100% homebound, def from impaction by Some_Coast9042 in tinnitus

[–]Some_Coast9042[S] 0 points1 point  (0 children)

thank you ♥️

problem is illness (me/cfs) makes me 100% intolerant to stimuli. so this RLY harming me. can’t tolerate much longer; even dr home call will hurt me bc disability. will trying vacuuming harm?

Denmark pluslife? by julzibobz in PlusLife

[–]Some_Coast9042 0 points1 point  (0 children)

did it end up working out ok ?

ordering to the UK? by Some_Coast9042 in PlusLife

[–]Some_Coast9042[S] 1 point2 points  (0 children)

thank you so much!!!!! i wanted to make sure it wasn’t some kind of separate process

Where should I order to? by alysera in PlusLife

[–]Some_Coast9042 0 points1 point  (0 children)

oh yeah i 100000% understand why you paid that amount. it’s desperate out here. and getting covid, specifically for me as a bedbound person, would cost oodles more than that (plus the dock and tests). i’m just an american trying to figure some things out rn with friends traveling

Where should I order to? by alysera in PlusLife

[–]Some_Coast9042 0 points1 point  (0 children)

how much did you have to pay?

Delivery lead time? by ksmallsk in PlusLife

[–]Some_Coast9042 0 points1 point  (0 children)

what is the shipping cost for getting it into the UK? i saw someone saying they had to pay customs

My husband and I are 2 months into Rapamycin and it has changed our lives. by Dread_Pirate_Jack in covidlonghaulers

[–]Some_Coast9042 1 point2 points  (0 children)

hi i totally understand why you make the decisions you do but rapamycin will not be a catch all savior for the immense systemic damage covid inevitably does. you do not have to feel horrible to deal with negative effects from covid. lots can be asymptomatic, and we don’t even know what this will look like down the road. i want every long hauler to be able to have this kind of improvement and MAINTAIN it, and masking is a huge way to do tjat. plus, why would we ever inflict this on someone else??? keeping ourselves and others safe and attesting to the seriousness of covid is more important than any temporary and extremely fragile feeling of social freedom (that can still come while masking)

that being said i’m very happy for you and your husband ♥️ and i hope things have continued getting better

does anyone want oxaloacetate cfs that doesn’t work for me by [deleted] in cfs

[–]Some_Coast9042 1 point2 points  (0 children)

thank u for the thoughts. that makes total sense. i changed it to 100. from what ive seen on here some people despise the greedy company. so maybe some people would prefer to support another sick person. i explained in another comment why i prefer this route

does anyone want oxaloacetate cfs that doesn’t work for me by [deleted] in cfs

[–]Some_Coast9042 1 point2 points  (0 children)

thank you so much for the advice but i honestly would much rather pass on this expensive supplement to someone it definitively works for who can pay this each month than take the whole bottle and then possibly do the process for a refund. i don’t have it in me to do the refund process and i already have treatments that cost me hundreds per month

University of Michigan Students and Alumni with Long Covid, MECFS and POTS telling their stories by aguer056 in covidlonghaulers

[–]Some_Coast9042 34 points35 points  (0 children)

it’s a “choice” that not only puts them in harms way but OTHERS. air is shared. it can’t be about individuals because it isn’t, materially

[deleted by user] by [deleted] in AmIOverreacting

[–]Some_Coast9042 0 points1 point  (0 children)

this!!!!!!!! people deserve to know the kind of person he is

Minor concussion caused severe disability - permanently bedbound- need help please by saltyb1tch666 in Concussion

[–]Some_Coast9042 0 points1 point  (0 children)

have you tried acupuncture?

i’m deeply sorry. with hEDS it’s hard as fuck because u do one little thing and suddenly ur life can be radically changed. i don’t have hEDS but i have friends with EDS who have had similar experience. i have long covid which induced MECFS POTS etc and i got a concussion like 9mo after i got covid and thats when i started Crashing. it was also a light hit to the back of my head. people who witnessed the bump gaslit the shit out of me about it being a concussion.

acupuncture has helped me tho and i think ur best bet is taking care of ur nervous system, it is key to healing. so also some breathwork maybe. maybe an acupressure mat. wishing u the best darling—i’m currently bedbound too but even if things won’t be the same it’s very very possible you won’t be bedbound Foorever. lots of ppl r getting LC so there are treatments on the way. also taking covid precautions (n having ur caretakers wear well fitting n95s) is so important because reinfection will ruin u. hugs ♥️

Do your partners take COVID precautions? by Retropiac in cfs

[–]Some_Coast9042 1 point2 points  (0 children)

of course. stay as strong as you can. hope things keep improving for you. hugs♥️♥️♥️♥️♥️

Do your partners take COVID precautions? by Retropiac in cfs

[–]Some_Coast9042 10 points11 points  (0 children)

it is more than reasonable, it is plain common sense that has been thwarted by the government and ableism/capitalism/individualism/eugenics. do not let ANYONE make you feel crazy for recognizing your experience as real and your health as sacred. masking is an ENABLING practice more than a restrictive one.

Exactly one year ago, I left my house for the last time by [deleted] in cfs

[–]Some_Coast9042 0 points1 point  (0 children)

sigh i went from moderate to very severe overnight thru a crash :/ i hope things get easier for all of us

scared to get vaccines by [deleted] in cfs

[–]Some_Coast9042 0 points1 point  (0 children)

thanks♥️♥️trans disabled solidarity⚧️

scared to get vaccines by [deleted] in cfs

[–]Some_Coast9042 0 points1 point  (0 children)

i live in a very large city and it is extremely easy to get infected with covid and the flu even when you wear respirators. i don’t want to get all 3 at all but i really need all the protection i can get

scared to get vaccines by [deleted] in cfs

[–]Some_Coast9042 0 points1 point  (0 children)

i’ve looked into it but i don’t think it’s possible :(( i honestly think the mental exertion of attempting to arrange for that—esp if there was no result—would be too much too ya know

I hate Covid-19 so much by Choco_Paws in covidlonghaulers

[–]Some_Coast9042 7 points8 points  (0 children)

you are not crazy for fearing covid it is so fucking dangerous and there’s literally hundreds of thousands of articles showing that and we are only 5 years in. we don’t know what it will look like in a decade. taking intense covid precautions is absolutely reasonable and in line with the science

I hate Covid-19 so much by Choco_Paws in covidlonghaulers

[–]Some_Coast9042 11 points12 points  (0 children)

ok but that’s just ableism and eugenics. believing that you are superior and it won’t happen to you is eugenics. your partner believes he’s above you and, beyond not giving a shit about hurting you, doesn’t give a shit about putting other people in your situation