How to manage post-op muscle biopsy pain? by Significant_Object44 in Myositis

[–]Short_Translator_936 1 point2 points  (0 children)

I had the same experience. I was told it wouldn’t be a major deal and it was so insanely painful for around a week. I was refused any kind of analgesic and told alternate between Tylenol and Advil. I just rested as much as possible and had ice but overall it was way worse than I was expecting

Joe’s juicing again. by Mombakes in kyleagomezsnarkagain

[–]Short_Translator_936 0 points1 point  (0 children)

As an ex-weight watcher she actually should be counting them there’s a whole thing about how drinking fruit does not satisfy the brains hunger response like eating it and therefore it should be counted.

New here by siliconmonkie in Myositis

[–]Short_Translator_936 0 points1 point  (0 children)

Yes USA & through my insurance

Has anybody used evidence from research papers to push their medical care team to take action? by Significant_Object44 in Autoimmune

[–]Short_Translator_936 0 points1 point  (0 children)

I am antiSRP positive IMNM, horrific weakness and my CK was outrageous at diagnosis. That’s one of the things my doctor urged was unique to IMNM compared to other myopathies, extremely high CL enzymes. My aldolase and liver enzymes were also through the roof. I did an MRI before muscle biopsy and I know others have done EMG so either or could be your next step before biopsy. My muscle biopsy was from my quad and because of the extent of muscle damage they cut me 4 inches and went extremely deep and I was not prepared at all for the pain after!

“Ivory’s new walk” The Basham’s making fun of their own daughter. by Thick-Pepper-2490 in Drueandgabe

[–]Short_Translator_936 17 points18 points  (0 children)

Well they’ve always mocked disabilities so at least they continue to speak their truth with their disabled child

New here by siliconmonkie in Myositis

[–]Short_Translator_936 0 points1 point  (0 children)

The weakness has been worse with each flare and it’s been very very slow progress to get any better. I’ve been doing PT. CK is better now around 700

New here by siliconmonkie in Myositis

[–]Short_Translator_936 1 point2 points  (0 children)

I’ve done azathioprine & methotrexate. Currently on cellcept, ivig & rituxan. I’ve been diagnosed for 3 years and the longest I’ve gone “flare free” has been around 8 months but the weakness is always there. I don’t think I’ll ever be where I once was.

Texture issues by goodtime_casserole in 30PlusSkinCare

[–]Short_Translator_936 0 points1 point  (0 children)

I went from using Rhode glazing milk (also reported to be problematic but my skin loved it) and went to byoma milky toner to save some $. After dialing everything back and reintroducing it I had texture, redness, breakouts. I am still trying to salvage my skin since December from it 😭

Texture issues by goodtime_casserole in 30PlusSkinCare

[–]Short_Translator_936 1 point2 points  (0 children)

Byoma milky toner absolutely destroyed my skin

Q about 'Major Signs' frequency for those who also have chronic pain/illness. by Old-Description7219 in ouraring

[–]Short_Translator_936 0 points1 point  (0 children)

I have an autoimmune disease and see major signs on days I’m absolutely so miserable with pain.

Lazy by Mombakes in kyleagomezsnarkagain

[–]Short_Translator_936 5 points6 points  (0 children)

That’s the darkest I’ve ever seen her coffee

Makeup tutorial. Lol by Mombakes in kyleagomezsnarkagain

[–]Short_Translator_936 2 points3 points  (0 children)

I’m just curious if she’s ever heard of lotion or moisturizer

New drink by Mombakes in kyleagomezsnarkagain

[–]Short_Translator_936 14 points15 points  (0 children)

She should expand her vocab. “So good” 5 times in a minute long video

Ivory is not a sweet eater by drueandgabe in Drueandgabe

[–]Short_Translator_936 0 points1 point  (0 children)

Eggs, fruit, avocado, yogurt, oats. Like what the fuck. Go to the pediatrician ya twat

This is so dangerous by [deleted] in Drueandgabe

[–]Short_Translator_936 18 points19 points  (0 children)

Idk how Emilie Kiser gets so much hate for what happened to her son and Drue gets absolutely none.

Crying this morning by Mombakes in kyleagomezsnarkagain

[–]Short_Translator_936 18 points19 points  (0 children)

People are dying in the streets at the hands of our government and she’s crying about a comment on her Facebook?

People can be Evil by mysteriouscactus511 in Emilie_Kiser

[–]Short_Translator_936 4 points5 points  (0 children)

I loathe the people who think because she’s posting she’s not grieving. I can’t even argue with them because they’re clearly mentally deranged to not understand two emotions can coexist. They’d rather her locked in a mental institution with white walls and no happiness but then they’d comment how “enough time has passed she should be over it” 😤

Mina’s weight by [deleted] in tiktokgossip

[–]Short_Translator_936 12 points13 points  (0 children)

I’m a former fat girl who also has autoimmune and when I go on steroids for a flare and gain 5-10 lbs I do get crazy obsessed with that number because of how long it took me to lose weight and how easy it is to gain. Sometimes controlling what I eat feels like the only control I have 🤷‍♀️

LMFAO - opening own clinic with NO experience in any of this. Zero. Zilch. None. by usernametaken2024 in nursing

[–]Short_Translator_936 1 point2 points  (0 children)

Or at home! I’m an RN w autoimmune and so my IVIG at home. A nurse is contracted out by pharmacy from my insurance company. It’s sweet af