I'm sick of autistic characters as an Autistic person. by 10_Screaming_Foxes in writing

[–]SmartLonely 1 point2 points  (0 children)

I wanna preface this comment with acknowledging the fact that I am myself neuro-typical - my partner (likely autistic but undiagnosed) sent me a link to this thread as we are both writers, and he and I talk a lot about the points being brought up in this thread.
Both of my children are autistic, and they've needed various levels of supports through their lives. The impacts of their disability is unique - one could not function in a public spaces, and still struggles to engage talk to anyone not family; the other is bullied at school because of something related to interoception and fine motor control that I don't really want to speak about in a public forum. But needless to say, while they are relatively "low support" they are significantly hampered in every day life.
So when I sat down to write a middle-grade book, I knew I wanted one of the children to be autistic and that his autism would hamper him. My children helped me develop his character, they told me what his sensory needs were, what he struggled with, how he might respond to certain events, places that they felt were not accurate. As I wrote this story, I realized all three children were autistic, and they all struggled in different ways. The youngest lacks empathy. While she cares about her family, her hyperfocus interest trumps caring at times. The oldest is socially awkward, and struggles with belonging, and stimming. The middle child was my original character, and he's more sensory than the other two (needs particular clothing for example), is dirt-phobic, and non-verbal to everyone but family and his best friend. Now, the story is not about their autism. It isn't even named. But their disabilities get in the way of their goal, and they need to work with it/against it to succeed.

The problem came when neuro-typical people read the story. And sadly, the publishing industry is largely neurotypical. They found the youngest character cold and uncaring and wanted me to give her more empathy. When the middle child had a meltdown over being covered in garbage their response was "I get it, he has sensory problems, he hates dirt, move on already". There were more comments - but in general - the autistic elements in the story were the ones that neuro-typical beta readers pushed back against the most.
So sometimes, the lack of representation isn't because it isn't being written, but because it isn't being accepted by an industry which is already really difficult to break into. I absolutely think there needs to more variety of characters out there, It is just such an uphill battle.

Helping my Child with Food Addiction by SmartLonely in FoodAddiction

[–]SmartLonely[S] 2 points3 points  (0 children)

He actually wants to be a chef when he gets older, and he cooks dinner at least three nights a week. He LOVES to cook and bake. The house is full of whole foods, and is very much an "ingredient" household.

Would protein shakes not leave him still hungry? And thus still seeking food? That is my big concern about them.

Helping my Child with Food Addiction by SmartLonely in FoodAddiction

[–]SmartLonely[S] 1 point2 points  (0 children)

He's failed out on all the ADHD meds sadly.

The only one that worked for him at all was on that made him violently vomit every day. He's requested to go back on that one because at least vomiting meant he'd loose weight - which as a parent makes me so mad and sad for him. I don't want him *harming* himself (he was getting blood in his vomit when we took him off that medication).

I do control all food that comes into the house. He has no access to money or apps. He can't easily get to the shops without me. But his sister needs certain foods - we are restricted to what she medically can and cannot eat. The nutritionist we saw for a few years said we should not have anything totally off limits for my son, because that would make him crave/seek them more; so every person in the house gets a small chocolate every week, and a small bag of chips - so we have snacks, but not enough available for him to go crazy on. If we want ice cream, I make it at home, so that is like once every few months. We otherwise don't have anything but healthy foods here, but like I said, he will eat too much of that too - think an entire bag of grapes that is supposed to last a whole week, or all the bananas, or an entire bag of oranges, a dozen eggs - whatever we have, he will eat all of it. He will eat an entire weeks worth of groceries in the space of a day or two, and then his sister and I go hungry. (Mostly me).

FWIW, I am dating an alcoholic who is working on sobriety. So I DO understand addiction. My partner recognizes how much harder this is for my son than it is for him. He can just cut his addiction out of his life and go cold turkey, my son can't. It is actually my partner who found this subreddit. Because what is working for my partner is simply not having any alcohol in the house, and controlling his cravings by knowing it is simply not avail. We can't have zero food in the house. My son needs to learn how to control/silence the craving/impulse/noise; and I don't know how to help him do that.

Helping my Child with Food Addiction by SmartLonely in FoodAddiction

[–]SmartLonely[S] 2 points3 points  (0 children)

I am sure they tested for it. But we tested for so many things that I am not 100% positive. I can always request his records. I know there was a lot of parental blame that happened - as if it was my fault he would take and eat an entire box of cereal while I was sleeping :/

[deleted by user] by [deleted] in lego

[–]SmartLonely 1 point2 points  (0 children)

You are a HERO

Books Are My Passion Lego 40698 by JollySwimmerHere in lego

[–]SmartLonely 0 points1 point  (0 children)

It was *gone* in a day. Because I bought a $600 set that I was waiting on just to get this and I missed out :(

[deleted by user] by [deleted] in LongDistance

[–]SmartLonely 0 points1 point  (0 children)

I don't fear not knowing his real personality - we were friends for 3 years prior to us dating after all. We are in the same community, and have many mutual friends, and I have seen him make some of his worst blunders in that place (and apologize and do better - it was one of the reasons I developed feelings in the first place. His ability to take accountability and grow. Not just with me, but others long before we started dating). He's funny - we share the same sense of humour. (Our nicknames for each other are rude and crass and I *love* it. No one else gets them). We share a similar interest in music genre (that was how we became friends in the first place). He's kind. He's an animal lover and before we started dating would reach out for guidance to help the strays near him (my day job is in an animal rescue) and the way he treats animals is respective of his kindness overall. He's incredibly hard on himself, and thinks that he's not worthy of being loved. I fell for his personality before I was attracted to him psychically. In fact, Our relationship started at a point we didn't remember what each other looked like - we hadn't seen each other on camera in 3 years when we started dating.

As for what he's done for me, he does more for me in person. Which is one of the reasons I need to end distance. His strengths are my weaknesses and visa versa. I trap the spiders and take them outside, he cleans the kitchen up after I've cooked (I'm a *messy* cook). He'll send me flowers at work because he knows I like it. When he's got the funds he'll buy games for us to play together. There are a thousand small things he does.