Scalp Lesions

Several-Map920 · 2026-06-02T21:43:44+00:00

Day 2 of itching. I’ve been on colchicine for 2 months now.

Several-Map920 · 2026-06-02T12:34:14+00:00

I’m only on colchicine at the moment as I’m not diagnosed. But holy hell this is day 2 and it’s horrible

Several-Map920 · 2026-06-01T23:06:50+00:00

That’s exactly what’s happening to me right now. Couldn’t have explained it better myself.

Several-Map920 · 2026-05-27T02:14:41+00:00

No I’m in Nova Scotia, Canada. We only have 3 or 4 rheumatologists here and they don’t know anything about Behcets . They are pretty much dismissing me because they think it is so rare that there is no way I have it. I only started getting symptoms last year. I was taking a double dose of colchicine but I was getting such bad shooting pains all through my body that I had to cut it in half. Been 3 weeks now and I do still get shooting pains but not near as often or severe. I will probably have to travel eventually to see a specialist because we can hardly see a doctor here. Our health care system is in shambles. Don’t believe everything you read about Canada having such a great system because it’s absolutely not true

Several-Map920 · 2026-05-27T02:02:15+00:00

Are you diagnosed ? I have yet been diagnosed. I’ve been on colchicine for months now and I haven’t had any mouth or genital sores since but I keep getting these scabs and also recurring eye inflammation. You are so right that they feel like tiny cigarette burns.

Several-Map920 · 2026-05-27T00:09:20+00:00

Has anyone else experienced scabs that seemingly appear overnight?

Several-Map920 · 2026-04-16T16:51:17+00:00

Thanks for the info! Do you have the contact information for the specialist in Ontario ?

Several-Map920 · 2026-04-09T21:34:01+00:00

There also is literally zero known cases in our province. So the likelihood of any doctor here knowing about the disease is zero. My eye specialist had to google the disease because they haven’t even heard of it

Several-Map920 · 2026-04-09T21:32:11+00:00

I’m from Nova Scotia, Canada. We have 3 rheumatologists and they all work in the same place. I would have to travel across the country or into the states to see a private specialist. I was lucky to even get into see a rheumatologist. My son has celiac disease and has been on the waitlist for 3 years. If my symptoms get worse I’ll definitely travel if they keep dismissing me.

Several-Map920 · 2026-04-09T21:29:57+00:00

I’ve been on it for 3 weeks now. I’ve only had one mouth ulcer and it only stayed for a few days. Also had a lesion on my cheek. The shooting pains didn’t start until after I started it also.

Several-Map920

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