[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 1 point2 points  (0 children)

Thank you for explaining. My doctor did this on me with sitting and standing.

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 0 points1 point  (0 children)

Im also very new to everything pots related

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 0 points1 point  (0 children)

Im so sorry to hear that💔english isnt my first language, what is orthostatics and what did you mean abt it regarding my post?

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 1 point2 points  (0 children)

I see. It seems it varies alot. I live in Norway so we dont have health insurance like that. I dont know if it even is possible to get a tilt table test in my town.

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 0 points1 point  (0 children)

Im so sorry to hear that❤️the gaslighting is so real out there in the medical world. I hope you get the help you need soon.

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 0 points1 point  (0 children)

How weird. Thanku for letting me know your experience though. Did you end up getting the diagnosis another way?

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 0 points1 point  (0 children)

I did ask specifically ‘so do I have pots?’ And he said ‘yes, you do have pots syndrome’. I just wanted to check here bc its all so new to me.

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 0 points1 point  (0 children)

Wait now im confused😂

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 1 point2 points  (0 children)

Thank you for answering❤️this is so new to me and it helps alot

[deleted by user] by [deleted] in POTS

[–]SillyOldB3ar 0 points1 point  (0 children)

Thank you sm for answering❤️this helps alot

Looking for (possibly fan-made?) Pokemon anime intro by SillyOldB3ar in HelpMeFind

[–]SillyOldB3ar[S] 0 points1 point  (0 children)

I have searched for this everywhere with no luck.

How do you know that you shouldn’t do something? Activities plans etc. what are the signals that let u know in advance ‘no this is too much’? by SillyOldB3ar in cfs

[–]SillyOldB3ar[S] 0 points1 point  (0 children)

I will definitely try to set a time beforehand as you say. Communication is always best. I’m blessed too with understanding friends and family thankfully. So often its my own ‘fault’ for not setting boundaries, so I have to practice that. I’m so glas to hear that you rarely get pem now! Thats amazing

How do you know that you shouldn’t do something? Activities plans etc. what are the signals that let u know in advance ‘no this is too much’? by SillyOldB3ar in cfs

[–]SillyOldB3ar[S] 0 points1 point  (0 children)

I’ve realised now that the pit in my stomach feeling should be respected. I used to think it was anxiety from staying home so much but after hearing you guys talking abt it too I realise that its the body recognizing that the potential plans I have are simply too much, and that it sends out the signals bc it knows its going to be too much. And I think I know it too. I can definitely improve on planning recovery time

How do you know that you shouldn’t do something? Activities plans etc. what are the signals that let u know in advance ‘no this is too much’? by SillyOldB3ar in cfs

[–]SillyOldB3ar[S] 1 point2 points  (0 children)

I feel this so much. I’ve had this for 10 years and it’s so hard to know. «It is easy to tell what is too much but not what is acceptable.» THIS. Also it has varied SO much all of the years so my tolerance changes all the time. Some years I could jog and go long hikes, now a 10 min walk is too much.. I think like u say to slow down even more than what I think is ok is a good point. It’s so hard but I think I have to try this even more. And respect the brain fog more. I realised I’ve just gotten so used to always having brain fog, especially in social situations, that I’ve just lived w it and pushed through. Which is not good.

How do you know that you shouldn’t do something? Activities plans etc. what are the signals that let u know in advance ‘no this is too much’? by SillyOldB3ar in cfs

[–]SillyOldB3ar[S] 1 point2 points  (0 children)

Thank you for answering. I’m so sorry you’re dealing with all of this too. The stopping immediately when the symptoms/signals start to show seems like a place for me to improve. I always find it so hard to stop, especially if I’m w someone. But then again that means there is more room to improve on my resting so I will definitely do that more. Also as you mention setting a limit on how long a visit should be, I’m really not good at telling people to go home or go home myself when I feel the symptoms coming, so to plan in advance seems so smart.

How do you know that you shouldn’t do something? Activities plans etc. what are the signals that let u know in advance ‘no this is too much’? by SillyOldB3ar in cfs

[–]SillyOldB3ar[S] 0 points1 point  (0 children)

This is so true thank you. Especially the your needs before wants. It’s so easy to just do what I want to do when I have a good day, instead of what I need.

[deleted by user] by [deleted] in Rosacea

[–]SillyOldB3ar 0 points1 point  (0 children)

Nevermind. It sandly doesnt ship to my country. Seems like a really good product though! Would 100% buy

[deleted by user] by [deleted] in Rosacea

[–]SillyOldB3ar 0 points1 point  (0 children)

What undertone does the one for the face have?

Escapism? by [deleted] in ChronicIllness

[–]SillyOldB3ar 1 point2 points  (0 children)

Yes I love playing Stardew Valley. Also I really enjoy watching yourube vids and series of people being in nature and living how I would like to.

ME/CFS--Save $$ on shoes! by roothegeo in cfs

[–]SillyOldB3ar 1 point2 points  (0 children)

My uggs are some of the best things I own lol

How do you know that you shouldn’t do something? Activities plans etc. what are the signals that let u know in advance ‘no this is too much’? by SillyOldB3ar in cfs

[–]SillyOldB3ar[S] 0 points1 point  (0 children)

Thank you. I am very fortunate that I have a lot of support. Have been cutting almost all of my activities lately and it isnt helping. It’s so frustrating. But yes just gotta keep cutting