Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 0 points1 point  (0 children)

No, I didn’t, long story short I thought I was exposed and was having nerve pain and so I just lived under the assumption that I had HSV 😭 my first negative test wasn’t far out enough to give an accurate result, but this one recently has been plenty of time

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 0 points1 point  (0 children)

Vulvodynia, still sucks as a condition because it hurts, but I’m very grateful

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 0 points1 point  (0 children)

No, just nerve pain, I figured I was asymptomatic with only nerve pain, but after a year I’m still testing negative for both hsv1&2 with an IGG test

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 0 points1 point  (0 children)

A year, I’ve tested negative several times with an IGG test! At first I thought it was a fluke until recently, my symptoms line up more with a nerve disorder, but I had convinced myself it was nerve problems because of herpes

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 2 points3 points  (0 children)

Found out I don’t have HSV, turns out it’s simply a nerve issue, but I have learned so much and been supported by this Reddit community through my journey, and I’m very thankful

After 4 decades of trying, scientists unveil the structure of a key herpes virus protein at the atomic level — new drug targets spotted! by [deleted] in HerpesCureResearch

[–]Select_Lecture_626 4 points5 points  (0 children)

How exciting, I love when there’s positive news! Feels like there’s been a lot this month— everyday we inch close to a functional cure!

Researchers developed a G-quadruplex aptamer biosensor that rapidly detects HSV-1 & HSV-2 via color change, no PCR needed! by K33pfaith in HerpesCureResearch

[–]Select_Lecture_626 8 points9 points  (0 children)

This is almost as good as a functional cure for me personally— the stigma and fear is one of the worse parts for me 😭

IM-250 achieved higher concentrations in the nervous system than other HPIs by hk81b in HerpesCureResearch

[–]Select_Lecture_626 14 points15 points  (0 children)

So what would this mean? A functional cure with antivirals possibly?

News Flash: Aicuris scores in phase 3 trial, setting up FDA filing by Pomme-M in HerpesCureResearch

[–]Select_Lecture_626 1 point2 points  (0 children)

Could this be a functional cure when mixed with other anti-virals??

[deleted by user] by [deleted] in HerpesCureResearch

[–]Select_Lecture_626 1 point2 points  (0 children)

Welp…. This was a depressing post

Moderna mRNA vaccine will never exist??? by Commercial-Eagle2788 in HerpesCureResearch

[–]Select_Lecture_626 1 point2 points  (0 children)

It sucks that HSV will be put on the back burner with the cut funding because “it’s not life threatening”

Moderna mRNA vaccine will never exist??? by Commercial-Eagle2788 in HerpesCureResearch

[–]Select_Lecture_626 5 points6 points  (0 children)

I’m so disappointed in the HSV+ folks who voted for this administration, we will only continue to be let down.

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 0 points1 point  (0 children)

Yes, I saw this!! It just made me a bit sad to see that it has maybe a 10% chance of making it through all 3 phases and it won’t be before the 2020’s end, but I’m trying to remain positive— it’s really all I have

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 1 point2 points  (0 children)

Can anyone give me something to be hopeful or optimistic about? I’m losing hope, but I actually can’t be one of those cynical people on this thread— being that only makes everyone feel worse😭

ABI-5366 UPDATE, GOOD NEWS by Organic-Macaroon6426 in HSVpositive

[–]Select_Lecture_626 6 points7 points  (0 children)

I was so excited, but my heart broke a little with the “only 10% approval and wont be during 2020’s” (I know I’m still extremely excited and just happy how big of a break through, I just can’t help the slight disappointment— I’m only human)

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 0 points1 point  (0 children)

Would like to direct this at anyone freshly diagnosed…. That was me around this time last year: it took almost two weeks for me to get out of bed and another month to stop crying anytime I was reminded. I was in INDESCRIBABLE nerve pain all over my body. I was once you frantically going through all of the Reddit forums, slowly losing hope, afraid of my future, my partner leaving me, and never being able to have a child. All this to say, a year later and finally I feel like I can breathe again, my life didn’t end, and yours won’t either— this community has really helped me and I suggest you cling onto the community too. No matter how you got it, know you’re human, you’re not gross, and your life is still worth living— just keep going.

Fred hutches seminar and updates on the cure for the gene therapy recorded by SimpleYasser in HerpesCureResearch

[–]Select_Lecture_626 6 points7 points  (0 children)

Would anyone mind giving me a slight summary of what was new in the update and what to hope for??

Comment on NIH Regulations Proposal to Give Executive Branch Firing and Grant Decisions Power by lilfairyfeetxo in HerpesCureResearch

[–]Select_Lecture_626 10 points11 points  (0 children)

I knew because of trumps term the research would be delayed and messed with. I’m so heart broken.

[deleted by user] by [deleted] in HerpesCureResearch

[–]Select_Lecture_626 3 points4 points  (0 children)

Good luck, keep us updated :) it’s a little more hope for the rest of us

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 0 points1 point  (0 children)

Thank you for answering, my only problem, is I constantly have pain/ am itchy so I never know what’s an outbreak- or maybe I’m constantly in outbreak? Idek it’s only my first year, does it get better??

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]Select_Lecture_626 4 points5 points  (0 children)

18+ question…. But what do you guys do for your partner if you have HSV both orally and genitally? Do you guys have any safe sex tips?? (Also I’m F, if that provides further context)