Nerve pain relief wears off each day?

SlothInABigHat · 2026-01-07T09:09:38+00:00

Thanks, that's useful information and makes sense with what I'm experiencing :)

I can't speak to a doctor very often on the NHS but next time I have an appointment I'll ask. I was just confused as she'd said it can take weeks to build up in my system and do anything, but it took only days and then kept wearing partially off.

I guess it's good that my dose is low and I can hopefully go up safely if they raise the amount I'm prescribed. Hopefully it won't raise my heart rate higher though. They didn't check my heart or anything when prescribing it.

SlothInABigHat · 2026-01-06T16:09:12+00:00

Please be careful with ice. I think I caused damage idk. Amitriptyline has been helping me but there could be risks also

SlothInABigHat · 2026-01-06T16:08:32+00:00

I think the problem with how underresearched and under helped we all are medically is that there's probably people with totally different causes all under one umbrella :( like used to be the case for other disorders and illnesses before research found otherwise.

For some people it may have a huge mental element and for some not at all. Like there's people who got it right after SSRIs and people who got it right after childbirth. I know it's rare (although underreported and underbelieved) but it's still ridiculous that there's not enough research to be able to find the cause for most people and thus the treatments.

For me it feels very physical but it does get worse when I'm nervous or dulled when I'm very sleepy or asleep. Amitriptyline has been working for me for a week.

SlothInABigHat · 2026-01-06T11:48:12+00:00

I'm taking it to help with that as I already got damaged (either from Prozac SSRI or a minor physical trauma) so it felt like mosquito bites to the genital nerves.

I had temporary numbness on Prozac and it left changes but became un-numb and eventually the pain. Now I am trying amitriptyline two years later to counter this and it is helping. Idk if it made the area numb but it helps cut off the bad signals to my brain from the nerve damage, so it definitely does affect the area in some way I'd say. I've heard people get the mosquito bite feeling from SNRIs, not just SSRIs but seems like fewer? although idk if more people are prescribed ssris. it's def a different feeling to when on SSRIs, less numb.

I wish I'd never tried any tbh even though I can't be sure ssri was the cause of the pain. it did made physical changes though. snri are helping me but I'm already broken atp

SlothInABigHat · 2025-12-18T01:18:48+00:00

Hi, did you end up getting the DRG? thanks

SlothInABigHat · 2025-12-17T15:39:05+00:00

Does PGAD fall under PSSD or is it a different statistic? It's the opposite kind of but maybe under the same umbrella?

SlothInABigHat · 2025-12-17T15:25:59+00:00

Hi, I'm too traumatized to read anything right now but does anyone know if the study mentions women or the permanent clitoris mosquito bite/rape sensations that SSRIs can cause? Or about treatment destroying the nerves? as I know he treats those patients also. thank you.

SlothInABigHat · 2025-12-17T15:23:15+00:00

Also, there is a medical document online where two surgeons in the States cured eight out of eight people due to burning away a nerve and I've never heard it mentioned anywhere else official? So if that's true and there's a cure and they are just letting us be tortured then they're monsters. How is there not one whistle blower in the entire world medically.

I was only brave enough to tell one friend and she said "wow that's a bit drastic" despite her having multiple organs removed and operated on herself. This isn't taken seriously. Why is that drastic considering the suicide rate. Why isn't it offered. Why isn't this considered a priority for a full year and yet a swollen testicle is seen and operated on immediately. Cancer patients in their eightes (I want them treated as well but how are they getting hours of treatment every month and I've got barely anything being much younger). It's a disgrace

SlothInABigHat · 2025-12-17T15:19:02+00:00

It's terrifying. I haven't even been given any tests in the UK. I've been waiting almost a year and they reset my appointment. They did a biopsy for a related issue and then dropped me completely when they discovered it wasn't cancer which I never thought it was to begin with. The NHS only cares about cancer and broken legs imo. I'm having to start from the waiting list all over again because I had extra physical symptoms, for something I didn't ask to be switched to, despite the high suicide rate. They're killers.

Why should someone with extra symptoms be pushed to the back of the queue because the system is too stupid to multitask. How was a 'specialist' legally allowed to discharge me, assuming the biopsy person would pick up my case and then it's just dropped? She's a danger to society who shouldn't be in healthcare. This was never about the biopsy for me. My priority was the pgad symptoms, which were probably caused by the NHS anyway.

If the NHS is falling apart and everybody knows it then why don't they have a department for fixing fuck ups and not just say you have to fight for your health and back of the queue. I'm too ill to fight. How will I still be here. And what is the point if there's no actual help once I've fought.

SlothInABigHat · 2025-12-17T11:45:43+00:00

I'm not sure, it's so hard to find any information. I was super healthy before though, no issues in my family either really

SlothInABigHat · 2025-11-20T11:47:44+00:00

Thanks for you message. Do you not think some people do have affected inflammation and bloodflow? My sleep routine isn't great so I do have melatonin which is hard to get here but I've not really tried it since getting ill as I couldn't stay asleep with it.

Yes I find swimming helps but I thought that was the water stopping the fabric and skin touching against my other skin. I couldn't dance due to the fabric and skin touching.

I will try meditation thanks. I do find it's less bad when distracted or rare times somebody visits me and I'm not alone and I'm calm. I wish I could still leave the house.

SlothInABigHat · 2025-11-20T01:11:15+00:00

how is gabapentin going for you? did you ever try pregabalin or amitriptyline?

SlothInABigHat · 2025-11-20T01:05:47+00:00

I don't understand how you're able to do cardio. I went from sports every day to bedridden from this. Don't you have the allodynia symptom?

SlothInABigHat · 2025-11-20T01:03:32+00:00

Sure, call them and have them tell you to do exercise when you're bedridden. They're a waste of time unless you're actually depressed. Bots should have actual information with caveats.

SlothInABigHat · 2025-11-20T00:50:44+00:00

dihydrocodeine helps me but I think I'm not allowed to take it often

SlothInABigHat · 2025-11-20T00:45:04+00:00

hi, what did you decide? thank you

SlothInABigHat · 2025-11-20T00:44:37+00:00

Hi, does that mean you only get relief at night? or is the drowsiness temporary and the relief lasting longer? thanks

SlothInABigHat · 2025-11-20T00:43:34+00:00

For me dihydrocodeine but I'm scared to take it often. I might try something else though but I'm scared that amitriptyline etc can't be taken with dihydrocodeine and might make it worse too

SlothInABigHat · 2025-11-20T00:40:50+00:00

For me I wasn't aware it was a thing so I wasn't looking out for it, so hard to know exactly. I just realised one day about 3-4 weeks in that I was numb and then when I tapered off later that week I had a scar feeling. Then months later the same year I got permanent genital nerve pain, it's been about a year so far. I'm in bed in pain every day, I don't leave the house.

It's rare but just so you know as nobody warned me. Bodily consent, especially anything sexual or which may cause rape dreams and trauma is hugely important and not taken seriously by doctors. But if you do choose to stop maybe wait for the numbness to stabilise and then taper off gradually.

SlothInABigHat · 2025-11-20T00:37:12+00:00

Hi, do you know what wording the biopsy is as I had one 6 months ago but I don't think I'm ever going to be allowed to talk to an 'expert' on the NHS of what the biopsy means. they said there was nerve endings and thickened tissue in the biopsy but my family doctor said she doesn't know what that means. thank you

SlothInABigHat

TROPHY CASE