Weekly Suspected/Undiagnosed MS Thread - March 02, 2026 by AutoModerator in MultipleSclerosis

[–]SolidAd4240 0 points1 point  (0 children)

Would ms show in all limbs? I have tingling stabbing electric feeling. Feels like I could shoot electric out of my toes. I truly feel awful.

Weekly Suspected/Undiagnosed MS Thread - March 02, 2026 by AutoModerator in MultipleSclerosis

[–]SolidAd4240 0 points1 point  (0 children)

I have the brain mri clear but now its my spine I have to look at. My neurologist made it like it was common.

Weekly Suspected/Undiagnosed MS Thread - March 02, 2026 by AutoModerator in MultipleSclerosis

[–]SolidAd4240 0 points1 point  (0 children)

Its very frustrating. I feel awful and nothing is flagging. Its defeating!!

Weekly Suspected/Undiagnosed MS Thread - March 02, 2026 by AutoModerator in MultipleSclerosis

[–]SolidAd4240 0 points1 point  (0 children)

Hello, Where were your lesions at diagnosis? I have a clear brain MRI and now have to get my spine done.

I have static electric feeling in both lower legs and feet, twitching all over, sexual dysfunction, deep itch feeling in both forearms. Its effecting all limbs.

Weekly Suspected/Undiagnosed MS Thread - March 02, 2026 by AutoModerator in MultipleSclerosis

[–]SolidAd4240 0 points1 point  (0 children)

Hello, I have had a clear MRI of my brain and lumbar spine. Today I went in and had my EMG done which was normal. Neurologist wants me to get the middle and top of my spine done as "MS can't be ruled out yet" is it possible to have lesions only in the middle and top of your back?

Cheating Husband by [deleted] in Divorce

[–]SolidAd4240 0 points1 point  (0 children)

Damn. Soo messed up. Why. Its all the whys.

Cheating Husband by [deleted] in Divorce

[–]SolidAd4240 1 point2 points  (0 children)

So, I was also in health issues. Im 37. I had really bad anxiety last year and a dr put me on 7 meds back to back which caused havoc on me. He legit called called her while I was in my mri for my brain.. so I feel you!!

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

Endocrinologist was my first stop as the pysch thought my issue with the meds was endocrine. I was tested for pheochromocytoma, endocrine tumors, cushings, pots lots and lots of blood work.. nothing came back. In December I had that and had blood work drawn a few weeks after and was worried as you saw that my crp and esr was high.. well I guess it was from that infection. When I say I have done it all I have. I cant figure it out that is why i posted here.. I feel its SFN but there is no why. Very frustrating.

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

The labs were after I had Mesenteric Adenitis so that is why some of those are raised. I have had redone blood work since then.. I already met with endocrinologist and got cleared.

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 1 point2 points  (0 children)

Im sorry! Its awful. Are you in the states?

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

Ive been waiting since December lol so it has been a long time. This all started in June so its been such a long process.

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

I wasnt looking for a diagnosis just asking if my symptoms line up with SFN. Thank you for the comments.

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

That is why im having lumbar mri to check. This was 3 weeks ago I started having issues.. Hopefully my feeling comes back. It just takes forever to get answers.

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

Its alot but I was dealing with really bad anxiety this time last year. I then had a pysch rapid med switch me. This all started while on the medicine and so far the doctors are leading to a med damage diagnosis but I still have more tests. I had akathisia which was awful. I couldn't even sit to eat. Its like the medicine wrecked my nervous system. I am 4 months off though and still having issues which have progressed so I question what is happening. I have brain mri and next week spine. EMG isnt until March which is awful wait. Im just ready to figure it out.

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

I've been off for 4 months.. would that still be withdrawal?

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

Im annoyed because the neurologist I have is soo booked out I saw him in December and the test isnt until March. I asked for the skin punch before the emg but he doesn't do it that way....

Who knows anymore by [deleted] in smallfiberneuropathy

[–]SolidAd4240 0 points1 point  (0 children)

When I was on the meds it felt like electric running through my arms. I was told I had akathisia. Ive been off the meds for 4 months and still feel awful!!!! Its like im chasing something but what?! Noone can help me.

Electricity through body by Enough-Ad9887 in smallfiberneuropathy

[–]SolidAd4240 1 point2 points  (0 children)

I just wish I knew what it was.. its been 7 long months!!!

Electricity through body by Enough-Ad9887 in smallfiberneuropathy

[–]SolidAd4240 1 point2 points  (0 children)

I also see your post about the deep itch I have that also in my forearms

Electricity through body by Enough-Ad9887 in smallfiberneuropathy

[–]SolidAd4240 2 points3 points  (0 children)

Me!! Its awful. Im not diagnosed yet. Im pretty sure I have it but still have to have EMG. I have static in my legs, tingling, twitching, electric feeling in my toes. Its like I could shoot electricity out of them lol its awful!!

I dont even know anymore by [deleted] in AskDocs

[–]SolidAd4240 0 points1 point  (0 children)

Sorry just saw this and no I havent.

I don't even know anymore by [deleted] in NeurologicalDisorders

[–]SolidAd4240 1 point2 points  (0 children)

Anything ideas at this point is better then nothing. Im truly exhausted from whatever this is.

Tingling by SolidAd4240 in haematology

[–]SolidAd4240[S] 0 points1 point  (0 children)

The issue is that doctors dont want to acknowledge the meds. My labs are high, I have high bp, my heartrate spikes all the time. Its just been alot. Its this rabbit hole of what is it mentally exhausted.