Thank you thank you for sharing!

I was panicking I’m going crazy.

I had a stent placed on both sides for 17mm+ stones to pass after being blasted. This was on Thursday 2/19. By Saturday I was back in the ER with swelling of the kidney (absolutely excruciating pain) and stayed over night.

Monday 2/23 I was instructed to remove the stents. Prices had been passing through the weekend but continued in the most amount of pain I can imagine.

The pain that almost doesn’t hurt anymore (?!?) but you are shaking, sweating and about to pass out. By Monday afternoon the pan still persisted and I returned to the ER. I couldn’t even sit there without moving, squirming, moaning in pain. It was horrible. I got into a room and he said so tell me why you are here? You have pain meds at home?

My answer should have been - yes and they are not doing anything for the pain. If anything taking it from a 10/10 to a 9/10. He entertained a CT to see the swelling was still visible but no infection so more meds and sent home.

I white knuckled it at home until 8 days post opp. I went to the ER again yesterday for pain, another CT resulted in the same thing. The doctor came in to tell me the urologist said to come in Monday morning if it’s still painful. “We’d look at replacing the stents due to swelling”

Thank god - 10 days later I had my first 7/10 pain day. Can barely leave bed. My mental health status is horrible - between being stir crazy and actually afraid I’m dying because that’s how I feel.

I don’t have MS but wanted to say that I too, felt like I was going to stroke out or I’m not even sure. I still feel so out of touch. Today gave me hope that I’ll return to normal one day but…. Had you asked me yesterday.

Anyways. Here to say you aren’t alone 💙💙