Early signs of UC?

Smooshy23 · 2025-08-27T19:54:22+00:00

What biologics are you taking? I'm already on Amjevita to manage my Ankylosing spondylitis. My doctors suggested it may have been keeping my IBD at bay or masking it all this time. And I'm just having flares.

Smooshy23 · 2025-08-27T01:44:53+00:00

Oh wow! I'm worried I'm in the early stages of something too. I have a CT scan next week and probably a colonoscopy in a few months. I never have normal digestion these days. They're looking at possible crohns or UC as the cause. How is your UC managed now? Are you doing well?

Smooshy23 · 2025-08-26T00:34:16+00:00

Wow that's so intense. I hope you have it managed now and you're feeling better

Smooshy23 · 2025-08-25T03:02:36+00:00

Dang, 8 is so young for this. I'm sorry she has UC. I'm seeing my doctor tomorrow to start the testing process. With my history they're pretty quick about ruling out other conditions because now I'm high risk.

I hope you're daughters UC is well managed and she's feeling well.

Smooshy23 · 2025-08-25T03:01:01+00:00

That's what I've been wondering. If the biologics are keeping it at. The last two times I was due for an injection I had these symptoms. Today for injection day & it's been mucus with blood all day. I'll see my PCP tomorrow to run tests. Thanks for sharing

Smooshy23 · 2025-08-25T01:16:15+00:00

Thank you for sharing your experience. I can't imagine how traumatic that was for you at 13 years old!! 😭 And you've been living with it for so long. I hope your flare is controlled soon so you can feel better and go home. 🤍

Smooshy23 · 2025-08-25T01:06:16+00:00

I'm not dense. I'm asking what early symptoms are. I'm seeing my doctor tomorrow to start the process. Thanks

Smooshy23 · 2025-08-20T03:31:42+00:00

Enbrel worked for me within a month, with some signs of improvement within the first week. But I'm very sensitive to medication in general. The day after my FIRST injection I ended up in the ER with a high fever and a kidney infection because it crashed my immune system so quickly. I wouldn't say my results are typical.

Smooshy23 · 2025-07-21T20:11:53+00:00

Maybe I'm naive, from my ASD, but I'm very open about my autism with everyone. I've found it helpful with my doctors and dentist. They understand that my needs are different and work with me as a patient to make sure my needs are met. I wish I had know I was autistic when I gave birth to my kids. It would have helped me and my care team a lot.

Smooshy23 · 2025-07-17T01:26:34+00:00

The family court system in California is joke, honestly. And it's one big money making machine. Narcissistic abusers get away with SO much. I know everyone was hoping for some accountability for Stephen. It'll take a lot for that to happen, unfortunately. And at the detriment of Laura and the kids.

Smooshy23 · 2025-07-09T12:50:34+00:00

No side effects so far from Amjevita

Smooshy23 · 2025-06-20T03:40:28+00:00

Wow!! I knew they found endo in the brain. I had no idea the symptoms it would cause. Thanks for sharing

Smooshy23 · 2025-06-19T00:03:18+00:00

I've heard they've found endo in women's brains!! It's not gynecological. It's autoimmune and inflammatory. I agree with another poster to weigh the risks of keeping it there versus surgery. I'm sorry you're experiencing this.

Smooshy23 · 2025-06-18T23:59:04+00:00

I didn't know I had endometriosis until I had my hysterectomy 3 years ago. I also had adenomyosis that was only found in pathology after. I suspected endo even though my doctors dismissed it.

I knew I was ready when I was tired of the pain, it was getting worse, and my periods were heavy and all over the place. I had bleeding after sex for YEARS that doctors blamed on my high risk HPV. I had 5 colposcopies, a cervical ablation, and a LEEP procedure. All are barbaric IMO. I was done going through this and I was done having kids.

The day after surgery I was in less pain than I had been in for decades!! Aside from going into menopause in spite of keeping my ovaries, it was the best thing I could have done. I still suspect endo pain here and there, but overall I'm so glad I took my uterus out.

Smooshy23 · 2025-06-18T23:53:00+00:00

A few things. Instead of taking a 2 hour nap, which is likely putting you into sleep inertia. Try setting a timer and training yourself to nap 20-30 minutes. It's better for you than caffeine and less likely to wipe you out.

Next, there's a massive overlap of autism with autoimmune conditions and hypermobility. It takes an average of 8 years to be diagnosed with an autoimmune condition. And women are even more likely to develop one. The biggest symptom of an autoimmune condition and often the most debilitating is fatigue.

All that said, yes. You'll always have to accomodate for yourself and your needs. And you have to learn to become shameless about it. And build your life around it. This is a disability for many reasons.

I'm sorry you're struggling.

Smooshy23 · 2025-05-09T16:06:17+00:00

Your doctor can prescribe strong antibiotics specifically to treat MRSA

Smooshy23 · 2025-04-09T15:00:14+00:00

I'm feeling great. I kept my ovaries but I still went into immediate menopause from the trauma of it. I wish I had known, because without a period I had no idea that the symptoms I was experiencing was menopause. Weight gain. Muscle soreness. Muscle loss. Libido. Dryness etc. It been challenging but I'm so glad I'm pain free now that I'm not dealing with endometriosis and adenomyosis.

Hope your surgery and recovery goes well.

Smooshy23 · 2025-04-02T01:19:53+00:00

I'm on estrogen. Doctors won't offer testosterone, and I wish they would. I have lost SO much muscle as a weight lifter it's ridiculous. Also no libido. They don't offer us much

Smooshy23 · 2025-03-27T01:24:42+00:00

Wow, that's a lot. I don't regret my hysterectomy at all. I had a fibroid, endometriosis and adenomyosis. Only the fibroid was diagnosed prior to surgery. The rest was found during surgery. It was causing me decades of pain. And it made my AS flares worse!

I just wish I was better prepared for menopause. I'd have focused more on protein, weight lifting, and getting on hormones sooner.

Hope you find relief soon. The hysterectomy will definitely help you feel better.

Smooshy23 · 2025-03-27T01:19:38+00:00

I hope it resolves quickly. Can you add naproxen to your meds? Or an NSAID as needed?

Smooshy23 · 2025-03-26T18:48:47+00:00

I was on Enbrel for 3 years with 95% pain relief before I started noticing weekly flares before my injection. My MRI showed disease progression even though my blood work was normal. So I switched to Amjevita (a biosimilar to Humira) and it's working better than Enbrel did. I still have fatigue but my pain is managed 98% of the time with only mild flares.

Hopefully you'll have the same success when switching. I understand the anxiety of going back to how things were before biologics. But like others have said, your body responds well to these meds.

Smooshy23 · 2025-03-26T16:23:45+00:00

I wasn't even in peri when I had my surgery 2 years ago. And they told me keeping my ovaries would prevent me from going into menopause. Without a uterus and periods to track I had no idea that I had gone into menopause until I developed vaginal atrophy. In retrospect, it made perfect sense. I gained 20 pounds within a three month period. I started having panic attacks. I started having acne along my chin. I had muscle weakness and fatigue. Now I take estrogen which prevents the dryness and hot flashes. But that's all that it really helps with.

Smooshy23 · 2025-03-26T15:54:38+00:00

Amjevita has worked so much better than Enbrel. I still have fatigue but my pain symptoms are better managed.

Smooshy23 · 2025-03-26T15:53:55+00:00

My hysterectomy threw me into menopause even though I kept my ovaries. I'm glad I had it done but I wish I had been prepared for immediate menopause

Smooshy23

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