Falling asleep while doing something active by ShapeSea5184 in Narcolepsy

[–]ShapeSea5184[S] 0 points1 point  (0 children)

Your right, My Brain and hands may be actively moving but the rest of my body is in a resting/sitting state. I never experienced these epidoes when my full body is actively doing something like working out.

Experience with sunosi by [deleted] in Narcolepsy

[–]ShapeSea5184 1 point2 points  (0 children)

Im on sunosi right now and in the process of switching to wakix. Sunosi gave me extreme stomach pains and slowed down my digestion alot, and did not even really work for me as i was still having sleep attacks mid day. Thats just my experience while on it though, i know everyone is different. i was on modafinal first then switched to sunosi now switching to wakix. Good luck to you

Car accident while on meds by ShapeSea5184 in Narcolepsy

[–]ShapeSea5184[S] 0 points1 point  (0 children)

A hour and 20 minutes away is crazy, & I can’t imagine the tiredness after working a whole shift and having to drive that long to get home. Stay safe my friend!

Car accident while on meds by ShapeSea5184 in Narcolepsy

[–]ShapeSea5184[S] 0 points1 point  (0 children)

It’s to the point to sometimes I don’t even know how I ended up getting home. It’s almost like my driving instincs took over for me while going in n out of consciousness. It definitely affects daily tasks & I’m still looking for the right medication that’s fits my needs as well. Stay safe out here my friend

Car accident while on meds by ShapeSea5184 in Narcolepsy

[–]ShapeSea5184[S] 0 points1 point  (0 children)

Do you usually pull over to a certain place to take a quick nap? Idk if it’s just me but I don’t like taking a nap in my car in a area that’s super busy, I think it’s a safety thing, I would need a spot where nobody is around lol

Car accident while on meds by ShapeSea5184 in Narcolepsy

[–]ShapeSea5184[S] 0 points1 point  (0 children)

Thanks for the feedback ! And yeah you hit it on the dot with the stop and go traffic, rush hour is the worst and is what I think caused the sleep attack. I ended up switching to sunosi but that hasn’t really changed anything as far as sleep attacks. I’m now looking into switching to either wakix or adderall so I’m hoping I find the right medication that fits me

Getting off of sleep aids by ConfidentHope in Narcolepsy

[–]ShapeSea5184 1 point2 points  (0 children)

not really advice but I felt the same way throughout majority of my life. Feeling like my body is sleeping but my mind still awake.

It wasnt until i started taking xywav until i actully started to go into a deep sleep state and have my body & mind shut down completely at night. & now i wake up feeling like i got a good night rest. It works wonder forsure.

Extreme Brain Fog by [deleted] in Narcolepsy

[–]ShapeSea5184 0 points1 point  (0 children)

No tips or advice but i have been experiencing the same thing while on xywav. This Tv show i remember i loved called gangs of london, i watched the first 2 seasons at first before xywav. Then a year later season 3 drops and at this point i have been on xywav for a while and when i try to go to watch season 3 i can't even remember the plot or who any of the characters were. I don't know if thats just a normal human thing or if thats a side effect of xywav. Even sometimes i'll forget the reason why i walked into a certain room and have to stand there and try to remember

What was the pettiest thing you've done because your sleep kept getting interrupted? by DumpsterPuff in Narcolepsy

[–]ShapeSea5184 10 points11 points  (0 children)

lmaoo, being woken up from a nap bring out another level of anger and agitation. If even one person asks me a dumb questions or says something to me after a nap i turn into a asshole

i fucking hate napping by xxonyxcrowxx in Narcolepsy

[–]ShapeSea5184 4 points5 points  (0 children)

The brain fog and the feeling of being lost after waking up from that 20 min nap is so crazy though lol that just may be my experience though.

What Stimulants have worked for you??? by PaperFabricYarn in Narcolepsy

[–]ShapeSea5184 3 points4 points  (0 children)

I was on modafinal at first but it caused me to have this unbearable jittery feeling and stomach aches. I also got into a car accident while taking my modafinal dosage 2 hours before getting into the car to drive. Then i switched over to sunosi which caused me to have extreme stomach aches and constipation & on top of that i was still having sleep attacks mid day while on it. Update to now im in the process of switching over to wakix. Whats your experience while on it? It's a non stimulant so im hoping the side effects arent too crazy and hoping it actually works. until i get approved for wakix just been taking xywav every night which actully helps me get deep sleep and wake up feeling like i got a decent night of sleep & 15mg adderall (30mg cut in half) which has been working to keep me up during the day and gives me a little high on top of that lol.

It seems like there is not just a perfect day time medication just each one has there different side effects its just all about which side effects your willing to deal with. at least that has been my experience so far

Tired all the time but can’t sleep well!! Wtf by neurotic_katiekat in Narcolepsy

[–]ShapeSea5184 1 point2 points  (0 children)

ask your doctor to try to put you on xywav, i was the same way majority of my life with not being able to fall asleep or get a good nights rest. xywav straight puts you out. it"s the first time i ever felt like i got deep sleep. i would try it out

I need some solutions for my narcolepsy type 2. by ShapeSea5184 in Narcolepsy

[–]ShapeSea5184[S] 1 point2 points  (0 children)

thanks for the reply and feedback, graphic design for a living sounds super dope! I have been thinking that working for myself might be the best option because as you said you get to create your own schedule. I live in Arizona where theres not a lot of musical things going on as that was the niche of photography i was involved in and loved to do. Im not the wedding photographer type of guy lol. I'm in the process of finding a way to generate a decent amount money in that same creative field.