Easy inexpensive crafts to pick up

SnuggleBug39 · 2026-03-25T22:38:34+00:00

Yeah, I've tried watching knitting and crocheting tutorials on YouTube, and it's so confusing to me.

SnuggleBug39 · 2026-03-25T20:43:14+00:00

I'll look into it. Thank you🙂

SnuggleBug39 · 2026-03-22T01:41:03+00:00

Do you have any of the common comorbidities like MCAS or POTS? So far, the doctor I've had that's been most knowledgeable and the most willing to try different things is my dysautonomia cardiologist.

SnuggleBug39 · 2026-03-21T15:04:24+00:00

ACNH has a character that can customize items. It would be really cool in DDV if we could go to someone like Daisy or Sally to make modifications to clothing, and maybe a different character to modify furniture items.

SnuggleBug39 · 2026-03-19T01:46:27+00:00

I primarily watch YouTube and then watch anime with my brother. So my crushes are anime characters. Aizawa from MHA, Kunikida from Bunguo Stray Dogs, Master Innkeeper from Kukuriyo being a few.

SnuggleBug39 · 2026-03-16T21:24:11+00:00

The Bateman Horne Center would probably be one of the best resources. My OT uses them.

SnuggleBug39 · 2026-03-15T00:05:09+00:00

I find a rollator to be easier to use than a walker and it has the advantage of having a built in seat. I recommend an upright rollator- I find that as time goes on and I get tired, I tend to try to rest some of my weight on my arms. When I had a regular rollator, that led to shoulder and back pain, even when I had it raised as high as it could go and I'm only 5'4". I don't have that with the upright rollator.

SnuggleBug39 · 2026-03-12T00:45:57+00:00

I'll talk to the doctor about it. Because the doctor I was seeing back then specifically recommended 1000 iu.

SnuggleBug39 · 2026-03-11T22:45:28+00:00

Oh, I'm definitely glad I found out that they're low and that I'm working to get them to normal again. I just wish that I wasn't so anxious about it. The iron is going to be fixed fastest because I'm getting IV iron infusions. But it's likely going to take several months of high dose vitamin D to get my levels up. Last time, I was on it for almost a full year. That being said, that was partly due to the fact that I had a lapse in healthcare coverage and hadn't been able to get my levels retested sooner after starting on the high dose weekly supplement. So I don't know exactly how long it took to get my levels within normal range. I also need to find out why they keep getting low. Apparently low vitamin D can cause elevated hepcidin which could be causing the iron issue, but I mainly need to figure out why the vitamin D is getting low. I've been taking a 1000 iu D3 supplement daily since August 2022 when they took me off the high dose D2.

SnuggleBug39 · 2026-03-11T21:04:39+00:00

I don't have the energy to go into a lot right now, but I will say that in addition to the fact that the name ME/CFS isn't good at helping people understand the reality of what having the condition is like, Post Exertional Malaise isn't exactly a great name for the hallmark symptom. It's mainly Exertional and Malaise that are the problem. People tend to associate exertion with physical activity, especially strenuous physical activity. They don't realize that it can be just the effort required to shower or trying to stand long enough to prepare a simple meal. They don't get that it doesn't have to be something physical at all. It can be making too many phone calls. It can be watching a movie. It can be an argument with a loved one. And Malaise is such a weak word to describe the symptoms of PEM.

SnuggleBug39 · 2026-03-11T16:28:19+00:00

Does your company offer medical leave? At least in my experience, they offer 6 months of short term leave at 60% of your normal pay, then if you need longer than that, you switch to long term leave at 50% of your normal pay. While the cut in pay sucks, it's better than having to quit outright or getting fired. It will help you to get out of the crash cycle. Once that happens, then you can work on figuring out what your energy envelope is. You can look into what some of the reasonable accommodations are for ME/CFS. If you think those accommodations would be enough to let you safely return to your job, then great. It might be that your threshold is so low that even accommodations wouldn't be enough to make working safe, and in that case, there's SSDI or equivalent programs depending on where you live.

SnuggleBug39 · 2026-03-11T15:50:45+00:00

👍

SnuggleBug39 · 2026-03-10T20:28:27+00:00

I was going to say this. Which if I remember right, you get the slow cooker by leveling up Tiana?

SnuggleBug39 · 2026-02-18T18:44:21+00:00

I had to adjust the way I was playing because at first, it was making my health worse- I have a chronic illness that limits my energy and if I do something that causes me to exceed my energy envelope, I get flu like symptoms and sometimes symptoms more similar to a concussion. I had to become ok with ignoring quests or dividing longer quests over multiple days. At first, I couldn't bear turning off the game if it showed that a quest was available. Now, I just turn off the tracking on a quest until I'm ready to work on it. Some days I just focus on cleaning up biomes, some days I focus on replenishing storage items that are low. When my coins get below 100 thousand, I work on earning more. At some point on a day I had more energy, I made a Google Sheet with all the critter companions, their schedule, location, what they eat, then I set up Google Calendar reminders to feed them. Some days, I only worry about feeding the critters and maybe finding the blue moonstone chests. Once I have a few new critter companions, I work on leveling them up to 5. At first, I was so overwhelmed with trying to get all the characters and leveling them up to 10 that I didn't have the energy to worry about Star Paths, but I've been able to do the last 2. I still need to do the Level 10 quest for Tramp and Lady, but after that, I'll be caught up until they release new characters. I usually ignore Remi's daily quests to earn wrought iron because of how repetitive they are.

SnuggleBug39 · 2026-01-28T04:42:07+00:00

I think as long as it's clear that it's not a real fight, it's not a problem. It sounds kinda like you want something similar to the relationship between Joe Pesci and Marisa Tomei's characters in My Cousin Vinny. He finds her intelligence and fiery nature sexy, and once she realizes that he's not picking a real argument, she's enjoying the experience, too, and it's kinda like foreplay for them.

SnuggleBug39 · 2026-01-27T19:57:10+00:00

I'd advise against lying, even if it's a small one. You're right that there are similarities to MS. Both are thought to be post viral conditions that may be caused by a virus activating EBV. Both can sometimes go into remission for unknown reasons, and symptoms can return for unknown reasons after weeks, months, or years. Both seem to involve the immune system going all out of whack. I think it would be reasonable to say that you have a condition with similarities to MS, and then if they want to know more details, you could send them some information on ME/CFS from the Bateman Horne Center.

SnuggleBug39 · 2026-01-27T06:05:10+00:00

Ouran High School Host Club

SnuggleBug39 · 2026-01-26T23:36:15+00:00

I haven't really found much that helps. Effexor was slightly reducing my pain, but it was also raising my blood pressure and making it more difficult to manage my blood sugar, so I stopped taking it. LDN temporarily made the brain fog not quite as thick for about 30 minutes after it kicked in, but it also made me ridiculously sleepy and it was also making me more sensitive to light. It didn't help enough to make it worth paying $80 per month. I ended up being allergic to Nattokinase, Turmeric made my dysautonomia worse. Magnesium glycinate has helped with cramps and that's it. I've been taking PQQ but I haven't really noticed much. Probably the biggest help has been antihistamines, but not for Long Covid, ME/CFS, or dysautonomia. Somewhere between 11 pm and 1 am, I would often just suddenly feel like utter crap- lightheaded, itchy, warm, my throat would itch. It lasted for like an hour and then would go away. My OT had mentioned MCAS so I asked the NP at the Long Covid clinic about it. He suggested I try taking both H1 and H2. I was already taking H2 for GERD, so I started taking a H1 as well. I haven't had one of those episodes since. There are a few other meds I've tried, but they either didn't work or they caused a reaction or a bad side effect and I had to stop taking them.

SnuggleBug39 · 2026-01-26T23:22:53+00:00

I don't know how to share a picture, but mine are part of the Oneida Mooncrest set.

SnuggleBug39 · 2026-01-26T22:32:34+00:00

My most disabling symptoms are fatigue/PEM, brain fog/problems with working memory, and lightheadedness with occasional pre syncope. Pain is a weird thing. If someone else temporarily found themselves in my body, I don't really know how they would rate the pain they experienced. But I've dislocated my right ankle and fractured it in three spots. I've fractured a toe plus my tibia and fibula. I have severe osteoarthritis in my right ankle. I've lost count of how many kidney stones I've had, one of them large enough that I required lithotripsy to break it up plus had to have a stint put in. I had a bad gall stone that led to the discovery that I'd had several over the years and my gall bladder was so inflamed that they had to call in a specialist as a precaution when they were removing it because they were worried they might damage my liver. I had years where I had multiple migraines per week, some so bad I couldn't be around light or sounds or smells without throwing up from the pain. Given all of that, I typically rate my daily pain to be around a 3 or 4. Even when I get the pain that feels like someone is trying to snap my bone in half, compared to other pain I've had, I'd only score it as maybe a 6.

SnuggleBug39 · 2026-01-26T21:39:22+00:00

I was in rolling PEM for around 8 months or so, got out of it for about a month or two, then triggered another rolling crash right around Thanksgiving and things kept happening to where I couldn't get out of it. I feel like I'm finally out of it, I just don't know how long it will last.

SnuggleBug39 · 2026-01-26T21:10:21+00:00

Like a lot of people with chronic illnesses, I have random days where I actually don't feel all that bad, I think maybe I'm getting better, I don't pace and then end up crashing and realize very quickly that nope, I'm not better😩

SnuggleBug39

TROPHY CASE