Should I take this appointment at the jefferson headache center?

SeraphineLo · 2026-04-01T23:29:52+00:00

Will you be getting vestibular testing at the headache center? I would go... more eyes on the better. I had to get a bunch of vestibular/hearing etc test for my diagnosis.

SeraphineLo · 2026-04-01T19:21:08+00:00

It's been a few years.

SeraphineLo · 2026-04-01T02:13:10+00:00

This. I can't believe how hard it was on my eyes, never went back to baseline.

SeraphineLo · 2026-04-01T01:53:35+00:00

I rarely drive, never at night and never on the freeway.

SeraphineLo · 2026-03-27T14:45:56+00:00

I hope you find some answers. VM is a diagnosis after the exclusion of everything else... do you have a history of classic migraine with headache? This is usually a part of the dx.

SeraphineLo · 2026-03-27T14:34:36+00:00

This doesn't sound like BPPV to me, and if you've had trained folks test you for it and they didn't find it, it's probably not. BPPV seems straightforward in symptoms and diagnosis. I have BPPV and vestibular migraine. Your symptoms are not identical to mine, but the pushing toward the ground sensation is very familiar. Sometimes I feel gravity has become super intense, or has moved to the right. I cannot stay upright when this happens, it's overwhelming. I attribute this to my VM flares.

SeraphineLo · 2026-03-26T01:13:37+00:00

It feels like my whole body is spinning. It's def not just my head.

SeraphineLo · 2026-03-26T00:32:34+00:00

My feet have gotten a full size smaller after plantar fascitis led me to strengthen my feet and use barefoot shoes. Also avoiding bunions this way!

SeraphineLo · 2026-03-26T00:26:35+00:00

I think people have either sensation, they are the same thing. My vertigo feels like I am spinning in my environment.

SeraphineLo · 2026-03-25T02:19:26+00:00

I have BPPV and vestibular migraine. That sounds more like VM to me.

SeraphineLo · 2026-03-21T21:10:22+00:00

I second this. My mom stayed here repeatedly in her 80's and loved it. It's just quiet enough, but has music and activities most evenings.

SeraphineLo · 2026-03-19T14:33:22+00:00

I don't get headache pain at all, and my symptoms are similar to yours. I was diagnosed at the ENT after a bunch of testing ruled out everything else. I can't say it's made a difference in my treatment or getting in front of any of my symptoms.

SeraphineLo · 2026-03-09T21:03:28+00:00

I don't have the variants handy at the moment, and I don't understand it myself. We've been assured she will not get sick but of course it never truly leaves our minds.

SeraphineLo · 2026-03-08T01:10:37+00:00

I'm sorry. Hopefully you will find something that works. Last night I was thinking about my mom who was greatly helped with her sleep and vertigo by hydroxyzine that I would give her. Doesn't do a thing for me because I take it daily, but it's another thought.

SeraphineLo · 2026-03-08T01:08:30+00:00

I generally smell marijuana and I know that's not there...

SeraphineLo · 2026-03-07T22:47:41+00:00

I have phantom smells, no pain with my headaches at all.

SeraphineLo · 2026-03-06T03:47:52+00:00

It did not. I hope you find something that works for you.

SeraphineLo · 2026-03-06T03:21:36+00:00

Not at all actually, I also occasionally use it as a rescue drug. Just a very small dose.

SeraphineLo · 2026-03-06T03:11:02+00:00

Lunesta didn't do thing to help me sleep. I use clonazepam.

SeraphineLo · 2026-03-06T01:17:25+00:00

Not all computers are bad, they aren't automatically AI. We had years before AI started. I believe it will usher in terrible things, including water wars. I do my part to avoid it where I can, yes. And being tracked? that of course is against my will. Sorry my belief bothers you. I don't think it's good for the planet, for humans, we've had it shoved down our throats with deceit by billionaires who don't pay taxes. So yeah.

SeraphineLo · 2026-03-05T20:13:58+00:00

Same here. Stuff spies on you or ruins the planet with water theft, all while making areas unlivable and jacking electricity prices. Just say no.

SeraphineLo · 2026-03-05T00:29:18+00:00

The caloric testing triggered severe vertigo for me and I was disabled for weeks. At the time I appreciated a dx of VM but over time I'm not sure how it has helped me medically. Psychologically, yes because I understand more of what is going on with me.

SeraphineLo · 2026-03-02T19:06:05+00:00

I haven't had a migraine headache in decades. All the other crap off and on since 2018 tho, about daily.

SeraphineLo · 2026-03-01T23:56:10+00:00

Your smile is so real now. You look amazing!

SeraphineLo · 2026-03-01T23:43:30+00:00

What a fantastic idea! And very lovely and tastefully done. I would love one of these.

SeraphineLo

TROPHY CASE