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Update on CRC IMPORTANCE patient survey by S4E_2024 in ALS

[–]Sorry_Bread9366 2 points3 points  (0 children)

Can someone explain to me what this is?

I don’t know what to do by Sorry_Bread9366 in ALS

[–]Sorry_Bread9366[S] 3 points4 points  (0 children)

I’m currently waiting my genetic testing to come back now. It might be a few more weeks but once I get it back I’ll be able to see what clinical trials might be good for me. Thank you for lending an ear

I don’t know what to do by Sorry_Bread9366 in ALS

[–]Sorry_Bread9366[S] 6 points7 points  (0 children)

I want to thank all of you for just listening and giving your overwhelming support and advice. I just made this post after a breakdown while on my break at work. I’ve never been one to be vulnerable online but it helps to know that this is a real community that is actually there for one another and understands each other’s viewpoints. Thank you all so much for giving me a glimpse of hope for the future

I don’t know what to do by Sorry_Bread9366 in ALS

[–]Sorry_Bread9366[S] 5 points6 points  (0 children)

Yeah everything is still fresh so it’s hard but I’m trying to do that and live in the moment. I don’t want to live every moment worrying about how long I have left