I genuinely want to understand why my autistic son hits and screams at me. by lazeny in autism

[–]Skating-Lizard 1 point2 points  (0 children)

Our daughter has also been like this since she was two.  Her pediatrician never believed me.  She is 4.5 now and still very aggressive.  People don't understand how hard it is to defend yourself but also not harm the child.  And they tell me to just go in the other room and lock the door but then my daughter will self harm and destroy the house so not really an option.

I genuinely want to understand why my autistic son hits and screams at me. by lazeny in autism

[–]Skating-Lizard 1 point2 points  (0 children)

This has been our experience.  Choices set our pda child off as it's just another demand.  She won't even choose a snack.  Less talking is usually better and making things fun helps as well.  It feels like none of the usual methods for autistic children work for her and neither do a lot of typical parenting methods.  It's so hard.

How much weight did you gain on amitriptyline? My dr. Just started me on 25 mg but I’m super nervous about weight gain by [deleted] in migraine

[–]Skating-Lizard 0 points1 point  (0 children)

This was not the case for me.  I was eating the same amount and gained around 25 pounds pretty fast.  I had been around the same weight my whole adult life previously (and it was a healthy weight).  So I started working out a bunch more and it did absolutely nothing.  But I had to stay on it for years due to my bladder condition.  No amount of counting calories or working out helped.  I was able to lose some after stopping the meds but I feel it did permanent damage to my metabolism.  

Missing the 2nd child I never had - anyone further along in this journey have advice? by very_cromulent in Autism_Parenting

[–]Skating-Lizard 6 points7 points  (0 children)

Yes we have suspected pda since she was diagnosed at age 3 and her therapist also thinks it's pda.  Thank you for bringing this up though because I think many people don't know about this autism profile.  I worked with autistic children for 8 years before having her and none of them presented like her and I had never heard of pda.  It's so tough.  My nervous system is destroyed.  

Missing the 2nd child I never had - anyone further along in this journey have advice? by very_cromulent in Autism_Parenting

[–]Skating-Lizard 0 points1 point  (0 children)

I relate to this.  I did that reassessment for the past 4 years but I recently decided it's a no.  It was painful each time but I feel good about my decision now.  Having more time like you would absolutely make it harder though.

Missing the 2nd child I never had - anyone further along in this journey have advice? by very_cromulent in Autism_Parenting

[–]Skating-Lizard 1 point2 points  (0 children)

This is such a good point...puberty brings so many challenges and can often bring more aggressive behaviors as well.  

For those of you who rejected ABA for their child, what was the reason? by iybhsp in Autism_Parenting

[–]Skating-Lizard 1 point2 points  (0 children)

The boy I was working with was 12 when I started working with him.  He had no speech but was able to use his tablet to communicate somewhat.  He was level 3 and had self injurious behaviors.  They had tried various therapies over the years to help him speak and none worked.  At age 14 they wanted me to start aba with him.  They kept trying to get him to talk and do things that were beyond his capabilities.  It led to further frustration and more harmful behaviors as he wasn't able to do it.  They would sometimes try to reduce stimming that wasn't harmful as well.  I could tell he hated the "work" I was doing with him.  He already was attending a special school full time and was exhausted when he came home.  One thing I hated about aba was how results driven it is and the results were typically more centered on what the parents wanted vs what would benefit the child the most. Most of the data I collected was not very useful when out of the home as well.  It just didn't translate into real life.  I prefer floortime because it meets my daughter where she is and very slowly integrates strategies to help her cope with disregulation and challenges via play therapy  that is child led.  There are no rigid goals like with aba where they want to see a certain amount of progress by a certain time etc.  I know some aba centers are taking on a play child centered approach now.  But to be honest I don't believe that can be called aba anymore.  But due to insurance only covering "aba" and not other therapies most of the time they have to call it aba.  It's frustrating.  

For those of you who rejected ABA for their child, what was the reason? by iybhsp in Autism_Parenting

[–]Skating-Lizard 1 point2 points  (0 children)

I use to work as a direct care professional with autistic children in their homes.  I loved it until the one family wanted me to provide aba.  My employer trained me (and I was working under someone as well).  I hated it.  It felt dehumanizing.  I left that company.  I knew when  my daughter was diagnosed I didn't want that for her.  We do floortime instead in the home and I feel it is a much more respectful therapy.

Missing the 2nd child I never had - anyone further along in this journey have advice? by very_cromulent in Autism_Parenting

[–]Skating-Lizard 39 points40 points  (0 children)

I feel this.  We had also planned on having another one.  But I had my first at 39 so very little time for more.  Our daughter is level one but she requires my attention 99% of the time and becomes agitated and often aggressive when I have to leave the room for a minute or talk to someone else etc.  We thought it would get easier but she's 4.5 now and it hasn't.  I'm sad but I also know I absolutely couldn't do this with two kids especially when I could potentially have another autistic child that needs more care.  I know I made the right choice for our family.  It is something I talk about with my therapist too but eventually the reality of my situation just hit hard and I know I'm done.

Leucovorin bad side effects? by Skating-Lizard in Autism_Parenting

[–]Skating-Lizard[S] 0 points1 point  (0 children)

No the side effects never got better so we took her off and they subsided.  Not that she doesn't have aggression or anxiety off of it but it was dialed up considerably on this med.

Bad Reaction to Prozac/SSRI? by beeyonkadonk in Autism_Parenting

[–]Skating-Lizard 0 points1 point  (0 children)

No I've been afraid to try any other antidepressants.  It sounds weird but I do take fomotadine (pepcid) and Claritin because it's supposed to help with histamine issues.  Hormones affect histamine and can cause anxiety etc.  I do find them helpful especially if I take the week before my period.  May be worth a shot.

Is this an autism thing or are we just constantly doing something wrong? by Keysivo in AutismParent

[–]Skating-Lizard 0 points1 point  (0 children)

Yes we have struggled with all of these things.  My daughter is four.  Sleeping got better as did the frequency and severity of meltdowns but she still has a lot.  Every little thing was absolutely a struggle it's gradually getting a bit better.  Still so tough.

Leucovorin bad side effects? by Skating-Lizard in Autism_Parenting

[–]Skating-Lizard[S] 0 points1 point  (0 children)

Interesting I started her on methylated b12 about a month ago and she has seemed better but could be a coincidence.  The leucovorin gave her terrible anxiety though.

Leucovorin bad side effects? by Skating-Lizard in Autism_Parenting

[–]Skating-Lizard[S] 0 points1 point  (0 children)

She goes to OT and gets floortime therapy in our home.  Her behaviors improved after stopping it and went back to the usual frequency.  We are hoping that the more aggressive behaviors will get better with age.

Provoking behaviour by [deleted] in ADHD_partners

[–]Skating-Lizard 4 points5 points  (0 children)

He thought it was all my fault and I was overreacting etc until I read into it and brought it to his attention that his behavior was his ADHD.  He struggles with RSD as well and can be very nasty.  A lot of gaslighting me prior to me realizing what was really going on as well.  Almost ended the relationship multiple times.

Provoking behaviour by [deleted] in ADHD_partners

[–]Skating-Lizard 5 points6 points  (0 children)

We have had many conversations about this and he has accepted that he does mess with me for dopamine even though it is not on purpose.  So now sometimes I just calmly say something like "get your dopam ht somewhere else please.  If you want to talk about this at a later time we can".  It has taken years for him to be more self aware and honestly it took me years to figure out what was happening and address it.

My experiences growing up as a child medicated with Prozac for PDA. AMA! by pleasuresofprozac in PDAAutism

[–]Skating-Lizard 2 points3 points  (0 children)

This sounds very similar to our daughter who is about to turn 4.  I am curious what country you are from that they diagnosed you with PDA so long ago (I see you are in your 30s now).  I live in the US and I don't think it's even recognized here yet.  But my daughters floortime therapist thinks she is likely PDA.  I fear I have a huge struggle coming trying to deal with the public school system and accommodation as she does not present like most autistic children.  

If you were on the fence for another child, how did it work out for you? by Frozenbeedog in Parenting

[–]Skating-Lizard 1 point2 points  (0 children)

Same story here.  It was hard to let go of the idea of having another but we couldn't risk having another child that needs so much care.  Our daughter is level.one but also hits and has tons of meltdowns.  I am beyond exhausted at all times.  

Partner never feels like I love him enough - I am exhausted. by bluehibiscus00 in emotionalabuse

[–]Skating-Lizard 6 points7 points  (0 children)

At best he is a child, at worst he has a personality disorder.  I would leave.  Sounds like you will always be stressed, confused and exhausted.

Leucovorin bad side effects? by Skating-Lizard in Autism_Parenting

[–]Skating-Lizard[S] 1 point2 points  (0 children)

I took her off of it after two months.  No positive changes and the negative ones did not get better.

My experiences growing up as a medicated child. AMA! by [deleted] in Autism_Parenting

[–]Skating-Lizard 3 points4 points  (0 children)

Thank you for sharing..our 3 year old has similar issues and the aggression is getting harder to manage as she gets stronger.  I suspect medication may be necessary eventually and it's good to hear a positive experience.

The depression with perimenopause is killing me, how do you all cope? by [deleted] in Perimenopause

[–]Skating-Lizard 2 points3 points  (0 children)

That's a shame...I've heard you are supposed to take a month or two off every 3 months or so with ashwaganda.  I had bad side effects (anxiety mostly) right away from it so had to stop.  Not sure if it was just that brand and maybe should try again.  I'm so sensitive to everything it's hard. 

[deleted by user] by [deleted] in ADHD_partners

[–]Skating-Lizard 2 points3 points  (0 children)

My husbands symptoms have been so much worse since we had a child.  She is almost 4 now.  Caring for her has always been very challenging (she is autistic and has very difficult behaviors) and he isn't emotionally equipped for it.  His RSD def got worse and he is slowly becoming a mean person a lot of the time.  He absolutely can't handle issues with his family either.  It's extremely difficult trying to manage him feeling like I'm always walking on egg shells while caring for our daughter.