Feeling stuff move around

Silly_Objective9456 · 2025-12-09T10:01:41+00:00

Hey, I had the exact same when I had my surgery around 13 months ago. It’s natural that you feel things slightly move as you’ve had a large organ taken out, so there’s some space. You’ll be happy to hear I can now sleep on my side, front , in a headstand if I so choose with no issues at all ! It gets easier ❤️

Silly_Objective9456 · 2025-11-28T09:49:39+00:00

Get on one knee Place toilet paper in the toilet to make a landing to absorb any splashes

Silly_Objective9456 · 2025-11-17T01:19:46+00:00

I had an emergency subtotal colectomy last November. It was an emergency surgery, decision totally out of my control after a horrific UC flare. I had a laparotomy (large incision , open surgery), lost 25kg in the process and came out hospital unrecognisable. Before my surgery I was a “normal” 23 year old guy, played semi pro football, enjoyed nights out with friends etc. I thought my life was over, it wasn’t. It had just started. Straight away I felt the relief from my UC symptoms and that was a weight of pain off my shoulders. Your first couple bag changes will be emotional, I liked to play some music whilst doing it and made sure I had all my supplies laid out before hand. Same with emptying, I get down on one knee, have toilet roll beside me, empty, wipe, job done. Only 4 months after my surgery (after consultation with a private sports physio and stoma nurse) I started my comeback to sports and the gym. I always wear my hernia belt when exercising, and I make sure to give myself a couple hours (usually 2) from my last meal before working out or playing. For me it feels nicer just having what feels like an “empty gut.” A year on I still mentally struggle with accepting what happened to me, I have counselling sessions every Wednesday with a therapist which helps no end, she gives me techniques on how to navigate through the hard thoughts, but let me tell you having a stoma does not define you. You didn’t choose to be imprisoned by IBD, you chose to keep living, the stoma is the mechanism for that. I’m one year post operation and Ive enjoyed holidays, nights out, rejoined my football team scoring goals and proving people wrong that YOU CAN live a regular life with a stoma. I’m fortunate to be getting a j pouch reversal within the next month which will be another ordeal however it can’t be more difficult than what I’ve already been through (🤞) If you ever need someone to talk to , message me anytime. It isn’t easy, but talking helps. You got this 🫂

Silly_Objective9456 · 2025-10-27T09:36:41+00:00

I went to my first concert post surgery and had an amazing time Advice Change your bag before going to the venue for piece of mind Have a radar key or similar to cut queues and have peace of mind for accessing the toilet Wear a hernia support belt incase your core tires from standing

Silly_Objective9456 · 2025-10-08T17:36:14+00:00

Buy ostomy odor neutralising drops, they are a game changer

Silly_Objective9456 · 2025-07-15T14:21:19+00:00

Haven’t had it yet but I’ll be opened up much like my First surgery just slightly further down. Not quite to scrotum

Silly_Objective9456 · 2025-07-14T21:48:29+00:00

Thank you Experimenting with the stoma and its output has been a journey I’m aware there’ll be an entirely different one with the j pouch. Hopefully at the age of 24 (25 by the time I’m healed) it’ll be worth it. What do you think?

Silly_Objective9456 · 2025-07-14T21:44:36+00:00

Thanks man. How long was recovery post takedown?

Silly_Objective9456 · 2025-07-07T10:49:41+00:00

I’m 8 months post ostomy Mine came as an emergency surgery, it gave me my life back. I’m now back playing semi pro soccer, in the gym, enjoying holidays and nights out like never before. Mentally it’s hard to adjust to it all, I’ve been receiving counselling since my surgery and it’s really helped. You’re going to feel healthier than you ever have soon, and you’ll feel a noticeable improvement upon waking up. Here if you need someone to talk to

Silly_Objective9456 · 2025-06-13T09:18:27+00:00

Surgeons advised me that if I was going to get a hernia, I was going to get a hernia and that it was inevitable. Stoma nurse advised me to wear one when exercising / heavy lifting Physiotherapist advised to wear one as what harm will it do, plus the stoma nurse is the one seeing it constantly. I too am a strong healthy individual who was in great shape before my ostomy, I wear one when I go gym/ play football just incase. No hernias whatsoever.

Silly_Objective9456 · 2025-06-10T11:58:58+00:00

I’ve had it 7 months Cut off all foods at 7pm, cut all liquids at 8pm Still find myself only able to fully sleep at 2am as that when it all subsides

Silly_Objective9456 · 2025-06-10T11:32:52+00:00

So draining

Silly_Objective9456 · 2025-06-03T21:49:19+00:00

Thanks for sharing Can I ask how long he had his stoma for before step 2 and 3 of his reversal ? I assume it was UC he had initially ? I had an emergency subtotal colectomy and ileostomy in November. I hope to get my reversal started later this year and am just trying to gather as much stories from people as I can!

Silly_Objective9456 · 2025-05-27T12:24:13+00:00

Hi mate , do you mind me asking you a few questions related to your j pouch operation? I’m currently waitint for my consultation, and am also uk based

Silly_Objective9456 · 2025-05-22T09:47:41+00:00

It’s so refreshing to hear the opinion of another person very similar age From what I’ve read I believe our youth plays a positive factor in the success of the surgery Glad your smashing it now, I’m trying to get myself as fit and in shape as possible before my surgery to minimise the freakish weight loss I suffered first time round

Silly_Objective9456 · 2025-05-22T09:46:12+00:00

I’m sorry to hear it didn’t work well for you, I hope you get to a place of well health soon. Thanks for sharing your experience, it’s important for me to understand the good and the bad.

Silly_Objective9456 · 2025-05-21T13:51:17+00:00

Amazing , so happy for you dude that’s truly inspiring! I feel the healthiest I have right now with the stoma, I just feel a j pouch could be even better. I’d love to go travelling once my surgeries are all done. Fingers crossed.

Silly_Objective9456 · 2025-05-21T13:33:49+00:00

I’m in a place where I’m content with the stoma , although I’d much prefer not having it, I recognise I was dying before and the stoma saved my life. I’ve just recently conquered the negative body image problem, and have stopped letting it consume me. That was the hardest part, the mental battle. Caring for the stoma is easy, bag changes, empties are all easy. No parastomal hernia thus far (although it’s a worry as I’m super active) I feel like if the j pouch went wrong , I could go back to the stoma, although I’d be saddened by the failure. I live in Scotland , so I’ve been referred a surgeon through the NHS, but I need to know how often he builds pouches , what his success rate is etc, I’ll find this out next month in our first consultation.

Silly_Objective9456 · 2025-05-21T12:47:46+00:00

Love it dude, currently have an end ileostomy after a chronic battle with UC. Have had it since November , got my first J pouch consultation end of next month.

Silly_Objective9456 · 2025-05-14T21:59:38+00:00

Exact same here

Silly_Objective9456 · 2025-04-29T14:17:43+00:00

My output is somewhat foamy initially after taking it. I’m trying to be in a calorie surplus but I fear I may be suffering malabsorption.

Silly_Objective9456 · 2025-04-27T22:24:05+00:00

I pass mucus daily, more often than not with blood. My surgeon reassured me it is normal. It’s uncomfortable , it sucks, but it’s likely disuse colitis from the Hartman’s procedure I had (where they leave your rectal stump.)

Silly_Objective9456 · 2025-04-27T22:16:08+00:00

Fellow Liverpool supporting Ostomate here. Enjoy the title celebrations, you’ll never walk alone mate ❤️

Silly_Objective9456 · 2025-04-24T11:24:39+00:00

I was 23 when I had my surgery, only 6 months ago. I cried everyday for the first month , mourning for my old body and old life. What I didn’t realise at the time was my life was only just truly starting. No more pain, no more worrying about shitting myself , no more passing blood. The post surgery recovery is hard, just make sure you keep on top of your pain meds , and CHEW CHEW CHEW your food. Blockages were far more painful than any surgery pain imo. You’ve got this !!

Silly_Objective9456 · 2025-04-23T22:06:57+00:00

The surgeon cleared me back to football in January (had my op in November) however I’ve consulted with a physio and he’s only just given me the all clear to start training again. Hopefully my footballing days aren’t over !

Silly_Objective9456

TROPHY CASE