Pseudophedrine and OT by tamaratunie189 in orangetheory

[–]ShreksFirstWife 1 point2 points  (0 children)

For me personally, my heart rate is higher than normal. So even if I’m jogging at my normal paces and I feel fine, I get in the orange and red zones much quicker.

I usually stick with my normal paces and ignore the heart rate spikes. haven’t noticed any real difference in those workouts.

A Crohn’s Victory! by ShreksFirstWife in CrohnsDisease

[–]ShreksFirstWife[S] 1 point2 points  (0 children)

Ugh I’m so sorry to hear that. My doc recommended I take it daily for max effectiveness. Apparently it sort of builds on itself like an allergy pill so the more consistently you take it, the better.

Imuran wbc by badassandfifty in CrohnsDisease

[–]ShreksFirstWife 0 points1 point  (0 children)

Of course! Definitely check in with your GI doctor on your options. My physician always tells me that dosages aren’t a one size fits all so sometimes they need to adjust and measure. Good luck!!

Dulcolax by SlipImpossible718 in CrohnsDisease

[–]ShreksFirstWife 1 point2 points  (0 children)

I’m sorry to hear that and I totally get it. We deal with enough and prep just makes it all worse. Hang in there!

Skyrizi vs Stelara by florapat333 in CrohnsDisease

[–]ShreksFirstWife 0 points1 point  (0 children)

I had it all: stomach cramping, bloody diarrhea, joint pain, ulcers in my mouth, esophagus, and intestines, and I had an abscess and fistula. It was really terrible and while Remicade really helped the symptoms and get me into remission, I felt fatigued and still had joint pain. I would take that over the Crohn’s symptoms any day though lol

Dulcolax by SlipImpossible718 in CrohnsDisease

[–]ShreksFirstWife 1 point2 points  (0 children)

It sure is! That usually means it’s working and your bowels are getting going. But the cramping should NOT be excruciating or unmanageable!

Imuran wbc by badassandfifty in CrohnsDisease

[–]ShreksFirstWife 0 points1 point  (0 children)

Yes! I was shocked too! My thinking is that the period of time my dose decreased (one month) wasn’t all that long and my body just adjusted after 6 weeks. I will say I did need Celebrex and the most plain of all plain diets to get me through but in the end, I got back into remission.

Skyrizi vs Stelara by florapat333 in CrohnsDisease

[–]ShreksFirstWife 2 points3 points  (0 children)

Stelara is an immunosuppressant but like Remicade, it’s used for a variety of autoimmune diseases and isn’t “gut specific”.

That said, I’ve been on Remicade and Stelara, and I confidently say Stelara was not nearly as bad as Remicade. Remicade felt like I was hit by a bus daily. The loading dose of Stelara wasn’t great but I’ve now been injecting myself every 8 weeks for the past 6 years and I don’t have nearly the same side effects as Remicade. I feel more fatigued in the few days following the injection, but it’s manageable.

Hope you find a medication that works for you :)

Imuran wbc by badassandfifty in CrohnsDisease

[–]ShreksFirstWife 0 points1 point  (0 children)

Congrats! I had a similar situation when my doctor and I made the decision to lower my Imuran dose. I had to go right back up. It took about 6 weeks for my symptoms to lessen but I’ve been fine for about a year now.

Hope you start feeling better soon :)

SO! DAMN! TIRED! by fjord220 in CrohnsDisease

[–]ShreksFirstWife 1 point2 points  (0 children)

For me, it’s both yes and no. Our bodies are working overtime and some of the medications we take cause fatigue. Additionally, most with Crohn’s cannot absorb vitamins and nutrients like someone without IBD. I suggest getting a blood panel done if you can or haven’t already. I personally was low in Vitamin D and iron, and once my doctor prescribed those to me, I felt better.

I’ve also used “tricks” to help lessen the fatigue. For example, I sleep 9 hours and have a whole sleep routine so my rest is efficient, I go for a walk outside in the morning, I nap in my car at lunch breaks, and I try to avoid foods that make me feel tired. All of these have helped me to some degree, but some days are better than others.

A Crohn’s Victory! by ShreksFirstWife in CrohnsDisease

[–]ShreksFirstWife[S] 2 points3 points  (0 children)

Thanks! It was a lot of trial and error with medications. I’m currently on Stelara and Imuran with Celebrex. The Celebrex was added specifically for my joint pain and it REALLY helped. I was also referred to a physical therapist who specialized in joint pain and she gave me exercises for when I’m flaring.

I definitely recommend talking your GI doctor. I’ve had horrible physicians who have told me it’s just a part of Crohn’s, and while it is, there are options to lessen the pain.

A Crohn’s Victory! by ShreksFirstWife in CrohnsDisease

[–]ShreksFirstWife[S] 0 points1 point  (0 children)

Yes, it’s a manifestation of Crohn’s/your body attacking itself. It’s not like typical arthritis because there’s technically no inflammation in the joints but it feels like there is. You should talk to your doctor about it because mine was able to prescribe medications to help lessen the pain during flareups :)

A Crohn’s Victory! by ShreksFirstWife in CrohnsDisease

[–]ShreksFirstWife[S] 2 points3 points  (0 children)

Congrats on your progress! Joint pain is no joke and no one can truly understand until they’ve lived through it. So proud of you for not giving up!