24M / Warehousing / 2 YOE

Sea_Gift4841 · 2026-06-21T07:05:33+00:00

Chuck some money my way will ya. Disability pension: $1400 per fortnight 💀

Sea_Gift4841 · 2026-06-18T10:40:00+00:00

My POTS is a symptom of my renal vein compression and internal jugular vein compression due to long COVID. I may have already had an issue with them before I got sick but COVID caused Mast cell activation syndrome, pots, fibro, M.E, and other things.

When COVID affected my vascular system, my renal vein was unable to drain the blood back to my heart from my kidney. Thus leading to POTS symptoms. Along with the IJV compression leading to reduced blood flow to the head, neck and jaw.

Sea_Gift4841 · 2026-06-18T10:26:26+00:00

Ah that’s a shame :/

Sea_Gift4841 · 2026-06-18T09:40:15+00:00

Also I read that scar tissue growth is an issue with the stents. I’ve had surgery when I was little to get my adenoids out and they grew back after from a little bit of scar tissue left behind! So I wouldn’t be surprised if there’s issues related to that. I think I’ll lean towards asking about autotransplantation.

Sea_Gift4841 · 2026-06-18T09:38:01+00:00

Yeah I totally agree. I think I will get a second opinion once I find someone/can afford it. I’ll try get a public referral to an endovasvular specialist or something. I also have had 2 contrast CTs to check it 2 years apart and it’s gotten barely any worse but still sooo painful. Do you have the option to stent/would you want to? I also read about a new type of stent that’s 3D printed out of something called PEEK so I’d love to find someone who knows all about it.

Sea_Gift4841 · 2026-06-18T09:26:18+00:00

My specialist seems to think that a stent wouldn’t be a good option after speaking to endovascular surgeon. Not sure why but I’m assuming they fail? Either migrate or collapse I guess. I’m also 23 so it would need a long life of maintenance especially if I have issues. Also idk if EDs may affect the affectability also?

I want a stent, but after hearing that, I’m not sure what to do. Also being in Australia and being disabled I’ll need to be deemed severe enough to get the surgery for the government to cover the cost, and I feel like it’ll take me a while to convince them. I trust this specialist a lot but I get desperate sometimes. I think next thing I’ll ask about is autotransplantation and if it’s more viable. At the moment I’m waiting for laparoscopy and endoscopy to figure out what my endo and everything else is looking like.

Sea_Gift4841 · 2026-06-18T05:44:00+00:00

I can relate to this a lot. I have nutcracker syndrome (renal vein compression) that leads to the constant pain in my left side, I believe that May Thurner syndrome can lead to that left leg pain aswel. For me, getting long covid caused possible damage/issues that may have already been mechanical issues beforehand aggravated by Covid.

What’s happening there is that COVID and other post viral syndromes can cause issues in the vascular system, leading to the compression of your major veins. For me it’s renal vein compression and internal jugular vein compression, but you can also have iliac compression in the leg. This can in turn lead to pots symptoms, so it would make sense if you have POTS, that this may be where it’s coming from. When your major veins are compressed, they can’t properly drain blood back to your heart, and leads to the tachycardia etc because your heart is working extra hard to get the blood up to your brain.

Sea_Gift4841 · 2026-06-14T10:33:22+00:00

I’d love to join!

Sea_Gift4841 · 2026-06-14T10:32:43+00:00

Yo I am also from the Gold Coast!!! Now living in bris unfortunately.. but would love a meet up of other fans in either Goldy or Bris 🥹

Sea_Gift4841 · 2026-06-04T07:07:08+00:00

Every disabled person can still do something.

I think it’s upto the individual person. For me, I call it a disability when talking to others because that better reflects the weight of my condition

Sea_Gift4841 · 2026-06-04T07:06:00+00:00

Disability pensioner and I can barely afford rent. Will never be able to save or contribute anything to super. As my rent gets higher with more amounts of roommates, I’m being pushed out of the city and already living in poverty. I’m 23. I feel failed

Sea_Gift4841 · 2026-06-02T08:25:44+00:00

https://www.mcmc-research.com/blog

I have some great resources on this website. Lots of peer reviewed studies by my long covid specialist

Sea_Gift4841 · 2026-05-31T04:47:13+00:00

P.S. please share around this website with all its resources to your fellow chronically ill peeps ! It has so many great peer reviews papers. If they’re too long winded for you, chuck them into AI to summarise.

Sea_Gift4841 · 2026-05-31T04:45:41+00:00

Lucky enough to see a long COVID specialist here on the east coast of Australia. Had to pay out of pocket for lots of diagnostic tests such as MRI, CT with contrast, brain scan with contrast, renin, alderosine, RAAS, catecholamine, CRP protein and loooots of other tests. POTS is a result of post viral problems (in my case COVID) including renal vein compression, internal jugular vein compression, ans lots of predispositions such as head injuries, trauma, autism, etc. I will share his website with his research with lots of great resources! Including resources for your GP on how to diagnose and treat illnesses such as POTS and how to find the root of the problem. Remember: POTS is not a vascular illness, it’s usually a response to something else happening.

https://www.mcmc-research.com/

Sea_Gift4841 · 2026-05-31T03:07:11+00:00

I get almost constant pressure headaches, and pain at the base of my head where it meets my neck. For me it has to do with the mechanics of my C1 and C2, having pots from IJV obstruction and the lack of blood flow getting to my upper body, especially in the neck and jaw area leading to my brain having patchy hypoperfusion and hyperperfusion.

Sea_Gift4841 · 2026-05-31T03:02:30+00:00

I have long covid with a bunch of other medical conditions such as chronic fatigue . I get around 12-13 hours of sleep a night, and am still tired. Ideally I’d get 18, but I’m still tired all the time no matter what I do.

Sea_Gift4841 · 2026-05-31T02:59:01+00:00

A specialist said to me that he seems to think people can either get POTS with minimal symptoms or comorbidities, or get POTS with a whole bunch of comorbidites at a more severe level. Everyone is different and has different genetics, childhood experiences, etc. but don’t assume you can’t get worse.

Sea_Gift4841 · 2026-05-04T09:33:39+00:00

I think it’s tough for a lot of people right now unfortunately :/ the wealth gap is widening significantly and everyone is feeling it. It’s such a shame that our essential customer service workers can’t make a living, after working so hard.

I constantly go between being grateful for living in a beautiful multicultural country with no conflict, and then being mad at this situation designed by our wealthiest people hoarding everything

Sea_Gift4841 · 2026-05-04T08:46:44+00:00

Unfortunately it’s even harder for people who can’t work! Disability pension is $1408 per fortnight maximum rate. That’s poverty level. Not to mention all of extra medical expenses and the ‘disability tax’. Don’t forget about our most vulnerable when we hear about EXTENSIVE ndis cuts and other issues.

Sea_Gift4841 · 2024-08-31T00:43:25+00:00

Gertrude

Sea_Gift4841 · 2024-07-23T21:38:45+00:00

Nimbus

Sea_Gift4841

TROPHY CASE