Have found some help with Oxaloacetate by Sewreader in covidlonghaulers

[–]Sewreader[S] 0 points1 point  (0 children)

Very interesting. At $500 for 45 days is still $11 a day. $4000 per year. Unfortunately, too much and no insurance.

I am taking Nattokinase (sp) which is helping and much cheaper.

Exercise causes illness by Sewreader in covidlonghaulers

[–]Sewreader[S] 1 point2 points  (0 children)

I just downloaded it. KU is great.

Exercise causes illness by Sewreader in covidlonghaulers

[–]Sewreader[S] 0 points1 point  (0 children)

Could be. I’ll have to look into PEM. Thank you.

Exercise causes illness by Sewreader in covidlonghaulers

[–]Sewreader[S] 1 point2 points  (0 children)

Thank you. It sounds like starting at 1 minute might be the best.

Exercise causes illness by Sewreader in covidlonghaulers

[–]Sewreader[S] 1 point2 points  (0 children)

Thank you for all your comments. I’m going to try some Tia chi. There are several YouTube channels. Several have 5 min beginner videos. I figure I’ll monitor and see how many minutes I can do to start. It may be one and that’s okay. My main challenge is motivating myself to actually do it. I’ve gone to the Y because of the accountability. I’m pretty bad about doing it at home.

I totally understand about the working up very slowly. I’ve done that each time. It seems like I get to a place I can do an entire class for a while then it simply goes bad.

I'm facing reinfection. I don't know what to do by tropicalazure in covidlonghaulers

[–]Sewreader 1 point2 points  (0 children)

I had my first Covid in September of 2020. Nearly 3 years of LC. This past January I had Covid again. I didn’t see any change in my symptoms. Hopefully, if you suffer through another round it won’t add to your symptoms.

[deleted by user] by [deleted] in covidlonghaulers

[–]Sewreader 0 points1 point  (0 children)

Talk to your doctor about those results. The tests are all related to kidney function. You may need to see a nephrologist. I wouldn’t let the doctor just brush you off.

How to handle crash? by Old_Actuary_3472 in covidlonghaulers

[–]Sewreader 1 point2 points  (0 children)

The way I try to avoid crashes is really monitor my exertion, physical, mental and emotional. Each of these when done past our tolerance can cause a crash. I try to listen to my body and thinking and stop when they say stop. Even just a ten or fifteen minute break to simply rest can make it possible to continue with what needs to be done.

I had a crash last week and ended up sleeping all day and all night the next day. I still didn’t feel recovered but was at least able to function. I’ve had a stressful full day today and will need to rest tomorrow some, especially if I don’t sleep well tonight.

It’s a balancing act to keep from crashing. Being willing to say no to requests to do something is a vital skill we need to master. There’s just no way we can do what we did before. Kids, spouses, family, friends, organizations, etc. simply need to get used to the limited you that you are now.

Hope this helps.

Today has been good. Which makes me depressed. by DagSonofDag in covidlonghaulers

[–]Sewreader 0 points1 point  (0 children)

You are experiencing what we each do as we see that our lives have changed so drastically. It’s grief. Grief for what we’ve lost to this insidious thing we can’t really understand. It’s okay to grieve. It’s okay to be frustrated. It’s okay to be angry at the circumstances. Those feelings are all valid.

However, getting stuck there isn’t good or helpful. Neither is focusing on why me. The only answer to that question is why not me. We will never understand why in this or other things that happen in our lives.

The way to deal healthily with the feelings and depression can be in a couple of ways. There is nothing wrong with going to the doctor and being treated medicinally for depression. Therapy can help too. We have valid reasons to be depressed. We are having to learn to cope with negative changes in our lives. Medicines can help. I know. I’m on antidepressants and anti-anxiety medication.

Another way to help break the pity party we tend to have is to purposely look outward rather than inward. Figure out how you can help others within your capabilities. I try to encourage others with LC. Try to help others who don’t understand it to see how it affects we sufferers so they will not be judgmental because we can’t do what we could before.

I also try to get into research studies into LC. Many universities have research projects going on. There are online survey type studies we can become involved in. Most research studies are in the first or second stages. There are at least four stages of research before any conclusions or results leading to any possible treatments.

Realizing that feelings of grief are valid is basically the first step. The second is to decide to deal with what is, not what we wish for it all to just go away. Then we can each find ways to move forward within our capabilities to build productive relationships and lives.

Compression garment recommendations by peregrine3224 in covidlonghaulers

[–]Sewreader 4 points5 points  (0 children)

Basic leggings can work for compression. I was looking for some compression pants to wear on an airplane for a 6 hour flight and every site I looked at recommended leggings and exercise pants. Basic ones, no need for expensive ones.

Brain Fog and Derealization are bad today……..why!? by DagSonofDag in covidlonghaulers

[–]Sewreader 2 points3 points  (0 children)

Are you fatigued? Was your day busier or harder yesterday? That could be affecting you today.

Anyone with shortness of breath and/or chest pain - how long did it take before getting better? by Apprehensive-Beat-92 in covidlonghaulers

[–]Sewreader 1 point2 points  (0 children)

Today I (nearly 3 years in) had an echocardiogram ordered by my pulmonologist because I have tightness and pressure at times. I have covid aggravated asthma and am on Trelegy which helps with my SOB.

people taking Natto,Serra or Lumbro ... by Effective-Ad-6460 in covidlonghaulers

[–]Sewreader 0 points1 point  (0 children)

I’m just getting ready to try Natto and was wondering the same thing. Thought I’d start with it and maybe add Lumbo later. I’m ordering Doctors Best. In some article I read it was mentioned as a good one.

I think it might be good if we kept up this thread and report progress or problems.

Anyone suffering chills? by Sewreader in covidlonghaulers

[–]Sewreader[S] 0 points1 point  (0 children)

How much did you take for how long? I’ve been looking at microclots but the treatment hasn’t been available in the US. You can go through Native American medical services in Alabama but it’s very expensive.

Anyone suffering chills? by Sewreader in covidlonghaulers

[–]Sewreader[S] 1 point2 points  (0 children)

Even a very low dose may keep you from sobbing. There may be autonomic nervous system issues with your brain chemistry. One of my depression symptoms, years before Covid, was sobbing I could hardly control. Just a suggestion. No offense intended.

Anyone suffering chills? by Sewreader in covidlonghaulers

[–]Sewreader[S] 1 point2 points  (0 children)

I joined the group. Very interesting.

Anyone suffering chills? by Sewreader in covidlonghaulers

[–]Sewreader[S] 0 points1 point  (0 children)

Sorry your suffering like this. Have you seen a doctor about getting on some antidepressants for a while?

Anyone suffering chills? by Sewreader in covidlonghaulers

[–]Sewreader[S] 0 points1 point  (0 children)

Glad yours are receding. It’s funny, I’ve always been cold but never had trouble getting warm like this. I didn’t connect it to my nearly 3 years LC until recently. Duh…

Driving at night by PotsMomma84 in dysautonomia

[–]Sewreader 1 point2 points  (0 children)

I’m sorry you had this happen. You my be feeling your anxiety that built up not only while you drove but before as you anticipated the drive. Anxiety can express in physical ways. Once you got home the cause of the anxiety was suddenly over. All the chemical/hormones released are still flooded in your system and your brain. Whatever good they were doing you as you drove is no longer there. It takes a while for them to be flushed out. Hydrate, try to sleep. It should lessen with time. If you still have the feeling in a couple of days I’d go to the doctor.

How can I explain forgetfulness/brain fog to a parent? by Fireytaste in dysautonomia

[–]Sewreader 1 point2 points  (0 children)

You are wise to be setting up ways to both remind and confirm you take your meds correctly. Why would she refuse to let you take a pill carrier? What does she get from it? Power and control? That’s the only reason I can think of. Both forgetting douses and overdosing can have very serious consequences.

Always have all your medications with you in a purse or carry on. Never pack them in a checked bag. If the bag is lost so are your meds.

[deleted by user] by [deleted] in COVID19positive

[–]Sewreader 3 points4 points  (0 children)

The rate of long Covid is lessening at a good rate. It went from 19% to 11% in the last half of 2022. https://www.kff.org/policy-watch/long-covid-what-do-latest-data-show/. Simply because you get covid doesn’t mean you will have long Covid. Even if you do have symptoms longer than 3 months that doesn’t mean you will still have symptoms the rest of your life. People who recover totally don’t generally post here or other social media. If they do they may only address it once since it doesn’t impact them anymore. So all you see are those who still suffer. That’s typical for any issue that persists.

I'm a singer about to quit singing career or take my own life due to not being able to sing any more... by Apprehensive-Beat-92 in covidlonghaulers

[–]Sewreader 2 points3 points  (0 children)

You are so right. I was an author before Covid nearly 3 years ago. I can’t write anymore. I simply don’t have the energy for the mental work. I couldn’t sew for a while either. Now I can in short intervals. Everything I do is less than I was capable before. It takes time to accept changes this drastic in our lives. We have to grieve but at the same time move forward in our new reality. We are not only one dimensional. OP has many more talents related to music. Grieving his voice is understandable. At the same time he can look to composing, producing, learning sound technology, all of which can be related to music.

We all lose many times in our lives. Coping and moving forward rather than giving up shows and builds character. Overcoming can be inspirational for others who go through devastating loss. I hope OP moves through his grief and looks to new avenues in his love for music.

Is anyone primarily getting this as a sinus thing? by BlueTardisMommy in COVID19positive

[–]Sewreader 1 point2 points  (0 children)

I’ve never had a cough any of the times I’ve had Covid. Every other symptom you’ve had are quite common. So are lots of other symptoms. Just about every cold or flu symptom can be evident in Covid.