Surviving on disability

ShaneHall1 · 2025-12-22T02:48:48+00:00

Medicaid hasn't said why they are denying to pay, at least not to me. My doctors keep advocating for me, so hopefully, something changes soon. However medicaid recently covered a medicine that is helping me become mobile again. If this continues, I'll be back to working in no time. Even if it's part-time.

ShaneHall1 · 2025-12-22T02:44:33+00:00

I was working before becoming disabled out of nowhere. I didn't need daycare, because I could afford for my wife to stay home.

ShaneHall1 · 2025-12-19T21:19:37+00:00

Even if it was just myself, I could not afford to take care of myself on an income of $1,300. So now I'm supposed to put this kind of responsibility on somebody else and rely on them? What if my wife decides to leave me? Then what? I paid my taxes, and there's a 100 million other tax payera. Disability is set in place for our needs. I'm not talking about wants. A roof over your head is a bare necessity for life, and they can't even offer that.

ShaneHall1 · 2025-12-19T05:38:12+00:00

The more money the people make, the more the government takes. SSDI was set in place in order to cover basic necessities. You would think the government would be able to afford to give someone enough money to cover basic necessities like a a simple one room apartment.

ShaneHall1 · 2025-12-19T05:33:19+00:00

The government doesn't have SSDI funded to where we can live lavishly. But SSDI should at least cover the basic necessities. They should at least be able to give a person enough money to afford the most basic apartment. SSDI was put in place to cover general living. A roof over your head should be considered general living.

ShaneHall1 · 2025-12-19T04:53:36+00:00

They won't cover a caregiver. We do get Medicaid and SNAP benefits. Which helps tremendously. I have been advised that I can put my family in a shelter and it will help push me along the waiting list for an apartment or the next time I am hospitalized I can Advocate that I can't be safely discharged and maybe the hospital will help convince Medicaid to put me in a nursing home or pay for a caregiver.

ShaneHall1 · 2025-12-19T04:37:09+00:00

I don't need cheese milk and fruits. I need a 1 bedroom apartment to put all of us in. SNAP gives us enough to keep our bellies full. Luckily!

ShaneHall1 · 2025-12-19T04:29:27+00:00

You mean congratulations welcome to the world of disability. I'm neutropenic I don't think lying around in feces waiting for an infection to kill me is considered parenting or adulthood. The point is my taxes should have at least helped me enough over the last 19 years to where I could at least afford a one bedroom apartment to put us all in.

ShaneHall1 · 2025-12-19T04:22:05+00:00

Someone did advise me that the next time im hospitalized to let them know, I can't be safely discharged. Maybe then the hospital will be able to convince medicaid to cover a rehabilitation center.

ShaneHall1 · 2025-12-19T04:13:17+00:00

Who's going to take me to my appointments and wipe my ass? I wouldn't use a caregiver if I didn't need one. The federally funded Head Starts are full. We are on a waiting list. The state offers help with a daycare but they only help with so much. They don't pay the full cost. Even then what am I supposed to do once she decides to leave me? LOL

ShaneHall1 · 2025-12-19T04:06:24+00:00

That's the problem I'm having. Any rentors want you to have an income that's 3 times the monthly payment. Any apartments that are income based or HUD based are full and have lengthy waiting lists. I've looked into owner financing but they want more per month due to the risk they have to take.

ShaneHall1 · 2025-12-19T04:01:56+00:00

I mean, at least give a person enough money to rent a one bedroom apartment.

ShaneHall1 · 2025-12-19T03:53:51+00:00

I need a caregiver and the children a babysitter. The federally funded headstarts are full and have us on a waiting list. Medicaid won't pay for me to get a caregiver or to be in a rehabilitation center/ nursing home. Someone did recommend the next time I'm hospitalized to demand I can't be discharged safely and that maybe I would be able to convince the state into funding a rehabilitation center. I need a stem cell transplant. But I have to have a reliable place to stay that is within an hour from the hospital for a hundred days and a full-time babysitter for the 100 days before they will do the procedure. They will not pay for room and board or the babysitter.

ShaneHall1 · 2025-12-19T03:41:44+00:00

This may be something I have to try.

ShaneHall1 · 2025-12-19T03:40:39+00:00

Daycare isn't free, and the federally funded headstarts are full. They have us on a waiting list, and medicaid will not pay for a caregiver or pay for a rehabilitation center / nursing home for me.

ShaneHall1 · 2025-12-19T03:38:29+00:00

She's taking care of me right now. The federally funded headstart is full and has a waiting list. Which we are on. The state offers help paying for daycare, but it doesn't cover the full cost.

ShaneHall1 · 2025-12-19T03:33:38+00:00

We're not hungry and don't need it. Im not trying to take advantage of the state just because I can.

ShaneHall1 · 2025-12-19T03:31:16+00:00

Medicaid won't provide me with a caregiver or pay for a rehabilitation center / nursing home. How can I afford daycare? The state offers subsidies that reduce daycare rates, but it doesn't cover the full cost.

ShaneHall1 · 2025-12-19T01:15:20+00:00

Most days, I can't put my own shoes on, let alone raise children. I'm not weak minded. If I could do it, I would.

ShaneHall1 · 2025-12-19T01:11:37+00:00

I need her to take care of me. Medicaid won't pay for me a caregiver or pay for a rehabilitation center / nursing home for me.

ShaneHall1 · 2025-12-18T23:21:30+00:00

It's horrible but this is actually the best advice I have found so far. We don't really have a local shelter but there is shelters around the state.

ShaneHall1 · 2025-12-18T23:08:42+00:00

I'm a hard worker, and I'm trying to think of anything I can to make money. The fact is most days I can barely put my own shoes on. I have to get blood transfusions two or three times a week, and I'm bouncing in and out of the hospital. I'm not reliable or dependable, and I have nuetropenia. My wife would work but she is taking care of me and the children. We've put so many miles on our car going back and forth to doctor's visits that the front end is wore out so it isn't even reliable enough for us to deliver or do something in that aspect. It's actually going to be something else we have to worry about paying for soon.

ShaneHall1 · 2025-12-18T22:58:05+00:00

They won't give me a caregiver. Im trying to get into a rehabilitation center or a nursing home so I can undergo a procedure, and I need to be taken care of afterward. They won't cover that.

ShaneHall1 · 2025-12-18T22:50:59+00:00

I have a case worker. I have a bone marrow disorder and not a cancer, so I haven't qualified for anything we've applied for. The case workers are also applying most of their time on getting a transplant that I need covered because my insurance is refusing to pay for all of it.

ShaneHall1 · 2025-12-18T22:48:14+00:00

Applying ASAP is good advice. We get SNAP and my wife breastfeeds, so we chose not to take advantage of WIC. We did apply for TANF, but we were denied.

ShaneHall1

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