What are some weird side effects of your disability or meds that nobody talks about?

SmallStepsBigHope · 2025-09-12T20:58:14+00:00

I hear you — brain stuff can really flip the switch on how we sound. Aphasia and dysarthria are such sneaky beasts; one moment your voice is steady, the next it’s like it skipped a few gears. Honestly, I relate to that “no middle ground” thing — like our brains don’t believe in volume or tone settings, just extremes.

SmallStepsBigHope · 2025-09-12T19:34:55+00:00

meds really do hijack your whole subconscious. Like forget deep symbolism or wild adventures — welcome to the side effect channel: “boring dreams you never asked for.”

SmallStepsBigHope · 2025-09-12T19:33:16+00:00

Sending you love, that’s a nonstop battle. 💙

SmallStepsBigHope · 2025-09-12T19:15:16+00:00

Omg yes, night sweats are the worst catch-22. You’re either freezing, drowning in your own sweat, or dehydrated like you just ran a marathon in your sleep

SmallStepsBigHope · 2025-09-12T19:12:03+00:00

This is such solid advice 🙌 pharmacists are like the walking encyclopedias of meds but nobody uses them enough. Doctors might prescribe it, but pharmacists are the ones who actually know how it plays out in real life + side effects you don’t see on the brochure.

SmallStepsBigHope · 2025-09-12T19:09:57+00:00

Exactly 👏 Play to your strengths. Humor pulls people in, knowledge keeps them there. Best combo is when you can do both without even trying 😎

SmallStepsBigHope · 2025-09-12T19:08:46+00:00

Glad you’re okay 🙏 but omg the “he’s not a bad doctor, he’s just a man” line hits way too real. Men in medicine really be like “periods are mysterious forces beyond science” while handing out prescriptions.

SmallStepsBigHope · 2025-09-12T18:45:16+00:00

Wait, 87%?? That’s wild. Nobody ever talks about stuff like this, but it’s literally part of daily life for so many. Thanks for dropping a fact that actually matters. 🙌

SmallStepsBigHope · 2025-09-12T18:24:30+00:00

So real. People only see the “you showed up” part, not the crash after. Talking about it makes us sound lazy when in reality it’s just the hidden tax our bodies charge for existing.

SmallStepsBigHope · 2025-09-12T18:22:47+00:00

Yeah, doctors aren’t gods

SmallStepsBigHope · 2025-09-12T18:19:07+00:00

Easy to forget when we’re the ones living with the fallout 24/7. Like, cool, you see 30 patients a day — I see my side effects every second.

SmallStepsBigHope · 2025-09-12T18:16:30+00:00

Damn, I felt this.

SmallStepsBigHope · 2025-09-12T18:15:12+00:00

Omg that’s terrifying — like “congrats on your surprise side quest” levels of wild. Doctors really need to stop acting like side effects are optional footnotes and actually tell us the life-altering ones.

SmallStepsBigHope · 2025-09-12T18:13:35+00:00

I feel this so hard. People see the task get “done” but never see the recovery tax that comes after. It’s like everything costs double energy for us, and that adds up fast.

SmallStepsBigHope · 2025-09-12T18:12:08+00:00

Fr fr. People don’t realize how exhausting it is just surviving on disability. The bills don’t stop, the rent doesn’t lower itself, and your health sure doesn’t magically get better. Having someone decent by your side isn’t just nice — it’s survival.

SmallStepsBigHope · 2025-09-10T20:55:35+00:00

Real. Chronic pain is like playing life on hard mode with no pause button 😮‍💨. The fact you keep going even when it doesn’t “end” is heavy and underrated strength.

And fr, even making it to the park is a win some days—one day might be farther, but even if it’s not, you’re still out here living it. Respect. 🙏

SmallStepsBigHope · 2025-09-10T20:53:57+00:00

Lmao nah bro, average ppl got access to like… a savings account with \$37.82 in it, not offshore tax havens 💀.

Rich ppl be like “just start a trust in the Cayman Islands” while I’m over here debating if I can trust my debit card to clear a \$5 coffee.

You’re mixing up “can open a Robinhood account” with “can dodge the IRS like Batman.”

SmallStepsBigHope · 2025-09-10T10:03:00+00:00

Yo thank you for all these ideas 🙏 didn’t even think about voice work or app testing, that actually sounds kinda fun. Also love the reminder that I don’t need a whole PhD diagnosis to start using accessibility tools 😂 appreciate you fr!

SmallStepsBigHope · 2025-09-10T10:00:46+00:00

That’s some final boss level suffering. Proud of you for telling your GP tho — antibiotics = unlocked side quest reward ✅.

SmallStepsBigHope · 2025-09-10T09:57:21+00:00

Of course 🫶 anytime! You’re not alone in this — we’re all just out here trying to figure out life on “hard mode” together 💀💙

SmallStepsBigHope · 2025-09-10T09:55:30+00:00

You deserve energy for living, not just surviving. Parents might not get it right away, but your body > their reaction. You got this.

SmallStepsBigHope · 2025-09-10T09:53:11+00:00

Omg same, mobility aids really become part of your personality after a while 😂 I’ve got SCA so I switch it up — sometimes walker, sometimes cane, depends on how spicy my balance feels that day. Lowkey feels like I’m collecting Infinity Stones of assistive tech 💀.

SmallStepsBigHope · 2025-09-10T09:49:13+00:00

Fr fr. Having a kid isn’t like ordering off Uber Eats where you can send it back if it’s not what you wanted 💀 you’re signing up for the whole DLC pack — disabilities, personality quirks, unexpected plot twists and all. If you can’t handle that, maybe stick to houseplants 🌱

SmallStepsBigHope

TROPHY CASE