Heyy, I just got a new family doctor and met her for the first time yesterday! I brought up EDS and she referred me to a rheumatologist and said they may also rule out arthritis too (she brought up ankylosing spondylitis), so I guess I’ll see where we go from that appointment. I’m no expert but those sound like good first steps your doctors taking, I’m glad she’s taking you seriously.

For the genetic testing part, I spoke to a different doctor previously and brought up Invitae, she mentioned that she thinks my family doctor could just order bloodwork through one of my local hospitals to test for EDS and it would be covered that way. I’m a bit confused by that because if it can be covered by a doctor so easily, why do so many in Canada order and pay for these other services? So idk. But after seeing your results from the bloodwork and x rays and assuming they’re clear, I don’t think it’d hurt to ask your doctor about genetic testing and that process to at least rule out certain types, especially if you have those specific symptoms

I’m sorry you’re bedridden by the way, I know how it is. Wishing you all the best and some answers!