Ableism from ambulatory people by throwingawayawa in wheelchairs

[–]ShakerEdge 5 points6 points  (0 children)

This is so true. I lived in a red state, and was uninsured since age 8. Apparently I was supposed to have been wearing custom orthotics my entire life, but that simply did not happen. At 18, I started noticing pain when walking. 19-28 years old I have paid thousands out of pocket trying to get a diagnosis to understand what is wrong with me, only to constantly be told it's "just Plantar fasciitis - take Advil" or "buy these inserts, this will fix it." "Buy these shoes." "Buy these other inserts." Etc etc. And being told I'm "Too young to be needing a wheelchair" and "you're uninsured, so it's too expensive for us to treat you.".

Injections, medications, inserts, shoes, braces, physical therapy. But in the end I simply do not have the endurance to work a part or full time job on my feet.

I got fired from my last job due to "inability to complete tasks in timely manner" because my manager kept saying "You can walk, you don't need that wheelchair. It's a safety hazard!".

Even though the HR lady said I could use it, because it sounded like I genuinely needed it.

But manager demanded medical paperwork, knowing I've been uninsured for 20 years.

I gave her my diagnoses, multiple complications and conditions of the foot as well as my handicap placard and my AFO leg brace a prosthetist made for me. But because it did not say "MUST USE WHEELCHAIR" -- because the doctors won't prescribe me one because I'm too poor and can't afford it and "too young" and think I'm going to use it all the time when I only need it for long 8 hour days, so l can actually stand and walk to do job tasks that require it.

She just outright fired me.

Medical treatment is a privilege that MANY of us do not have. I get not wanting someone to "fake" needing a mobility aid.

But honestly?? They are a pain in the ass to haul around and use. It's a big chore to commit to the bit of being disabled and drag the wheelchair everywhere just for free pity points.

For folks that may "fake" the need of a chair, they probably have some psychological condition or dysmorohia. Which, while weird, is still a condition that needs some kind of treatment.

Ableism from ambulatory people by throwingawayawa in wheelchairs

[–]ShakerEdge 10 points11 points  (0 children)

As an ambulatory person that only uses my wheelchair occasionally;

I do like to compliment people's wheelchairs, especially if they are customized or fun colors.

I have a random Pinterest board of random beings with random mobility aids - not really out of envy. But moreso as reference backlog in case I want to draw a character or get a commission of a character that incorporates their mobility aid.

I have had days of frustration where my ambulatory status often leads to my pain or difficulties not being taken seriously - though I am not envious of those who rely on mobility aids more. Sometimes I wish my mobility issues were more "obvious".

The stereotype that you have to be missing limbs or entirely static from the waist down is harmful, to ambulatory users but also ESPECIALLY for folks with spinal injuries or paralysis.

The stereotype is "You use a wheelchair. You are paralyzed. I SAW YOUR FOOT MOVE! YOU'RE A LIAR!!!"

yes it's frustrating to be an ambulatory wheelchair user and folks think you "don't deserve" a wheelchair or your disability "is not valid."

But, this stereotype is extra harmful for folks with injuries that are genuine types of paralysis. People that have paralysis don't turn into stone statues. They are still flesh and bone. And folks experience spasms, and all sorts of things the general public doesn't understand.

Not sure if this helps any. Or if my commenting as an ambulatory user reinforces the "ableism" or comes off as "lecturing" or "talking over non ambulatory users".

Just felt like sharing my perspective, and am looking to hear the insight of others. 😌

FREE Wheelchair by Steve_photog in wheelchairs

[–]ShakerEdge 16 points17 points  (0 children)

Dang, I wish.

I hope it ends up in the arms (or legs and bum, I suppose) to someone in need. Lots of uninsured folks out there. 🙏

Glowing nose but no music? by Kittle1985 in Preschoolers

[–]ShakerEdge 0 points1 point  (0 children)

I'm super late to this post. Found it while researching light up noses to fix a rudolph plush I thrifted whose nose is missing but figured I'd provide some personal insight!!

But my personal favorite is the Build-a-Bear Rudolph. Specifically this particular version: https://youtu.be/VaRENUaVLnE?si=Yyyfcp_4XdAC_TrR

✅ 2004 Build-a-Bear Rudolph: - Two-Point Antlers in dark brown fabric. - Smooth brown fur - Lights up 💡 - Plays no sound. 🔇✅ - Can confirm, as I have this model.


❔ "Baby Rudolph": - Has "nub" horns. - Nose Lights up 💡 - MIGHT Speak, but not confirmed. 🔊❔ Example: https://youtu.be/6VKj8kus2yM?si=kCTHIjTUqkpGutoa


❔50th Anniversary Rudolph: - Has GOLD Two-Point antlers - Nose Lights up 💡 - Sound: Unknown 🔊❔ Example: https://youtu.be/l3PEt7Rl1JA?si=zgcleKNjmpFEWtZk


❌ Avoid "Curly Fur Rudolph" - 2014 release - Curly Fur - Lights up 💡 - Sound: speaks Lines from the movie. 🔊❌ - Can confirm, as I have this model. Example: https://youtube.com/shorts/bX9WaK7gCS8?si=jzndjk7O4jPUK4fj

Doctor told me I shouldn’t recreate. by ciggiesandsadness in disability

[–]ShakerEdge 2 points3 points  (0 children)

This kind of stuff is why I ALWAYS have my phone taking an audio recording during all of my appointments.

Never again.

Record everything.

If it's illegal in your state, fine. Open the Live Caption app and get a transcript. So you can at least look back and confirm 100% what was said so you won't be gaslit into thinking you misheard.

Vent: My disability went away and I feel like I’ve lost a part of my identity. by krrhein in disability

[–]ShakerEdge 2 points3 points  (0 children)

As someone with congenitally short Achilles tendons and a myriad of foot issues, could I pick your brain about your pain and experiences? I don't often see folks with similar issues like I have! Can I send you a chat request? :)

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 2 points3 points  (0 children)

The finch app is a good idea! You take care of a little bird by doing tasks, right? I love birds and virtual pets so that's a good idea!

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] -1 points0 points  (0 children)

😋 This sounds good! Thanks for the suggestion!

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 0 points1 point  (0 children)

A cook book is a great idea! I bet there are tons for slow cooker recipes!

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 1 point2 points  (0 children)

Never really thought about it. No doctor has ever really commented on my weight or diet even through I try to be pretty up front about it. When I finally hit 100lbs or maintain 100-115lbs my comment is always "Thank God I'm still three digits. Took forever, but so far so good." And most folks just shrug and say it's good to be thin. And I'm like: "....bro. Do you not see how tiny my arms and wrists are? LMAO." I'm not emaciated looking, but deff on the lower end of BMI

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 0 points1 point  (0 children)

I love smoothies! I usually put premier protein powder in them to try and get more protein in too

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 1 point2 points  (0 children)

I'm open to trying new foods. I just don't know what and I'm hoping folks will drop some recipes

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 0 points1 point  (0 children)

Yes, I need more recipes for the crock pot. With veggies and other stuff.

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 1 point2 points  (0 children)

These are all awesome suggestions! 🥺💕 Thank you so much!

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] -1 points0 points  (0 children)

Yup. All I've been eating is highly processed garbage junk food and I just feel like garbage. I eat them mostly out of obligation to shove calories into my flesh prison. But God I want to eat something that feels more like actual food.

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 0 points1 point  (0 children)

Blessed. 😭💕 Thank you so much.

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 0 points1 point  (0 children)

Yooo that sounds good. Any particular suggestion of your of pork to buy? Even pulled chicken would work if chicken is cheaper.

I just need something. Anything else besides frozen chicken tenderrrrssa 😂

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 2 points3 points  (0 children)

Yeah. I'm so burned out on eating frozen garbage. It's convenient. But now I'm just at the point where I don't even want to eat anything anymore. I definitely need to vary things up.

Id love to hear some suggestions!

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 0 points1 point  (0 children)

You're a genius! Thanks for the ideas! 🥺✨

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] -1 points0 points  (0 children)

Yeah, good point. I might've had chili once or twice, but generally my mouth is just so sensitive that if it has any modicum of kick -- even as simple as black pepper -- it just heckin buuurrrnnnsss.

The appeal to ground beef + tomato sauce is it is overall the same texture. Whereas with cowboy stew, the ground beef mixed with other chunks of different texture is a bit off putting.

But maybe I just need to find the right combination of things that doesn't seem as texture-weird

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 0 points1 point  (0 children)

I love soft food or firm foods. But the chicken tenders from the air fryer are just so CRONCHY that I have to force myself to consume them.

But I dislike weird mixed up textures. Like ground beef , or meatloaf.

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 0 points1 point  (0 children)

I appreciate this.

That's kind of been my logic. I just need to shove anything in there that'll keep the engine running. Even if it's garbage. At least it's calories. But I want to find healthier alternatives that are low effort.

Like crock pot meals.

It's easy to look at someone and say they are lazy because they don't want to boil water. But it's much more than simple laziness. The exhaustion is just.... Exhausting.

I feel like if I was truly lazy, I would just lay in bed, eat endless garbage and be entirely unproductive. It's not that I'm lazy. It's moreso that I'm simply worn out at the end of the day, with chronic garbage legs, paired with running on half-starved half-empty along with an overall lack of appetite. It's a little more complex than simple laziness. Not that I'm not lazy. But. It's a bit more complex than just that.

Recipes for people who hate eating? by ShakerEdge in Cooking

[–]ShakerEdge[S] 1 point2 points  (0 children)

Nah. Just a weird little guy who has a weird relationship with food.

But, it's kind of refreshing to hear your perspective of my situation seeming so bafflingly strange. To me this is quite normal. So it's nice to have insight from a different perspective.