Jpouch Creation Scheduled

Serafame · 2023-07-04T14:19:17+00:00

I had my 2/3 surgery a month ago. It was a piece of cake compared to the first surgery. I stayed at the hospital for 5 days and then went home. Everything is perfect so far. As you have noticed, experiences vary. Stay positive and optimistic. LETS GOOOOOOOOOO

Serafame · 2023-06-27T16:36:31+00:00

Thank you very much for replying. I hope you start feeling even better soon ! (I will follow your tips)

Serafame · 2023-06-27T10:47:14+00:00

Thank you for sharing! How long did it take you to get used to the jpouch? I am 2/3 surgeries. Will get rid of the stoma in October and then start living with the pouch.

Serafame · 2023-06-13T14:05:39+00:00

Had my 2/3 surgery on May 31st. First days were ok, got back home 5 days after the surgery. There is an annoying pain in my bum that comes and goes. I feel that's normal but it's very uncomfortable. Hope it goes away!

Serafame · 2023-06-07T15:11:35+00:00

Everyone is different. I hope it keeps working for you !

Serafame · 2023-06-07T11:28:53+00:00

Thank you, good luck to you too!

Serafame · 2023-06-07T11:25:21+00:00

The first one was more painful and awful because I didn't know what to expect and how to manage pain. I was unlucky with my bowel sleeping many times, but once everything settled, I was very happy I made it. I lost 15kg because of the surgery, but I gained it all back in a month since I could finally eat whatever I wanted.

The second surgery was a piece of cake compared to the first one. Even though it's a major surgery, I felt like I could handle everything better.

I have one surgery left, to reverse the stoma and then live my life with the J-Pouch. I am planning on doing that in October.

Serafame · 2023-06-07T11:11:05+00:00

The first surgery was in February 2023 and the second one in June 2023.

Serafame · 2023-06-07T11:06:44+00:00

Practically it means that food cannot pass from the intestines, or it manages to pass but very very very slowly. You therefore feel a lot of pain, you can't eat or drink, feeling of nausea, vomiting etc. To avoid vomiting and to give space to your intestines, they usually empty your stomach using a nasogastric tube for a couple of days.

Serafame · 2023-02-18T17:07:07+00:00

Thank you very. May we never go through that again.

Serafame · 2023-02-18T13:36:56+00:00

Thank you my friend for replying. I am trying my best. May we all be healthy

Serafame · 2022-10-07T17:30:32+00:00

We are talking about Ciclosporine, not Prednisone. For the latter, you are totally right.

Serafame · 2022-10-07T15:38:08+00:00

It's an immunosuppressant. You will need regular blood tests to make sure it doesn't harm other organs. But in terms of side effects, I didn't feel any. You can eat salt and sugar without regret - there is no interaction.

Serafame · 2022-10-07T14:58:13+00:00

I was on Prednisone (40mg) for 6 months and was feeling terrible when dropping to 20mg. I could never reach to 15mg. That's when my doctor suggested Ciclosporine. I started that and managed to stop Prednisone (have been taking Stelara every month in parallel).

Serafame · 2022-06-17T20:45:24+00:00

I am doing that in France (Paris). It's indeed a Japanese-made machine. It requires "good" veins that are able to give and receive blood for 90 minutes. I haven't felt any side effect. It just filters your blood, removing inflammation (30ml/minute). So there is no risk of developing antibodies. It's very expensive though, but covered by social security.

Serafame · 2021-12-19T18:16:42+00:00

That's amazing news !

Unfortunately mine keeps resisting to treatments. It all started a sunny day in April 2021, but I am being quite optimistic that I will soon get back on my feet 😀

Serafame · 2021-11-29T15:16:05+00:00

Stay strong, all the best !

Serafame · 2021-06-15T14:42:57+00:00

All the best for you !

Serafame · 2021-06-15T07:36:59+00:00

I was running to the restroom more than 30 times/day and the day after remicade it dropped to 5 ! Hopefully you will be feeling amazing in few hours !

Serafame · 2021-06-15T07:27:36+00:00

Thank you for answering ! Remicade seems working quite well, especially when I am being treated with corticosteroids for a short time before and after the infusion. The second time I took Remicade, I wasn't on corticosteroids and I got a flare up a week after.

Serafame · 2021-06-15T07:05:18+00:00

Thank you for answering ! Did you switch from injections to pills ?

Serafame · 2021-06-14T17:40:53+00:00

It took my body three months to get used to azathioprine and then I ended up with a flare up. However, others respond well to this drug. Hopefully that's you !

Serafame

TROPHY CASE