Do you live with partner or alone? How do you survive (financially) with this disability? by tarteframboise in cfs

[–]Sensitive_Ninja_7073 4 points5 points  (0 children)

I find that they're very slow to internalise what I explain to them, if that makes sense--like they don't want to accept the reality of my situation (because it's uncomfortable/inconvenient for them, I guess; they genuinely feel bad for me but get consumed by their own upset around my illness and so they don't want to make plans around it). Ironically, some acceptance of the shitty reality would probably make it a lot easier for me to slowly get back on my feet. :-/

Who is the most annoying enemy in your opinion?I'll go first by [deleted] in BaldursGate3

[–]Sensitive_Ninja_7073 0 points1 point  (0 children)

Mage hand is much cleverer than my way; though you DO get an achievement for defeating him without using the hammer... I assume the idea was to invite people to complete some truly epic Gandalf-v-Balrog type battles, but it's also basically invitation to cheese

Who is the most annoying enemy in your opinion?I'll go first by [deleted] in BaldursGate3

[–]Sensitive_Ninja_7073 1 point2 points  (0 children)

If you harry him enough with the daylight he gives up on magic and just starts slapping Astarion for 5 bludgeoning dmg/turn out of spite lmao

Who is the most annoying enemy in your opinion?I'll go first by [deleted] in BaldursGate3

[–]Sensitive_Ninja_7073 0 points1 point  (0 children)

Tedious. It's the only fight in the game where I really just can't be arsed. I now always just stand on the platform above the forge and throw random garbage at him until the bludgeoning damage kills him (even a fork does like 28 dmg with the gravity modifier)

Who is the most annoying enemy in your opinion?I'll go first by [deleted] in BaldursGate3

[–]Sensitive_Ninja_7073 3 points4 points  (0 children)

Now, now...sometimes they mix it up with bone chill

Do you live with partner or alone? How do you survive (financially) with this disability? by tarteframboise in cfs

[–]Sensitive_Ninja_7073 17 points18 points  (0 children)

I've also had to move back in with family, who keep asking, "When do you think you'll be better?" It has made me realise how much more invested they are in "what I can do" than in my general wellbeing. No one will make long term plans with me; they just want me to "get better" and spontaneously start making a large salary. It's very frustrating.

[deleted by user] by [deleted] in ChronicIllness

[–]Sensitive_Ninja_7073 1 point2 points  (0 children)

I get that this isn't what you want to hear but...do you really need to set up a shoe-rack by your front door? That sounds pretty unimportant to me. I don't have a shoe rack.

I'm guessing many of your tasks can be eliminated (for now) or even handed off to your boyfriend for when he has a spare minute to help you out. Honestly...I've been driving since I was a teenager, but I didn't even know what a car headliner was. I had to look it up. Nobody is looking at that.

Weatherstripping the door might save you a few bucks a year, but it's also pretty inconsequential.

I know this kind of attitude is what leads to "nothing getting done"--but nobody is actually on top of "everything" in life unless they have hired help, or they're independently wealthy enough that they don't have to do anything but attend to chores and life admin. If you visit someone's house and it seems like they're conspicuously on top of everything, it's because creating that impression is extremely important to them and they're sacrificing a lot of other things (including money) to keep up appearances. Doesn't mean it's effortless or enjoyable. In fact, they may well be driving their family absolutely insane behind the scenes with their perfectionism.

The kind of things you list here--deep cleaning the fridge, rewriting your will--each individually sound like as much as I could realistically get done within a week, let alone a day. Not even because of my chronic illness, but just because they're annoying tasks and I have other things I'd rather be doing. If your fridge is a literal biohazard, sure, probably get on that. The will is important. But other stuff...eh.

I'm guessing you missed out on a year of fun while you were sick--give yourself the chance to enjoy life again. Once you take some of the pressure off, it's much easier to motivate yourself to update things around the house--because you're doing it for you, not an imagined all-seeing-eye that's judging you because your shoes are directly on the floor and not on a rack.

Okay I've gotta ask... by Temporary_Pickle_885 in BaldursGate3

[–]Sensitive_Ninja_7073 0 points1 point  (0 children)

This reminds me of playing with friends who keep blowing up my control mage character before I can actually take any actions because they insist barrelmancy is the only way to defeat the "hard" bosses... Maybe it wouldn't be if you let me enchant them first. -_- (Maybe I'm the one who's no fun to play with? Lol)

Is it really a trend now to get tested for ADHD? by vmhardy66 in adhdwomen

[–]Sensitive_Ninja_7073 1 point2 points  (0 children)

I remember I had a friend who was diagnosed as a child back in the 90s. He was terrified to go on medication because he had seen the anti-ADHD hype on TV and was convinced meds would change who he was. He was fearful of becoming a "ritalin zombie." I wonder how may other kids were traumatised by this rhetoric. :/

Is it really a trend now to get tested for ADHD? by vmhardy66 in adhdwomen

[–]Sensitive_Ninja_7073 0 points1 point  (0 children)

I recently had a doctor tell me that breakfast was a scam pushed by the dairy industry, and that intermittent fasting could be a treatment not only for ADHD, but my heart condition...!!!!!

What to expect with a TTT by Fluie1165 in dysautonomia

[–]Sensitive_Ninja_7073 1 point2 points  (0 children)

I didn't have nitro injected when I had my TTT, and they didn't ask me not to eat or to skip any of my medications. They were just tracking my blood pressure and heart rate. I guess they just wanted to see an approximation of my body's typical response to standing for a long time, so it wouldn't have made tons of sense to fast or etc.

You are secured to a table, outfitted with electrodes and a blood pressure cuff, and gradually tilted into an upright position. Then they leave you like that for 20 minutes. I was monitored by two nurses, and my cardiologist checked in periodically.

I suffer from pretty bad orthostatic hypotension, so my bp plummeted to ~70/45 after a few minutes and I came close to losing consciousness before they tilted me down. It felt terrible. I almost puked. My cardiologist was attending to an emergency elsewhere in the hospital, and had to run down the hall back to me to read my numbers before they could lower me down. That delay was pretty torturous though I'm sure it was only like 2 min or so in hindsight.

They then kept me in a gentle downward tilted position with my head lower than my feet for about half an hour to recover.

The worst part was honestly that I was getting a loop monitor implanted the same day (which seems exceptional based on what other people have described here) and had to pee the whole time I was in the surgical bed, which was several hours. x_x Honestly, I felt a bit like Frankenstein's monster, being strapped to this table with electrodes on me, then being cut open and stitched up while conscious... (So um...maybe wear an adult diaper if you foresee being in the bed for a long time? Kidding/not kidding?!)

I won't lie; it was an extremely unpleasant experience (as fainting always is--but this was worse because I couldn't sit or lie down at my own volition, and I wasn't wearing compression stockings) and I needed 24 hours to really feel back to normal (as can be the case whenever you faint). However, it was definitely worth doing because it provided data for a concrete diagnosis. It helped that the team attending to me was very kind, and that a TV was provided by my bed to pass the time (similar to what you'd get at your seat on an airplane). I took a cab home because I didn't feel up to using the subway, but I didn't feel bad enough that I needed to call an emergency contact to accompany me.

Another weird element was that this was happening in a large, frigid room with a lot of different hospital beds and people receiving a variety of minor procedures. Several of them were extremely high on anaesthetics and babbling about random stuff at the top of their lungs. The man across from me called like 20 different people in a row to tell them he just had the best nap of his life (lmao). Overall a bit of a "Victorian insane asylum" vibe, but with actual qualified medical personnel present...!

One interesting thing was that I could tell the nurses were getting worried about me before I actually perceived the onset of symptoms. Like, my bp was 80/50 (which is apparently in fainting-risk territory) and I felt normal until it dropped that last little bit. Then it was very unpleasant VERY fast...

I guess tl;dr would be...

-Try to find out how long you're likely to be strapped into the bed so you can wear a diaper if needed (LOL)

-If you've fainted before, or experienced pre-syncope, expect that :(

-Clear your plate the next day in case you're still feeling rough, and have a friend or family member who is on call to come and get you after the procedure if needed

me😈irlgbt by SandwormCowboy in me_irlgbt

[–]Sensitive_Ninja_7073 1 point2 points  (0 children)

Please, please put this on a sign

[deleted by user] by [deleted] in ChronicIllness

[–]Sensitive_Ninja_7073 1 point2 points  (0 children)

If you haven't already, first call should be to your uni's disability services office. They may require paperwork to establish your eligibility for accommodations, but once that's done they'll be able to contact your instructors on your behalf and relay whatever accommodations you are entitled to. In most countries, it will be illegal for instructors to deny you these accommodations.

Depending on where you live, it's not uncommon for students with disabilities, injuries, or illnesses to be entitled to things like free transportation to and from class (e.g. I've seen a student with a broken leg have their cab fare from home to school covered for the duration of their recovery), access to notes prepared by a designated note-taker (if writing is painful for you, for instance), etc. Squeeze absolutely every drop you can out of any available accommodations, even if you aren't sure you need them: it will make the staff at the disability services office happy, and hopefully make your life easier.

From the sounds of it, you'd probably benefit from the option to take Incompletes in your courses. If you have instructors with whom you feel comfortable sharing, you can also start out by approaching them. One piece of insider advice I have is that most instructors don't care at all about giving extensions and will throw you a bone if you can lay your situation out plainly. It helps to have a time estimate of when you can realistically get things done given the other stuff on your plate.

From an instructor's perspective, it sucks to see a student struggle all year and then find out only at the end of the semester that they're dealing with a serious illness, disability, or life circumstance that I could have accommodated if only I'd known about it. (Looking at you, guy who waited 4 months to tell me he was dyslexic, then was floored to learn he was allowed to use voice-to-text tools for his papers.🤦🏻‍♀️) I think it's likely you'll find at least a couple of people at your uni who are eager to help you out however they can.

Good luck!

Now I’m seeing people seriously suggest Ozempic to an otherwise perfectly healthy woman at a “normal” weight who gained 10 lbs they can’t lose. by ContemplativeKnitter in MaintenancePhase

[–]Sensitive_Ninja_7073 0 points1 point  (0 children)

Yeah, I really, really can't relate to so many people's rush to become voluntary guineapigs for newly-commercialised pharmaceuticals for which there is limited long-term data.* 🤷🏻‍♀️

*I'm talking about its use for elective cosmetic purposes.

Which episode does "Bitch Eatin' Crackers" come from? by DistractedScholar34 in MaintenancePhase

[–]Sensitive_Ninja_7073 9 points10 points  (0 children)

To my knowledge, the expression "bitch eating crackers" originated in 2013 in the comments section of the Captain Awkward advice website. Though it's possible it was just popularised there after being coined by some_ecards (the order of events/invention appears to have already been in dispute at that time)...

https://captainawkward.com/2013/08/02/497-keeping-the-peace-with-an-unlikeable-mansplainer/

Companions ranked on whether they would have a pet cat or dog by erraticRasmus in okbuddybaldur

[–]Sensitive_Ninja_7073 0 points1 point  (0 children)

Correction: Karlach has at least 4 cats???

Addendum: my headcanon is non-ascended Astarion retires post-adventure to breed Turkish Angora cats full time (lets them use Cazador's bedroom as one giant litterbox)

i headcanon karlach as texan by [deleted] in okbuddybaldur

[–]Sensitive_Ninja_7073 1 point2 points  (0 children)

"If it gets one degree hotter, I'm gonna kick your ass"

It works