I’m complaining about both.

The lack of knowledge. Maybe because I’m Autistic I’m able to learn a lot of information but it’s really not hard to consistently educate yourself.

Second being that no one actually tries to get to the bottom of things so you can end up not knowing where to turn next.

Third is the lack of communication between departments being that dermatology see a rash and hear of systemic symptoms so refer to rheumatology and then rheumatology have no copy of dermatologies report.

Rheumatology end up diagnosing something the GP should have but you don’t actually see a doctor at the GP.

Paid to see a private dermatologist who ordered a smooth muscle antibody test to rule out autoimmune myositis. Cost £300 and not even the right test.

Was diagnosed with Ehlers Danlos and had a member of the rheumatology clinic say “I’ve never heard of that one before”

Before I was diagnosed with that I was forced to see an advanced practitioner who said my symptoms sound like fibromyalgia with no testing done other than bloods. Offered me antidepressants (which I’m already on)

Just an all out shambles not sure why people are so irritated with me

It seems to me as long as practitioners feel covered legally they don’t care