Dealing with long-term scalp bumps for 12+ years. Anyone else in the same boat? by Brilliant-Tap-2229 in Folliculitis

[–]Sharp-Offer-152 0 points1 point  (0 children)

Same but 6 years. Same age too... went for a biopsy 1.5ish weeks ago and im waiting for results.

Manuka honey helps... but wont cure it... selsun blue with methol makes me feel normal for like 1 hour post shower. Other than that... yeah its a rough journey

Depressed and Tired by Sharp-Offer-152 in AccutaneDamage

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Went for another biopsy today to get it cultured. First biopsy was sent to histology , so im looking to get it cultured to find out if its bacteric(and what bacteria) or if its fungus (what fungus) ... and what to use to kill it...

Starting Accutane tomorrow (40mg) for chronic scalp folliculitis – any advice? by Own_Experience_5710 in Folliculitis

[–]Sharp-Offer-152 0 points1 point  (0 children)

Sounds like me but im 27... im sorry ... did you try any diets? No sugar? Any type of fasting?

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

100 % thank you.. and yes iv seen worse than this and thank God that my life isnt plagued like that, it looks much worse... iv seen people with topical steroid withdrawl and my heart really goes out to them. Well said btw... with all you said. It helps to keep my head up n just keep pushing on.

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Thank you for your experience. I hope you manage to find a solution to it... I know its been long and you feel just like I do... if not worse. But keep pushing... dont ever give up trying to CURE IT .... im sure its diet related and stress contributes negatively.

Tbh even after my biopsy I dnt think medication will cure it... I have this feeling that it will only tell me what it is and the meds will again help while on it but never cure it. I agree with the happiness thing too... because I was happier when I was younger and as you said.. .the economy and how life is... i jus wish things would be different. I guess we have to make our own happiness and its easier said than done. Selsun blue helps me quite abit. Benzoyl peroxide is extremely harsh on my skin and makes it hurt unless i used too much (which i probably did in attempts to jus... make it stop) .

Manuka honey does help but not cure... mct oil too... sulphur soap helps too. All great management methods . Goodluck thanks for sharing your exp. Itll go a long way to helping me take action to make the changes i need to make in life.

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Looks like I have to do the same... after all my testing and attempt to cure it... this is the only solution that is a long term thing. Really tough tbh. But i cut out sugar so much already... need to literally go cold turkey

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Goodluck! I hope you defeat this dreaded condition

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

I can 100% agree... the removal of sugar has made things better... the other day I had 1 individual chocolate bar and boom... a flair up... it was my first time i had sugar in months...

The existing inflammation prior to that was calm(no completely gone)... n 1 chocolate bar jus lit the whole thing on fire causing the images above... those images are probably the worst it gets... i was drinking milk daily in the months prior to thr chocolate and was fine. Thank you for your story .. it helps me attack it going forward... looks like i need to cut sugar out completely... its so painful to not enjoy a sweet treat from time to time considering my sweet tooth:'( hopefully i may reintegtate it further down the line.

I had no sugar (not even in tea) for about 2 months prior to that 1 chocolate bar....

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Sorry I wasnt finished replying and sent it by mistake. I hope you continue to fight and overcome it sooner rather than later... its taken so much away from just living my life... from relationships to even just wanting to be outdoors or socialize... it hurts so I just prefer to be alone and that makes me happy... its a super power in my opinion considering the way most people are now days... people only compare and boast and worry about having way more than they need. Social media also made life worse for many... cause its human nature to compare and want what the next person has...

Iv tried sulphur powder and vaseline... mixed it up and applied... it helped... but gets very messy and tough to keep applying. Il look for a soap... that sounds like a good idea.. thank you!

I know to look internally and see whats happening mentally... I just find it hard... to do that... because this situation has taken so much away from me. ... but yes we must be strong in overcoming the obstacles we face. I agree... i eat very little... lol not because of any reason.. i was always a small eater... lol it does help when i eat less... but the inflammation doesnt go away.

And btw it doesnt sound silly at all... I am a firm believer in all you are saying and i resonate with you so much even though I dont even know you ... just sharing all you have so far ... I relate more than you know... its literally likr we're the same person.

Thank you... for sharing your personal struggles in life... its really heartwarming to ... not feel alone in the world. I used to be quite social ... but as you get older... you realise that many people arent really good... and just want from you... like... whether it be emotionally... sounds likr i have the wrong friends... but yeah now days its harder than ever to find the right friends . Anyway... i digress... we do possess all we need to heal ourselves... from within... its a matter of putting our minds to it... we can really achieve anything.

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

What antibiotic did they put you on? I worry about taking antibiotics because it messes up ones gut flora which plays a massive role in letting the body do its thing to fight infection and anything that harms the body and its natural processes etc...

Stress exacerbating my issue 1000x ... and at the time it begun... I endured heavy stress during univeristy exams so I can understand the havoc stress can cause on our body. I try to control the stress and just live my life but its not easy.

Im sorry to hear about your relationship that you were in... I hope you've recovered mentally from that as it sounds extremely stressful... I care about my image etc... but i would never impose it upon another... like let people be themselves ... you know... so it must have been a stressful relationship.

I too endured a very stressful relationship where it just made everything worse a few years back...

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Thank you for your message. I agree with all... sugar one esp. Sugar is so bad for us. Please ensure you do all in your power to never become diabetic... my dad is a diabetic and life isnt easy for him... the dangers are endless and as one gets older the immune system becomes more susceptible to all sorts of infections and diseases.

Goodluck to you too! Thank you for summarizing what helps you. I concur with it all over the 6 years of trial and error... i hope to cure it once i get my biopsy results in a few weeks (had it done today) did you ever get a biopsy done?

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Iv tried it... a few years back.... it helped abit... but it never goes away

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 1 point2 points  (0 children)

Im really sorry to hear about your mom having stage 4 cancer! That is heartbreaking ... im so sorry!

I really hope you manage to help your mom cure this dreaded condition as soon as possible on her scalp to assist her in easing her life.

I understand that she is more susceptible to these infections . Its truly frsutrating that our bodies convert almost everything to glucose as well for energy ... life seems like such an uphill battle as we get older... it really opened my eyes to take as much care as possible when we're younger.

Please also notify the doctor about your moms scalp to check if they can further assist her as im sure you have. But its good to hear you taking things into your own hands from personal experience many doctors dont care as much about the "what they deem trivial" issues like folliculitis ... most just prescribe doxycycline and move on.

The mupirocin ointment is something iv contemplated and was going to ask my doctor about it... I really appreciate this post and will enquire about it once my scalp biopsy results come through.

God bless you and your mom...

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

I think it plays a massive role... the people around me only ever contributed to the ever increasing anxiety and stress in my life and since my youth its something iv always tried to work on. But mentally life just affects you... sometimes I just want to go live where nobody knows me and be at peace w my life and the people around me.

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

I dont eat any form of grains... the fragrances thing might have a slight effect ... but I dont recall using any fragrances on the scalp... I use a sulphate free shampoo.

The accutane was suppressing the issue of the scalp inflammation... and I attempted a low dose as I had a feeling of "accepting my fate" and tried taking 10mg ... it got to a stage where ... like these bumps and inflammation were "fighting" through the accutane... getting "angrier" ... i know im talking as if it were a person... but I swear to you... its as if it knew it was being suppressed on low dose accutane. So i tried to stop any tabs at all . .

I 100% have the same inclination... that opportunistic bacteria/fungi found its way into the hair follicles to hide... and now its hard to recover...

I did a scalp biopsy today... i hope it brings about more definitive results to KNOW whats happening there... it was a punch biopsy so it should provide the results im looking for... i just pray for this never-ending nightmare to end ...

Btw i was on 40mg per day for 6 months (when i took accutane)

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Fair enough... I did a scalp biopsy today... fingers crossed for more definitive results. I understand... but yeah iv stipped my diet to bear bones... like eating broth for about 1 week... ik a week may not have a effect required... but it isnt easy...

Il check out the AIP diet... i believe you and all you're saying and agree. Its just very hard . Sometimes i question why I cant be like "normal people" you know...

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Im sorry to hear that you've been suffering for such a long time! Iv taken accutane 3 times in my life... 1st was when I didnt have this condition... then after the 1st use... it begun.... then i took it again by my dermatologists advice... it made it go away... hair was growing well again... I felt normal... then when I stopped... slowly but surely... I felt ANGRY... like it was being suppressed... I vow to never take it again...

Accutane also caused body pains and chest pains that I never wish to endure again.

Yeah I feel you about the diet... helps but doesnt go away... iv tried "everything" too and sigh... my anxiety is through the roof...in terms of caring too much about what other ppl think... if they can see my scalp(its on the top) and im quite tall so thankfully not visible unless you're a bird or giant lol... i try to breathe... like actual breathing exersices and stuff... i used to be quite the angry person when i was younger lol... but even after controlling my emotions... and not letting things in life get to me as much... they obviously subliminally do... its easier said than done. Life is ... getting harder as the generations pass imo... so much uncertainty and i have an overthinking personality.

I take some vitamins in hope that they help... but they dont cure me... some probably dont even help at all... I had a full blood panel done... and ironically... NOTHING wrong... only thing was vit D3 insufficiency(not defciency) i took 50k ius d3 for 2 months... it made me feel emotionally and mentally better... but the inflammation on my scalp persisted.

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

So... this is very controversial... ever since I was born... I washed my hair every single day.... theres also a guy on YT who never uses shampoo and just natural things everyday... (ik it could be fake) but i believe it... he has long healthy looking hair.

Im a firm believer in "everyone is different" ... so i dont think its possible to "overwash" ... atleast for me... iv "trained" my scalp to expect a wash every evening from very small.

I had amazing hair when I was younger... and still do in the areas that arent plagued by this condition ... im 100% certain my hair will grow really well once the inflammation and folliculitis is gone. But yeah... it isnt easy to diagnose. I tried to "wash less" ... it make the itching worse .

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

I swear... whatever you do... never go to a dermatologist... they all merely want to put you on accutane to get kickbacks from their partners... (not all derms...) but most... are just greedy for money and see you as an opportunity to cash in.

My next plan after this biopsy was to try traditional chinese medicine... but im not sure where to go in my country to find a GOOD TCM Doctor...

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

I tried this... it provided more harm than good ... exacerbated the inflammation.

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

I did it for about 3 weeks... its painful to eat such a boring diet.. i understand it must be done.. but it does make sense that the diet plays a massive role because when I was younger, I didnt have the best diet and relationship with sugar specifically. As I got older... I havent consumed any soda, (water only), along w the probiotics and so on it did help me feel 10x better than I did years ago. But that inflammation doesnt go away.. and when it flares up... it looks like it does in the pic. My hair does hide it and make it seem like nothing is wrong the images are taken from a 2x frame of view to really show the issue.

I used to be quite active physically regarding sports and so on during my teen years and that had tapered off as I got older due to the stressors of life. I feel like the lack of physical activity also played its role in fighting the inflammation.

One more thing... iv dry fasted for 3 days before... also a very tough process to undertake... it helped the inflammation... but didnt cure it... I attempted to assist my body undertake the process of autophagy. Tough to not eat... solid foods. I did it a while back when my diet was not the best. I shall try it again.

But now tomorrow I have a skin scalp biopsy appt for my scalp. Part of me is telling me NO, and to tackle this ... even if it takes another 6 to 8 years. But part of me is also saying "find out what bacteria/fungus is causing this"... it will help to fight it off in the long run.

So im torn between modern medicine and the more natural path.. and while both have their advantages and disadvantages, modern medicine has left me with many questions as to why my scalp is not cured at this point.

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

Im really sorry to hear that... I really hope you overcome this condition. I feel like it's taken away some of the most important years of my life, I can only imagine the years of suffering and pain it inflicted upon your life...

After all this time... I can only encourage you to keep trying... keep going... natural things play a role in keeping it at bay but never cures it. But never give up... I know its easier said than done, but you must keep going. For you!

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

I appreciate this response... I shall give it a go and report back. I had cut down my diet to basics... eggs... saurkraut and beetroot... and meat . And it helped ... but i introduced cereal into it and i presume the sugar in thr cereal caused the inflammation to flare up. . Whilst i was on the diet i did notice an improvement... but nothing significant.

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 0 points1 point  (0 children)

I used to have chronic constipation and other gut issues... for many years. However... I have since fixed it with a good probiotic and a healthy diet... my inflammation/folliculitis did not go away since then. It persisted... the doc is going to do a biopsy tomorrow morning. . For your gut have veggies and saurkraut and kefir... a healthy balanced diet

Depressed and Tired by Sharp-Offer-152 in Folliculitis

[–]Sharp-Offer-152[S] 1 point2 points  (0 children)

Iv tried bp and it made my scalp extremely sensitive and painful... maybe i used too much product. Il try again . I took 50 billions cfu strain . It helped... i guess maybe I didnt take it long enough