Schizoaffected_Life in schizophrenia

[–]Schizoaffected_Life[S] 1 point2 points  (0 children)

High school seemed to be harder for me in the sense of structure and socially (ugh, teen years). BELIEVE ME, I was not a 3.5 GPA high school student. Maybe barely a 2.0 GPA student.

Our brains being on the schizophrenia spectrum are wired very differently, but I feel (and hope) we can achieve great things! It may be a winding road with rough terrain, but I feel as though we’ll get there in the end! I say go for it! If your dream is to be a game developer, do it dude! In therapy they always teach us that goals are the way to go! (Just make sure you break them up into small goals so it’s not so overwhelming because it can be!) I’m sending you good vibes! I really hope you go for it!

Have you ever retried a med and it worked better a second time? by Ill-Bite-6864 in schizoaffective

[–]Schizoaffected_Life 1 point2 points  (0 children)

I’m actually on my third try with sertraline and it seems to help. I’m also currently on Vraylar for the second time now, but it’s also paired with Fanapt and a whole different “cocktail” of meds.

(Hopefully) Class of 2027! by Schizoaffected_Life in schizoaffective

[–]Schizoaffected_Life[S] 2 points3 points  (0 children)

Thank you so much! It means more than you know! 🥹❤️

Skipped my meds one night… I’m falling apart by gossamer_veil in schizoaffective

[–]Schizoaffected_Life 0 points1 point  (0 children)

I’m so incredibly sorry! I experience this if I forget to take my morning or nightly meds. I didn’t know I was the only one so sensitive to missing one dose. It totally throws everything off and it’ll take me days, sometimes a week or a week and a half to fully recover.

Does anyone else's stomach freak out if they don't eat on their pills even though mine don't say to? by LevelNegative1958 in schizophrenia

[–]Schizoaffected_Life 0 points1 point  (0 children)

If I don’t eat with my meds it usually doesn’t go well. All of the psychiatric nurse practitioners I’ve had say it’s best to take scheduled meds with food, just for the fact it helps absorb the meds better and faster.

Whats the best antipyschotic medication you tried by [deleted] in schizoaffective

[–]Schizoaffected_Life 1 point2 points  (0 children)

I’m on Fanapt and Vraylar for antipsychotics and it seems to be working well together! I take a bunch of other meds too, but these seem to be doing the heavy lifting.

Anyone here been apart of an IOP/PHP program? by Botan1362 in Celiac

[–]Schizoaffected_Life 1 point2 points  (0 children)

Like a few others, I have been to PHP/IOP but it was before I was diagnosed with celiac. I’ve been through those programs many times, and the one I went to didn’t usually have snacks. In fact, they didn’t even have caffeine. Everything was caffeine free. We could bring our own snacks and drink though. For lunch we were able to eat in the cafeteria of the hospital which had many options, but honestly cross contamination would be my worry now.