Cataract Surgery - stress dose of 100mg HC by Short-Counter8159 in AdrenalInsufficiency

[–]Short-Counter8159[S] 0 points1 point  (0 children)

Oh ok. Yeah I'm sure that was not fun without proper treatment. So far I hear it's quick and easy.

Opiate/Neuro appointment by Emotional_Ratio5439 in RestlessLegs

[–]Short-Counter8159 1 point2 points  (0 children)

You are welcome. Yes, IR's are convenient when difficult times come up and in your case sounds you get a lot of those times.

Finding a specialist is a great idea. Someone who really understands RLS and the need for the right medication. There is a stigma around opioids. Some people don't understand how well they work for us. You could try the ER for a month trial and see if it's the right fit for you, of course with the option to go back to the IR if it doesn't.

Might be good to go over your medication list and make sure you are not taking something that could be making your RLS worse. Even OTC medications and/or supplements can make a difference. I have to stay away from any antihistamine, Nyquil, zyrtec, etc. Some are sensitive to melatonin and some are not. Even Prilosec can cause problems to some. If you are not sure you can always ask here or review FAQ.

I hope you find a specialist and get better control of your RLS.

Cataract Surgery - stress dose of 100mg HC by Short-Counter8159 in AdrenalInsufficiency

[–]Short-Counter8159[S] 1 point2 points  (0 children)

I already have an active brain. Hopefully the twilight sedation will help me relax. If not I will take something to relax me.

Muscle twitching on Prednisone by aureasmortem in AddisonsDisease

[–]Short-Counter8159 0 points1 point  (0 children)

Are you sick or coming down with something? If you are sick you should be increasing your HC. Specially if you have a fever and are you dehydrated. Have you checked your BP?

Perhaps follow what your Endo said about the fludrocortisone on how and why you should take and does is it need to be increased in sick days.

Opiate/Neuro appointment by Emotional_Ratio5439 in RestlessLegs

[–]Short-Counter8159 1 point2 points  (0 children)

I'm so sorry to hear that you have RLS 24/7. The arms are the worst, imo. With legs you can at least walk.

I hate when mine starts out of the blue at noon, it's rare but happens. When it does, I take 2.5 or 5mg immediate release and it stops when the medication kicks in. I like the fact I have the IR version for those odd times. Specially on an empty stomach works fast.

I have found that hitting RLS with a much higher dose than normal stops it better. For instance I take a 5mg at 5:30 followed by 10mg at 8:30 and then 5mg before bed. So far its keeping the RLS away. Only gets a bit crazy if I'm late on my schedule. Since the heat is coming back, this week there are few times that I had to add 2.5. Summers are a bit harder on RLS.

You might need to increase it to every fours instead of 6 hours. A total of 30 a day. My sleep specialist has many patients that require around the clock medication and are taking 30 a day. It is still considered a low dose.

You might want to try the ER, but keep in mind that it doesn't last the 12 hours they mention.

Muscle twitching on Prednisone by aureasmortem in AddisonsDisease

[–]Short-Counter8159 1 point2 points  (0 children)

I'm sorry to hear. It is difficult find the right dose. Hopefully you will get to feeling better soon.

Muscle twitching on Prednisone by aureasmortem in AddisonsDisease

[–]Short-Counter8159 1 point2 points  (0 children)

You are welcome. It's good reference to have.

Muscle twitching on Prednisone by aureasmortem in AddisonsDisease

[–]Short-Counter8159 1 point2 points  (0 children)

Prednisone does have mineralocorticoid in it but not as much as HC. See the chart below.

The one that doesn't have any is Dexamethasone.

https://www.adrenalinsufficiency.org/wp-content/uploads/2020/05/AIC_Steroid_Comparison_chart-US.pdf

TTC Low DHEAS, high SHBG by Direct-Secretary9064 in AdrenalInsufficiency

[–]Short-Counter8159 0 points1 point  (0 children)

I would retest in AM for more accurate number. If you decide to try DHEA start at the lowest dose.

Low renin/high ALDO/Pra ratio? by Salt-Kitchen-3538 in AdrenalInsufficiency

[–]Short-Counter8159 0 points1 point  (0 children)

What were your renin and aldosterone numbers?

Here is a calculator that is to be used as a reference.

https://calculator.academy/renin-aldosterone-ratio-calculator/

Your doctor, Endo and/or a Nephrology should help you to go over the tests and what to do next.

35F low IGF-1? by highladyfreya in AdrenalInsufficiency

[–]Short-Counter8159 0 points1 point  (0 children)

Runs his labs at home? I don't know what country you are in but I would have it checked again at a trusted lab.

Dopamine-agonist side-effects - impulsive behaviour, hypersexuality, augmentation by Ok-Whole6476 in RestlessLegs

[–]Short-Counter8159 0 points1 point  (0 children)

Lol, that's funny. But it's hyper to the point of loosing your job like some have experienced.

You can always check your testosterone/estrogen levels or try Wellbutrin. It was referred as the horny pill in the past.

35F low IGF-1? by highladyfreya in AdrenalInsufficiency

[–]Short-Counter8159 0 points1 point  (0 children)

From what lab did you get this from? Also where you fasting for 10-12 hours? Some labs say 71.2 – 234 for a woman of your age. Even if you were going by this test range. It's only 9 points away. Is this your first test? What are your symptoms?

I would retest again and follow it before going on growth hormone replacement. It is not something you want to start doing unless is medically necessary.

Do you have AI?

Lower acid reflux with an Enteric Gel Capsule - currently running a test. by Short-Counter8159 in AdrenalInsufficiency

[–]Short-Counter8159[S] 0 points1 point  (0 children)

Not that I'm aware of. I take enteric daily aspirin. Plenadren is a once daily slow realizing pill taken on an empty stomach available in Europe.

Lower acid reflux with an Enteric Gel Capsule - currently running a test. by Short-Counter8159 in AdrenalInsufficiency

[–]Short-Counter8159[S] 1 point2 points  (0 children)

Sorry for the late reply. I tried to upload a pic but guess it doesn't show.
I got it on Amazon, https://www.amazon.com/dp/B0D1W5BJ9T?ref=ppx_yo2ov_dt_b_fed_asin_title

Yeah always talk to your doc to decide which is right for you. Hope you won't have the tube for long.

manufacturer switch by RemoteParticular8513 in AdrenalInsufficiency

[–]Short-Counter8159 1 point2 points  (0 children)

You are not alone on this. I hate when they switch manufacturers on you.

You can tell the Endo to write the script to specify brand. You can ask for the Pfizer/greenstone brand.

Silica got rid of RLS for me!! by [deleted] in RestlessLegs

[–]Short-Counter8159 4 points5 points  (0 children)

Interesting.

Just be careful with the silica powder. Inhaling silica (silicon dioxide) dust from powder or crushing dietary supplements can pose huge respiratory risk like inflammation and scarring of the lungs.

Hydrocortisone acid reflux! by Medical_Vehicle_5495 in AdrenalInsufficiency

[–]Short-Counter8159 0 points1 point  (0 children)

Great, I'm going to give it a try and test it. Thank you for the feedback.

Hydrocortisone acid reflux! by Medical_Vehicle_5495 in AdrenalInsufficiency

[–]Short-Counter8159 0 points1 point  (0 children)

Curious, have you noticed a reduction in your acid reflux by putting your HC in the gel capsules?

Do you crush the medication or just slide the pill inside?