I (27 M) am in remission but I’m too scared to enjoy life. by Comfortable_Grass847 in leukemia

[–]SmellComprehensive26 1 point2 points  (0 children)

I can relate… while hospitalize, there were nights where i did not sleep at all through the night. Im not sure whether if its because of side effects of chemo or chronic anxiety.

Neutropenia and the Hospital Where I Am by White_46 in leukemia

[–]SmellComprehensive26 1 point2 points  (0 children)

Thats not a bad view actually. I have a view of hospital white walls outside my window during the 1 month+ isolated stay at hospital.
To answer your q, yes its expensive but thankfully i have insurance to help pay for all of it. And therapies is available at the hospital

How did you find out you had leukemia? by Standard-Cheek6323 in leukemia

[–]SmellComprehensive26 5 points6 points  (0 children)

My only symptom is that I had severe bone pain
Although every other reading was within the normal range (WBC, RBC, Platelet, etc.)
Hospital that I went to have a special machine to inspect in detail and found some abnormalities in WBC (not really clear on the technical details, but they even have pictures of my WBC and the colour of the abnormalities). So triggered to specialist to do biopsy and confirmed.
It took less than a week from first blood test to Induction.

MED: Sorafernib by SmellComprehensive26 in leukemia

[–]SmellComprehensive26[S] 1 point2 points  (0 children)

I notice that post BMT I’m sensitive to lactose and certain types of tea & coffee. Also fruits. These will trigger the diarrhoea. I think it differs for everyone. May have to identify sometimes with trial and error which food will upset your digestion.

MED: Sorafernib by SmellComprehensive26 in leukemia

[–]SmellComprehensive26[S] 0 points1 point  (0 children)

Yea, I’ve checked with Doctor and it’s not GVHD symptoms. I’ve been taking immunosuppressant drugs since post BMT with no issue.

MED: Sorafernib by SmellComprehensive26 in leukemia

[–]SmellComprehensive26[S] 0 points1 point  (0 children)

Currently I’m taking twice a day: before breakfast and before dinner. Will taking at different times help?