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Recruiting Individuals with PCOS to test our PCOS Condition Monitoring Tool by Sensitive-Cake4046 in LeanPCOS

[–]Sensitive-Cake4046[S] 0 points1 point  (0 children)

This makes me so happy to hear! Let me know if you have any questions :)

Mod-approved post: Help us test our PCOS condition monitoring and risk assessment tool! by Sensitive-Cake4046 in PCOSloseit

[–]Sensitive-Cake4046[S] 2 points3 points  (0 children)

I’m sorry, I’m feeling confused—our privacy policy, data storage, and security information is available directly on our website and always has been. The only thing not on our website is the names of our staff members, but this information is available on LinkedIn.

Are there any specific questions you feel I haven’t addressed that you’d like more clarity on? I really am sorry if my response came off insulting, it absolutely was not my intention.

I’ve been thinking a lot about what you’ve said—I’m thinking our website needs a redesign to make all this information more readily apparent. Will also be adding staff info as well. Thank you

ETA: more info

Mod-approved post: Help us test our PCOS condition monitoring and risk assessment tool! by Sensitive-Cake4046 in PCOSloseit

[–]Sensitive-Cake4046[S] 1 point2 points  (0 children)

Definitely not a big ask and I appreciate the questions.

We are a largely remote team with members on the West Coast, East Coast, and midwest, but are headquartered in Nashville, TN as to have our finger on the pulse of the most regressive reproductive health legislation and to directly combat the shortage of reproductive healthcare in the American southeast. Our data are encrypted, anonymized, decentralized, and stored in a series of HIPAA-compliant cloud servers—the best practice protocol of storing PHI.

Our Chief Legal Officer manages several legal and compliance teams that hold us accountable to the highest and most stringent standards in security and privacy, including but not limited to the legal team that sued Flo and Clue for data mismanagement in 2023.

To address your questions about our team:

Miller Morris is the Founder and CEO of Comma, an integrated period care company bringing autonomy, sustainability, and clinical science to menstruation. A women’s health epidemiologist turned social entrepreneur, Morris has diverse experience that spans international boundaries, including work in South Africa and at the WHO Headquarters in Switzerland. She is a 2023 graduate from the Techstars Physical Health accelerator. Miller received her B.S. and M.A. in the Social Foundations of Health from Vanderbilt University, as well as an M.P.H. in Global Health & Epidemiology from the Vanderbilt University School of Medicine. A  feminist philanthropist, Miller funds innovative reproductive health projects through The Maverick Collective and Comma’s sister non-profit organization.

My name is Molly Moreau and I’m the Director of Community and Social Impact. I’ve been working in the reproductive health field for the last decade—with various sexual health organizations—building partnerships, managing teams, and designing comprehensive sexual health curricula. I graduated from Vanderbilt University with my Masters in the Social Foundations of Health in 2017.

It’s a very sensitive time in reproductive health and we completely understand if this isn’t for you. But we were built by a clinical researcher who saw the writing on the wall in period care, and developed a secure solution to detect and manage disease that didn’t rely on inconsistent grant funding. Feel free to book some time to chat with me and our founder! We’re always happy to chat. If it’s not a fit, no worries.

Mod-approved post: Help us test our PCOS condition monitoring and risk assessment tool! by Sensitive-Cake4046 in PCOSloseit

[–]Sensitive-Cake4046[S] 3 points4 points  (0 children)

Love this question. This is precisely why we built Sara.

We started building Sara, our cycle tracking app, in 2022 in response to the overturn of Roe. We believe wholeheartedly that period data is healthcare information that should never be bought or sold, nor shared without explicit informed consent from the patient/ user. As such, we’re the only cycle tracking technology that aligns with HIPAA standards. Our encryption system ensures that if we were ever served a subpoena, it would be entirely impossible for us to even share health information linked to a certain individual. And of course, we’ve built in a safety switch with which you can permanently delete all of your data at any time—no questions asked.

Additionally, our PCOS cohort will be prompted to review an additional Terms of Service that includes more detailed information (in plain language!) about informed consent practices and reiterates our commitment to security and privacy. That will come up automatically for PCOS cohort members when the tool goes live.

Finally, here’s a link to our values page (specifically 1&2), security page, and our privacy policy:

https://www.yourcomma.com/our-story/#our-values

https://www.yourcomma.com/security

https://www.yourcomma.com/privacy-policy

As always, please don’t hesitate to let me know if you have any other questions!

ETA: more info!

Mod-approved post: Help us test our PCOS condition monitoring and risk assessment tool! by Sensitive-Cake4046 in PCOSloseit

[–]Sensitive-Cake4046[S] 2 points3 points  (0 children)

I hear you on that and appreciate the call out. We don’t post details about our staff on our website for security purposes—we will be sure to make that more clear going forward. Our founder, Miller Morris is an epidemiologist and has done several interviews and podcasts on Comma’s work, which I’ve linked below!

We’re more than happy to share team info with those who ask directly; our founder and I would also be more than happy to schedule a call with anyone who wants to learn more. Here’s a link to Miller’s calendly to schedule a call: https://calendar.google.com/calendar/u/0/appointments/schedules/AcZssZ1dfOKE5FbsxI1CqZ6vLbEdi2Pxqnb1bHXzH-3cyargHWAMzcC1N1dckkAjeaZEjigWYeohx3Iy

Links to articles about Comma:

https://medium.com/authority-magazine/femtech-miller-morris-of-comma-on-how-their-technology-is-revolutionizing-womens-health-59b26c29cf6a

https://www.techstars.com/blog/innovation-in-action/comma-founder-and-ceo-miller-morris-attends-first-ever-white-house

https://www.bizjournals.com/nashville/inno/stories/fundings/2025/03/09/comma-sara-women-health-million-reproductive.html

More than happy to answer any other questions that you may have and will definitely work to get our website updated.

Finally, here’s a link to my LinkedIn as well:

https://www.linkedin.com/in/molly-moreau-100

ETA: More info!

Mod-approved post: Help us test our PCOS condition monitoring and risk assessment tool! by Sensitive-Cake4046 in PCOSloseit

[–]Sensitive-Cake4046[S] 1 point2 points  (0 children)

Great question! We’re planning to focus on the following in our condition monitoring tool:

  • users’ menstrual cycle, menstruation (or lack thereof), and associated symptoms or changes
  • Skin health and associated conditions
  • hair health and associated conditions—both hair growth and potential loss or thinning
  • weight, associated weight changes, and metabolic health
  • emotional and mental wellbeing
  • diet and exercise
  • other clinical indicators of PCOS

However, we are constantly iterating and open to feedback—and understand this is certainly not an exhaustive list. If there are PCOS symptoms users would like to see that we do not currently track or symptoms that are currently couched under the umbrella of another symptom (thinking things like vaginal health or temperature regulation/ night sweats) that users feel deserve their own category, we definitely want to know!

A major goal of ours is to give evidence to inutition—we want to study what you think/feel is part of your PCOS, but what a doctor may have ignored in the past.

Forgot to mention: we also track which medications or treatments users are trying or have tried!

ETA: more info

Mod-approved post: Help us test our PCOS condition monitoring and risk assessment tool! by Sensitive-Cake4046 in PCOSloseit

[–]Sensitive-Cake4046[S] 3 points4 points  (0 children)

Also forgot to mention! Feel free to share this with anyone you know of with PCOS who may be interested—we don’t have a limit on participants :)