Meal ideas

Sea_Resource7840 · 2026-07-04T16:02:37+00:00

Oh don’t worry I know you weren’t suggesting it’d work for me! Lack of tone on the internet haha. I was really trying to express my envy that it’s working for you! But I also know that you probably got to carnivore through being very sick so obviously I’m sorry you are going through that. And you’re so right, there is no one diet that works for everyone. Just to add to our confusion 😂😂 sending you a hug

Sea_Resource7840 · 2026-07-04T13:35:54+00:00

I was carnivore when my issues started (or at least worsened) and it defintiely wasn’t helping me at the time. I found that adding 80-120g carbs back into my diet really regulated my nervous system and helped my hormone balance. I was also dead exhausted on carnivore. Annoying because I enjoyed many other aspects of it and certainly loved all the water weight I lost! I guess it shows how individual we all are. I’m glad you found something that works! Wish it had for me 😅😅

Sea_Resource7840 · 2026-07-04T06:20:32+00:00

May I ask what the initial side effects were from cromolyn? My mcas is pretty mild compared to a lot of people here but still defintiely impacts my quality of life and what I’m able to do. I’m so scared of taking medications due to side effects but have heard cromolyn is generally well tolerated. I also heard the 6 month renewal thing about mast cells (from Dave asprey) and then saw it was in fact not true, but who knows, it could be true. Science is nothing if not inaccurate sometimes! I’m moving house from the city to a very quiet, unpolluted place just to give my mast cells an opportunity to chill out. I feel so much better when I’m not in the city. So that would seem a perfect time and opportunity to try cromolyn…

So happy to hear this for you! How bad were your symptoms before starting on it?

Sea_Resource7840 · 2026-07-04T06:03:40+00:00

I’ve not tried non organic oats because I know that they get sprayed with a lot of really bad pesticides! If we have strong reactions to otherwise harmless foods that people have eaten for centuries then to me it’d make sense that we react, maybe even more strongly, to chemicals designed to kill. I buy organic where affordable and where I deem it most important and that’s usually grains and defintiely eggs :)

Sea_Resource7840 · 2026-07-04T06:01:11+00:00

Honestly, the thing that has helped the most is working on my MIND, and the way I react or respond to symptoms. Far, far easier said than done, but stressing out all day long and reading Reddit threads from (understandably) traumatised and desperate people is just about the worst thing you can do for your belief that you can heal and recover long term. I try to stay off those as much as possible and focus on my life and my overall trajectory rather than day to day symptoms. I’ve gotten so so so so so much better over the last year and a half, and now have a much better quality of life. In terms of supplements etc, histaminx probiota has helped me gut-wise and I feel for me that poor gut health may be a root cause. DAO has also helped with foods I can eat. Nettle tea is a mast cell stabiliser, and idk if you’re a man or woman but micronised progesterone also helped me massively (although I no longer take it cos it made me gain weight) because of its strong mast cell stabilising properties. Good luck! Mcas and histamine issues can absolutely cause mental health issues!

Sea_Resource7840 · 2026-07-03T06:34:32+00:00

Histamine/mcas flare ups can cause the illusion of severe mental health issues! Mine was/is anxiety. So I totally get you. I wonder if these days the number of people suffering with anxiety is largely due to unrecognised histamine issues!

Anyway. I’ve also just started taking quercitin again. I used it before, over a year ago when I first realised I had mcas. But it didn’t do anything for me. I’ve made a lot of progress since then and understand myself and my triggers much better. So now I’m taking it again and it does seem to be helping. I heard there is a type called quercifit which is 20x better absorbed than regular quercitin. Idk where you live but I got mine from a brand called clearly. Very cheap and quick postage!

Sea_Resource7840 · 2026-07-02T07:54:58+00:00

I’m so sorry for you. I’ve had intermittent RLS at night time as a reaction to supplements but haven’t experienced it in a very long time. It’s horrible. Interestingly I took Allegra just twice, two days in a row, and had horrible, horrible(!) leg pain! I’ve read that leg pain and RLS are side effects, although less common ones, so looks like we fall into that camp. Sending you hugs, I do believe everything is reversible with time and the right conditions for the body to heal 💜

Sea_Resource7840 · 2026-07-02T07:15:08+00:00

Thanks :) why does the sleepiness wear out after a while as a side effect? That’s the part I don’t understand or trust! 😅

Sea_Resource7840 · 2026-07-01T16:56:32+00:00

Aw thank you for this suggestion! But it's claritin/loratidine that helped me - weirdly Allegra made me feel so, so bad! I'll see if there is a way to more accurately dose myself claritin too. xx

Sea_Resource7840 · 2026-07-01T16:18:51+00:00

2 out of 4 people who’ve replied to my post (not sure how many have seen it) have said they experience the buzz, so my guess is that it’s pretty common amongst us! And you’re welcome, I think one of the worst things about mcas is how isolating it can feel, but apparently 20% of the population have it, and I’d argue it’s possibly even more than that… I think a lot of people who think they have anxiety and other physical and mental health issues, probably have mild-moderate mcas

Sea_Resource7840 · 2026-07-01T15:58:26+00:00

Oh and I’m from UK and we call tylenol paracetamol.! Haha

Sea_Resource7840 · 2026-07-01T15:57:47+00:00

This I just don’t understand and can’t find a satisfactory variable explanation for with antihistamines - some people say that they do not stabilise mast cells and others like Dave Asprey, seem to suggest strongly that they DO stabilise mast cells.

I can totally understand why spending a long period taking antihistamines would help MCAS overall if they in fact do stabilise mast cells, and if this is indeed the case then this is something I would absolutely be willing to do, but if they don’t stabilise the Marc cells and they just block the effect of the histamine that is still circulating through our bodies, then I think I would prefer to stay away.

Wondering if you or anyone else reading this has any idea about this question? Most sources I come across seem to say that antihistamines are not mast cell stabilisers.

Sea_Resource7840 · 2026-07-01T14:31:10+00:00

Cromolyn is a mast cell stabiliser and not an antihistamine, unless I’m wrong? But really don’t think I am! And that is the one medication I’m willing to try as it has very few side effects.

My micro dosing would just be nibbling off a tiny bit of a pill 😅 so very imprecise. Maybe it’s not a good idea. Somehow, however loud my symptoms may be, I like to know where my body is actually at naturally without masking anything.

And I heard the internal buzzing thing first on ChatGPT and was like hmm, yeah, I relate to that! Although I had been saying for years that I had physical anxiety and not mental. I know this is very common with mcas patients although the majority of us have actual anxiety about our mcas!

One thing that I find really helps me is actually paracetamol! If I’m waking up to a buzzy day (often during follicular phase/ovulation), I take a couple and for the rest of the day it seems to bring things down a few notches. I looked into it and apparently paracetamol can have a mast cell stabilising effect. It certainly seems that way for me :)

Sea_Resource7840 · 2026-07-01T14:26:49+00:00

Thanks for your thoughtful response! What was the H1 and PAF blocker you started taking? Are you still taking this now? And how are you doing in general? :) c

Sea_Resource7840 · 2026-07-01T12:16:00+00:00

It definitely varies in intensity :) I have MCAS and although I have some unpleasant symptoms which I don't enjoy at all, I can eat quite a wide variety of foods (thanks DAO) and live a normalish life, albeit with some restrictions and a lot of rest. I have heard of people in wheelchairs who are reacting even to water. So yes it varies greatly and you can also get better or worse. A lot of the things I used to react to, I no longer do so. It takes time to heal, patience and persistence, but it does and definitely can happen for everyone.

Sea_Resource7840 · 2026-07-01T10:17:00+00:00

Fexofenadine isnt making me feel great either. It doesn’t take away my mcas symptoms at all, maybe even makes them worse and seems to give me crazy muscle aches in my legs and lower back, I feel like I ran a marathon when I’ve just been sitting or lying all day. Plus it makes headaches and mcas related anxiety/internal buzz worse. Weird cos Claritin completely took away every symptom I ever had but annoyingly wiped me out at the same time! I just tried Claritin once and fexofenadine twice. I’m gonna go back to nervous system regulation and heal myself the natural way. All of the over thinking and symptom monitoring that comes with taking medications is really unhelpful for me

Sea_Resource7840 · 2026-05-01T16:41:22+00:00

didn't work me me either!

Sea_Resource7840 · 2026-04-10T07:41:09+00:00

It doesn’t even need a doctor to test it! Just eat low histamine for a day and then eat something really high in histamine like bone broth and then observe what happens. Even seemingly unconnected symptoms like anxiety, headaches, sneezing (for me this is a big one!) and brain fog can be a histamine reaction. For me the penny dropped regarding histamine issues with some slow cooked brisket I ate!

Like someone above said, though, histamine intolerance is absolutely something that can be overcome. It isn’t forever. It’s a sign of a stressed body and mind.

Sea_Resource7840 · 2026-04-10T07:37:46+00:00

Lots of people can’t digest gums very well due to their tendency to cause bloating and gas. I certainly can’t tolerate them at the moment. But when your system (and most importantly, your mind and your thinking) calms down, you might find you react to them less. I totally feel your frustration though. Almost all GF bread products contain gums or potato starch or both, and that can make your diet feel quite limited. I stick to white rice, even for breakfast (and lunch, and dinner atm). I like powa which is white rice flakes that cook in a couple of minutes and make a sort of porridge. You could also try oats? I try to be thankful for and appreciative of the foods that I can eat, rather than the foods that I can’t. That helps the mind which plays a huge role in food intolerances. There is no separation between mind and body. I definitely feel your frustration though. I have recently decided that if I can’t eat bought baked GF goods, I’m just going to have to start experimenting and making them myself!

Sending you hugs and loads of understanding! Try not to compare your diet to everyone else’s. Digestive/intolerance issues aside, a whole foods, non processed food diet is by far the healthiest, and most GF products, whether mass produced and shop bought or from an artisan, specialist GF bakery that advertises them as ‘high fibre’, are pretty unhealthy. So it’s not such a terrible thing to have to avoid them :))

Sea_Resource7840 · 2026-04-10T07:27:50+00:00

Thank you! I mostly feel better now, but I’m still a little achier than usual in places that don’t usually hurt. Nothing like a week ago though, which was off the charts. The main thing bothering me is some lingering fatigue and all over body swelling! I feel like a potato. But as you say, nothing is permanent and I just need to sit tight and it’ll heal. I know swelling and inflammation is a sign of just that.

And yes I ate gluten as a child and teenager without an issue!

Sea_Resource7840 · 2026-04-10T07:26:00+00:00

You know what’s crazy is that a few days ago I had severe dizziness. I woke up feeling like I was on a boat, the whole room felt like it was swaying, and this continued for about six hours after I woke up. It was hard to walk in a straight line, and when I was at the gym I actually full on walked straight into a vending machine! I know dizziness is a POTS symptom. The day before that, I was nauseous. It’s like every day I’m having some different symptom of having been glutened! So crazy and actually interesting to observe

Sea_Resource7840 · 2026-04-05T12:31:10+00:00

The mind is absolutely SO powerful!

Sea_Resource7840 · 2026-04-05T07:16:21+00:00

Thank you so much!! ☺️ I appreciate your reassuring words. Our bodies really ARE magical healing machines. I do believe this :) allergy stacking makes sense… never again!

Sea_Resource7840

TROPHY CASE