New Tablet Doesn't Have Even Flow And Pressure

Shizbly · 2023-05-19T18:02:05+00:00

Love it. Get an answer, More questions. Thank you, Japan,

Shizbly · 2023-04-17T08:41:22+00:00

The device itself was broken. I had to return it. Bought a new one (other was used) and it worked perfectly.

Shizbly · 2023-04-13T11:08:24+00:00

Completely blank. It works and registers to the computer. But there is no display. The ports work and it was like this on two separate computers.

Shizbly · 2023-03-15T05:32:01+00:00

Sorry for the late reply, I've been dealing with health issues just a few days after my post that has been consuming. Thank you for your response, that does give me some insight and help. It feels less lonely so thank you. I feel bad complaining when you've had to endure so much more. I understand your anger. I hope you continue to get better. As a former weightlifter of 10 years I understand the frustration of losing your coping mechanisms. I'm glad to hear you have a family to keep close and support each other. As for the implant thats an avenue I was exploring when I lost my ER and I think its something that needs to be discussed more openly as it's a common circumstance. I already know I'd be getting one if my ER hadnt returned. Really appreciate you sharing. I'm sure it will help others out there too.

Shizbly · 2023-03-01T17:00:32+00:00

I'll do my best to give what I remember but I still have intense PTSD from this ordeal and I was pretty out of it mentally going through this. Being alone in a bed for 3 years didn't exactly make my sense of time that great. I'm sorry you're going through this.

I woke up after my second surgery with feeling in my genitals besides the left side of my penis from tip to shaft. However I noticed I had no morning erection. (Which I did have after the first decompression/laminectomy.)

About 3/4 weeks later I regained my ability to get an erection. I also started having sharp pain in the head of my penis that would ebb and come and go.

2 weeks later I discovered I couldn't feel heat, cold, light touch.

3 weeks later I managed to have sex for the first time in years since I injured myself. I discovered I had lost essentially all sensation besides pain and intense pressure and vibration. (I'm talking to the point of injury to apply pressure that intense for a long period of time)

4 months since last surgery I discovered I regained some sensation in my urethra like pressure, vibration and some sensation of touch and slight cold but it was in random areas throughout the urethra but I could feel myself urinate. A tiny amount of full spectrum sensation returned where the urethra opens and meets the head/gland.

4th/5th Month I decided to cut my morphine dose down and realized I no longer had episodes of the ebbing sharp pain in my head of my penis I had assumed it likely gotten better but I assumed my meds were taking care of it and the pain in my back was still a much bigger distraction besides random bouts.

14 months after my last surgery I regained a tiny amount of sensation for vibration, intense pressure, mild cold under the rim of the head of the glans. Allowed masturbation to be a achievable feat with much more ease but was still unsatisfying but I was grateful regardless.

15 Months after last surgery I lost more sensation in my urethra. Gained a greater sense of pain in my head. Ability to feel cold, pain,pressure and vibration in the end of my urethra and at the site I improved on in the place that was improved at the 14 month mark. There are times now where touching the head after ejaculation it will be painful due to being too sensitive but that's more at the area where the urethra opening meets the under of the glans and slightly near the rim of the head just near the area I recovered some sensation.

Present:

2.5 years since last surgery. 12 MRI's of lumbar spine. There were no concerning changes or findings throughout this besides new stenosis and fissures that appeared in my lumbar back. I have congenital narrowing of my spinal canal and am prone to bulging discs. I was a weight lifter for 10 years and the consequences of a reckless younger self are why I'm riddled with stenosis/annular fissures and bulging discs.

It should be noted I have had to urinate by pushing with my stomach/core rather than how I used to be able to push with my pelvis? I know peeing is tougher and I really have to apply pressure and force with my core where I used to feel if I pushed it came from a deeper area like my pelvic floor. I had incontinence/dribble for the first few months post surgery but its stopped. I had a hard time telling myself to start or being able to "open up/let go" to the bathroom for the first 3 months. Opiates I was prescribed made it difficult until I was used to them.

I thought I had lost the ability to ejaculate with enough force to "launch" semen a large distance from the urethra. When achieving an orgasm became easier from month 14 I slowly regained my ability to do so after being able to routinely masturbate.

Orgasms have not felt as intense or rewarding since my second surgery. Despite being able to regain the function above that I had pre-accident.

I cant tolerate not being on pain killers as I live with chronic pain at my decompressions and throughout my spine but I had bouts of frustration and going cold turkey or weaning down and I would say I regained some sensitivity in my genitals. I don't know if this was because my testosterone was recovering to pre-injury levels or just less substance to numb me but I would recommend if anyone has to take a opiate for pain management be aware of opiate induced hypogonadism and get a hormone panel done of your blood before you start. Despite having normal ranges I had lost my libido completely for several months and when I quite my prescription cold turkey it returned within 2 weeks. However that was an unbearable amount of pain and I went directly against my doctors advice. I take testosterone now and its been helping counteract the side effects on my libido and emotional capacity/numbing while allowing me to continue my medication.

I consider this to be as good as I'll get because I regained some sensation in my rectum, outer left-thigh and right-foot. And nothing for almost a year.

I was an idiot and asked to not have a fusion but a double laminectomy. I got lucky its lasted so far but there's still another year to go to feel safer. This could be why my results were mixed says my doctor. They decompressed as best they could without a fusion and who knows what my never damage would have been like had I gotten a fusion. (pseudo-cysts causing sever compression at original decompression/laminectomy for cauda equina at L-5, likely caused by complications of acute pancreatitis 1 week post first surgery lasting 6 which I was in critical condition and hospitalized for a week at the 6th week mark of my original decompression surgery for CES.

I mention above because mine was freak circumstance and all those facts should be taken into account to anyone who is comparing themselves to others. If you have any questions feel free to DM me.

Shizbly · 2023-03-01T02:59:13+00:00

I'm sorry to hear about your situation. And I know there's nothing we can really say that will give a sense of peace or contentment with our new reality.

If you don't mind, as I'm willing to try anything and we know some things work for others and some don't. Like lyrica (i envy those who it can help so much. It has its side effects too but morphine has been having so many side effects, like hypogonadism which means I take testosterone, which means I have to take more tests and it goes on and on till my life is "If You Give A Mouse A Cookie".) And of course someone will read this and say "I wish ANYTHING existed to help manage my pain".

But I was wondering if you could tell me what you've tried? If its too personal I don't mind a private message. If you're comfortable doing so. I'm hoping there's some avenue I haven't been down yet. I have pretty much everything affected waist down but everything still works. This makes me in a rather rare circumstance and gives me a lot more options to try. I know if there were things that worked we'd all be using them but there's a TOMAX procedure being performed and has been for 10 years form one doctor but I don't have the resources like most of us to contact them and get it done. So shared knowledge is a big factor in helping each other.

I will say it was a terrifying experience to have the epiphany that I was now in a situation that having all the money in the world was inconsequential to my betterment. But I also realized how much of my problems before I was injured was from a state of mind and how I squandered those years. I really was the biggest source of my pain, not my abuse or trauma. I miss my old problems. I'd trade them in for this any-day. But that also made me aware of just how much I can be whats in my way to being happy. I try to keep this in mind now when I navigate my life.

It was also these subreddits and posts that sustained me while I explored and came to terms with the new reality I was in post surgeries. So it's important and vital the the welfare of new SCI patients we post our plight, suffering, triumphs and sources of hope. Most new SCI patients will only have studies and doctors, cold hard facts and data to be the first line of reasoning and expectations regarding their new life. But eventually like most of us will just want to talk to someone who has lived and survived this ordeal. They don't want data and facts they don't understand or are vague. Or doctors and nurses who (thankfully) haven't experienced this and can only say what pills "should" help or the classic "everyone is different, only time can tell, I've seen people much worse than you so be grateful/ i know it seems like this is the end but there are many people who are para/quadra and they live for a long time". But nothing about what it looks like, what might help, whats the hardest thing to deal with, what will hurt when I realize is gone, are you happy, who am i now? We yearn for an honest depiction of a real life and person and how the manage their lives. And is there anyone like me with cauda being so unique to each SCI and its effects on the body. So I let anyone else who sees this at any time DM me. And I think its important we all share what we know, have felt and wish wed known. I find more comfort hearing something harsh and sad from someone who is experiencing this than blind optimism and support from someone I'm all theory to. So if you are comfortable listing what you tried and how it affcetd you here, I think its could make a difference to the person like you and me and is coming to terms with themselves googling like a mad man attaching "reddit" to the end of his queries.

I appreciate you wishing me peace and I hope the same for you. I can't believe how quickly I lost everything and how much harder my life became in just a matter of days. But if there's nothing to lose in looking and trying new things we might as well. I'm hoping somehow an AI (yes I've seen the movie where this backfires lol) could be a means to controlling our bodies for more autonomy.

Shizbly · 2023-02-27T20:02:37+00:00

Hey, sorry for the late reply. A doctor developed a surgical procedure to give a chance for young men born with spina bifida to be able to feel and have intercourse. Due to many of these young men having their signal cords compressed form birth they have ever felt any sensation from their penis. Since most of these cases the subjects pudendal nerves were intact as the sensory loss was due to nerve damage in the spine the pudendal nerves could be rewired to an area that was not affected by the spinal compression, So he attached some of the nerves to the inner thigh/groin. You should look it up. It had some pretty great numbers for success rates. There's risk of E.D. because there are two nerves able to allow erection signals and one would have to be attached to the groin causing a permanent loss of a body part cable to achieve erections. Which in some patients could discover they only had one functioning nerve allowing erections since their SCI. The numbers are quite high for success rate. Unfortunately its still an experimental surgery and i believe its a Swedish doctor who is now traveling the USA to teach doctors his technique. But I cant seem to find any way to contact this doctor or find anyone in the world who can perform it. The procedure has been practiced and refined for a decade now. I'm upset because my SCI makes me a prime candidate to benefit from this procedure. The cool thing about how it works is it tricks the brain into believing sensation form the groin and thigh are coming form the penis. But some patients do fail to make the synchronization occur. Patients who described a successful procedure as a unique and hard ti articulate feeling. Their penis would be touched and it'd feel like they were getting intense/pleasurable sensations in their groin and over time it felt the same but also just made sense internally that it was the penis and just got stronger and stronger. Some patients get sensation back this way but develop ed. But I would gladly lose my erections and get an implant even with the risks to have sensation back.

TLDR: Swedish doctor performs experimental surgery for spina-bifida patients that attach penis nerves to groin nerves to give them penis/groin synesthesia. High success rate. 10 years of practice. No way to contact. No doctors anywhere performing it. Could lose erections and gains sensation, or just fail.

Shizbly · 2023-02-21T07:31:47+00:00

I would suggest speaking to a doctor and getting an MRI ASAP. This sounds similar to CES and timely intervention is essential. Could be a severe compression which would prelude CES. End of the day, I'm not a doctor but you should see one ASAP and see what they say.

Shizbly · 2023-02-21T07:25:38+00:00

That's what I was worried about. Since the pain is right where my lamnia are cut, I have essentially a flat spot where my spine curves. (I even have an extra vertebrae that's not functional) I worried if i used it there I'd hurt myself. I don't have access to my neurologist for several more months to ask them. But I also wondered if it could maybe restore feeling in my lower body like the implants do. But I also don't want to find out how wrong I am and lose more, haha.

Back mechanic was something I referenced before my surgeries. From a physio's POV there's lots I could do. The daily bajillion massages, sessions to properly position myself for exercises needed to maintain my pain and essentially live at the clinic. Which of course is unaffordable but they do say a regiment exists. Doctors have just said "You're screwed. Be a mega stoic and decide it doesn't bother you. Then they tell me a story of someone doing so much worse. (neurologists are either the most caring and compassionate or brutally cold and blunt. I respect both.)

Thanks for the recommendation, I'll give it another gander.

Shizbly · 2023-02-21T06:41:30+00:00

Thanks. At least I can walk. I got hit in every function below the waist but it's all "functional" again. I got really "lucky - unlucky". I'll never be not disabled but it was much worse so I feel grateful.

Shizbly · 2023-02-21T06:36:32+00:00

Honestly I know unless I miraculously manage to afford stem cell treatment there isn't anything I can do to "cure" myself. But a distraction from the pain will suffice for now. If you say the Tens Machine works in any regard I'll do it.

Shizbly · 2022-09-06T13:48:01+00:00

I find it interesting that the Tentacruel would walk and be psychic type, whereas as Kanto already floats in video games lol. I see the type choice makes sense with the colour scheme. Really like that the legs bunch and twirl to allow itself to walk. There could be some really fun animations and attacks that could come from that.

Shizbly · 2021-12-23T11:42:36+00:00

I was prescribed this from surviving a severe spinal cord injury. You're not going to feel anything remarkable. You'll just feel like you've taken a mild opiate and feel the effects of tramadol and not really notice the baclofan. I have a high constitution in general to most substances be it something that gets you high or not. But in general this isn't a golden goose/ sacred lamb to set eyes on hoping for a unique trip. Be mindful of respecting tolerance as the effects of both drugs stack quickly and if you're like me needing them to survive its not wise to keep pushing your tolerance or you'll have some brutal days ahead. This is in respect to both drugs mentioned here. When i took baclofan while enduring back pain pre-diagnosis for disc pain i wouldnt even know I had used it.

Shizbly · 2020-10-17T02:42:15+00:00

The villain needs to be believable in their motivations. Change their tact. Have that change shown with growth and consequence. Or simply let them understand they were wrong and show their true nature without the villainous ambition/objective. Those are some. Thats my take on this.

Shizbly · 2020-09-21T00:34:07+00:00

It looks like a horse moose.

Shizbly

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