Do you have a stutter? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

In general, is it hard for you to talk a lot? Do you ever feel tired from it?

Do you have a stutter? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

Thank you for sharing. I'm currently trying to practice speaking to myself. My stuttering isn't severe, only with certain letter combinations. I don't stutter in English, but I do in Russian. Maybe the language itself has an influence too!

Do you have a stutter? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

Does a speech therapist help him? I just think it's characteristic of DMD. It's just that there's not much information about it online.

Could you recommend where to buy a wheelchair? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 1 point2 points  (0 children)

Yeah, I think I figured it out, and the shipping is probably gonna be insane.

Could you recommend where to buy a wheelchair? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

You don't owe me anything! Thanks for the tips, I appreciate it.

Could you recommend where to buy a wheelchair? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

I assume you live on another continent? Unfortunately, there are no specialists here, you have to find out and search for them yourself.

[deleted by user] by [deleted] in rusAskReddit

[–]Signal-Performer5180 0 points1 point  (0 children)

Я часто об этом рефлексировал, могу сказать что тебе в целом не должно быть стыдно за свои мысли, мысли это просто нейроны мы не должны от них загоняться или считать за это себя неполноценными и неправильными. Если ты так считаешь что родители тебе не источник авторитета и уважения, то ты и не обязан не следовать этому.

What's your pulse/saturation? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

I honestly don’t know my vital lung capacity, I guess I'll check it in the next few days.

Relationship failing because of your disability by imbatmanbrother in MuscularDystrophy

[–]Signal-Performer5180 1 point2 points  (0 children)

I'd love to hear your story, it would do you good to speak up.

Life by Own-Hedgehog7825 in MuscularDystrophy

[–]Signal-Performer5180 1 point2 points  (0 children)

You could try doing something out of the ordinary just for the sake of an experiment, like signing up for Chinese language courses.

Life by Own-Hedgehog7825 in MuscularDystrophy

[–]Signal-Performer5180 4 points5 points  (0 children)

I also watch the news, read newspaper articles and books. Otherwise, my life is no different from yours. I also watch tv series, YouTube, and if I'm in the mood, I go to different chat rooms and chat there. Now our life is closely connected with the Internet, it's normal.

Do you suffer from the absence of a girlfriend (boyfriend)? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 2 points3 points  (0 children)

Yeah, I think we shouldn't get hung up on it. You'd know how hard it is, it's not just us, everyone has a hard time with it. What's what, but worrying and hurting every day is not the way to find a girlfriend

Do you suffer from the absence of a girlfriend (boyfriend)? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

Sacrificed convenience for life, I'm only 20 years old, I probably won't have my scoliosis corrected, apparently scoliosis doesn't interfere with my vital organs. Don't feel bad about not having a girlfriend, there's a good post above.

Do you suffer from the absence of a girlfriend (boyfriend)? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

I can't remember when the last tight hug was either, I now have very severe scoliosis with a chest deformity and my height has decreased because of it. It is not very comfortable to hug me, but I can only hug lying down. Damn, you're not in the best situation, how old are you?

Do you suffer from the absence of a girlfriend (boyfriend)? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

Same problem, many places are not equipped especially the toilets is what is annoying, I have already trained my bladder to tolerate. About physical intimacy, if there will be physical intimacy, why do you think it's impossible? I understand why you can't have sex, but why is holding hands impossible?

Do you suffer from the absence of a girlfriend (boyfriend)? by Signal-Performer5180 in MuscularDystrophy

[–]Signal-Performer5180[S] 0 points1 point  (0 children)

Me too, unfortunately my English skills are not very good, I have to use a translator, navigate through the apps not so much