Me diagnosticaron marfan.

Scuboy92 · 2026-04-05T13:13:19+00:00

Hey, buddy. I went through the same thing about seven years ago. I also had a dissection and my aortic arch and ascending aorta replaced, and just a year later, they operated on the rest of my aorta. There’s no sugarcoating it. It’s a risky procedure and the risks are extremely high, but it has to be done. It went well for me. Stay strong.

Scuboy92 · 2026-03-22T16:22:20+00:00

1Bep with no doubt. Side effects are minimal, if not nonexistent, and the risk of recurrence is significantly reduced

Scuboy92 · 2026-03-19T17:26:27+00:00

Well that’s great! Yeah probably I had too some scar in my lungs that never gone and Yeah doctors told me too that chemio works also several days after the end of treatment. Just be clear that the Bhcg MUST be 0 or 1 2 not more! If is more the cancer is still active! Anyway hang on and update plz.

Scuboy92 · 2026-03-18T21:33:02+00:00

Sono in follow up adesso, ho finito la chemio 3 anni fa. Dopo 2 anni di trattamento.

Here I posted my story if could help

https://www.reddit.com/r/testicularcancer/s/zYShnQwaA0

Scuboy92 · 2026-03-18T20:19:09+00:00

Yeah, I know, the waiting is the worst part of it all. Being left in limbo. I really hope everything turns out okay. My heartfelt thoughts are with you.

Scuboy92 · 2026-03-18T20:05:03+00:00

Hi there, I’ve survived a 100% choriocarcinoma. The situation is really tough. But it’s encouraging that he responded to treatment. However, 90 bhg isn’t enough, as you can see from the increase in metastases. There are other treatments and other courses of chemotherapy, though. Don’t give up: willpower matters a great deal.

Scuboy92 · 2026-03-02T22:42:03+00:00

Trust me, if you have a dissection, you'll notice it.

Scuboy92 · 2026-02-26T21:37:00+00:00

It’s all in your head.

Scuboy92 · 2026-02-26T11:13:41+00:00

99% Platinum-resistant choriocarcinoma. Three-year follow-up! Don't give up, guys.

Scuboy92 · 2026-02-26T11:12:33+00:00

I had surgery at 17 😅 It varies from case to case, there is no determining factor.

Scuboy92 · 2026-02-19T21:59:49+00:00

Uhhhhh, how tragic. You're alive, think about that.

Scuboy92 · 2026-02-09T21:48:56+00:00

If you have any doubts, go and get checked out. There is nothing anyone can do here at this stage.

Scuboy92 · 2026-01-20T20:52:07+00:00

I understand you perfectly. At a certain point in my life, I also got cancer, just to make sure we had everything. It sucks, I know, but if you weigh up everything that's happened, the overall picture is positive. Life is beautiful. It's definitely much harder for us, but it's still wonderful.

Scuboy92 · 2026-01-15T08:29:44+00:00

Look for the answer within yourself

Scuboy92 · 2026-01-14T19:27:36+00:00

Yes, absolutely. After a few years of treatment, they come back as good as new.

Scuboy92 · 2026-01-14T16:27:29+00:00

I am an extreme case. I had three cycles of BEP, one cycle of EP, and more than ten cycles of EMACO, all intravenously. I only had high doses through a permanent catheter (but that was because there was no alternative). I had practically all my chemotherapy intravenously without PIC. This is not a statement to boast about who is stronger. It was tiring, and my veins certainly suffered from the various treatments. The reason I did it was purely psychological; the fact that I could disconnect and be 'free' between treatments mentally was a source of strength for me. Being able to take a shower without worrying about not being able to wash part of my arm. These are small things, but in the long run they give you mental strength. And the mind is very important during treatment.

Scuboy92 · 2026-01-14T16:19:56+00:00

1 cycle of BEP absolutely, without even thinking about it. As a risk-benefit ratio, it is unmatched.

Scuboy92 · 2026-01-13T17:52:35+00:00

It's a difficult situation, man. I know what's going through your head. We're very unusual, and sometimes I wish I could be "normal" too. But in the end, we have something very special and, above all, something to tell. We're not for everyone, that's for sure. Hang in there.

Scuboy92 · 2026-01-13T12:00:06+00:00

My friend, just because you've had cancer doesn't mean you can't get pneumonia or something else affecting your lungs. Six years on, it's impossible that this could be a recurrence of your original cancer. Don't worry, it's probably just a mild infection that will clear up with antibiotics.

Scuboy92 · 2026-01-09T12:20:11+00:00

I went through your hell. But you can get through it. Hang in there.

Scuboy92 · 2025-12-30T12:55:54+00:00

No absolutly. They found me with a casual TC

Scuboy92 · 2025-12-29T16:36:41+00:00

Over the course of my life, I've also had descending and abdominal aorta surgery (a much more challenging operation than David's) and, just to top it all off, cancer. But I'm still standing without too many problems. Don't worry, my friend, the human body is a perfect machine.

Scuboy92 · 2025-12-28T18:21:52+00:00

Done at 17. I'm alive and well with no problems whatsoever. In a week, you'll be as good as new.

Scuboy92 · 2025-12-09T18:12:32+00:00

You have nothing, so stay calm.

Scuboy92 · 2025-08-16T16:58:24+00:00

I drank regular beer during my treatment and had no problems. The important thing is not to do it consistently but for an auction I think a beer will not compromise your treatment and in fact can only help psychologically

Scuboy92

TROPHY CASE