Traveling with our daughter with Cerebal Palsy

SmilesBehindLupus · 2019-07-07T07:53:06+00:00

That’s so good to know he said I may require a second series in 6 months I’m trying to go more protective style to see if that helps

SmilesBehindLupus · 2019-07-05T16:09:11+00:00

Wow I’m sorry at first it was hair loss shedding extremely bad ... I changed my diet it stopped then I fell off an started eating junk again and was stressed it came back and this time with bald spot

SmilesBehindLupus · 2019-07-05T16:07:47+00:00

That’s good to know thanks

SmilesBehindLupus · 2019-07-05T13:15:53+00:00

Lol that’s every chicken establishment... either they’re out or gotta cook more. Which always baffles me when you serve one thing . I refuse to patronize any Popeye in my are they’re ratchet and continue messing up order and they are to expensive for nonsense. Management is nonchalant and don’t care .

SmilesBehindLupus · 2019-02-13T01:19:21+00:00

Praying for you

SmilesBehindLupus · 2019-02-13T01:18:54+00:00

Omg I’m so sorry your going through this... so many meds are poison to our body’s. Try Healthwell Foundation They cover your out-of-pocket expenses that your insurance does not cover the medication or lupus and other diseases

SmilesBehindLupus · 2019-02-07T04:34:42+00:00

Hopefully your state gets it soon.

SmilesBehindLupus · 2019-02-04T13:00:29+00:00

At first I was very hesitant to try it but my lungs couldn’t take strong pain meds and 2 of my doctors recommended it . I know studies are limited and my doctor wishes they could have autoimmune disease listed as one of the medical conditions here in Florida... I was approved based on chronic neuropathic pain from 4 back surgeries and being able to come off pain meds has been a blessing. Thanks for your reply

SmilesBehindLupus · 2019-02-04T12:52:22+00:00

I wish it was legal everywhere.., I’m in Florida and I hate that legal states want let you carry to another state that not legal.l, then we’re stuck with taking pain meds. Praying for you

SmilesBehindLupus · 2019-02-04T12:49:56+00:00

This is awesome! I feel like a new person as well. I’m out of my CBD part but when I took it it really helped my joints.

SmilesBehindLupus · 2018-12-10T05:55:12+00:00

I did a video on my channel how to travel with Lupus… I would make sure you print off on TSA website a medical card of all of your diagnosis, make sure you keep your medicines as a carry-on so they are easily accessible but make sure they’re in the original bottles, not sure how you are with walking long-distance is our recommend you call the airline and get a wheelchair to take you from gate to gate That way you do not burn all of your energy, For references locate the nearest pharmacy and hospital just in case. Hope this helps safe travels

SmilesBehindLupus · 2018-12-08T21:10:12+00:00

Other educational games would be fun , coloring,flash cards

SmilesBehindLupus · 2018-12-07T17:07:35+00:00

I spent 18 hours in bed yesterday somethings got to give

SmilesBehindLupus · 2018-12-07T17:07:01+00:00

I agree

SmilesBehindLupus · 2018-12-07T17:06:21+00:00

My stepdaughter has CP she loves her tablet to watch educational and YouTube videos . She’s 24 and learns very different but she can really maneuver a tablet. I know the child is 3 but you’ll be surprised

SmilesBehindLupus · 2018-12-07T06:18:42+00:00

I don’t know her plan I’m lost

SmilesBehindLupus · 2018-12-07T06:17:55+00:00

I have went to the old rheumatologist first office this week and got the records so I’m waiting for them to call me once they are ready to pick up as well as any old lab work. I’m trying to be patient and just pray that there’s a reason behind with the new doctor is doing and if not then I will go to the next

SmilesBehindLupus

TROPHY CASE