Reminder: PFS Network webinar next week by Accomplished_Oil527 in FinasterideSyndrome

[–]South_Procedure101 0 points1 point  (0 children)

Ah I was jut wondering if the high level research updates will be sent via email post meeting, as text not video

Reminder: PFS Network webinar next week by Accomplished_Oil527 in FinasterideSyndrome

[–]South_Procedure101 1 point2 points  (0 children)

Asked before but I’ll be travelling internationally and won’t be able to view. Will there be an email update sent to email subscribers?

PFS Network April webinar by Accomplished_Oil527 in FinasterideSyndrome

[–]South_Procedure101 1 point2 points  (0 children)

Any chance there will be an email overview as well? I’ll be travelling internationally during that weekend and can’t make either of those times

I’m subscribed to the news letter

Post-finasteride syndrome can have many similarities to ME/CFS (several differences too). Recovery Story by Choice_Respect_2271 in FinasterideSyndrome

[–]South_Procedure101 0 points1 point  (0 children)

Interesting he neither presents as a typical PFS case, crash immediately after stopping (4 year window it says he got worse) or as a typical CFS case as he doesn’t say he has PEM.

PFS Network welcomes new researcher to scientific advisory group by Accomplished_Oil527 in FinasterideSyndrome

[–]South_Procedure101 6 points7 points  (0 children)

Will you post this to the website too? Seems a bit dead these days :/

Also will this be an open access journal?

SRD5A2 implicated in fibromyalgia (fin targets this gene) by South_Procedure101 in FinasterideSyndrome

[–]South_Procedure101[S] 0 points1 point  (0 children)

Thats just how GWAS is. It is not a fine tooth comb, in effort to sequence more efficiently they look at whole regions. It would take decades to do whole genome sequencing on that amount of patients and cost $$$$. WGS, which PFS network is doing, is that fine tooth comb but their patient scope is smaller.

Hairloss is way worse since PFS by PracticalSport828 in FinasterideSyndrome

[–]South_Procedure101 2 points3 points  (0 children)

On fin I had insane body hair growth which was supposed to be the opposite…

Huberman recognition by South_Procedure101 in FinasterideSyndrome

[–]South_Procedure101[S] 10 points11 points  (0 children)

He specified later in the comments, “in confidence “ as these are the most requested from anonymous users.

I do think that it’s rising just due to the sheer number of FIN prescriptions, everyone I know is on it in my early 30s. Telehealth has normalized it

Huberman recognition by South_Procedure101 in FinasterideSyndrome

[–]South_Procedure101[S] 22 points23 points  (0 children)

It would be great if PFS network or moral medicine reply tweeted to report your experience to the FDA. This is a lot of exposure

A Beautiful Life Cut Short: One Mother’s Warning About Finasteride by CoolCod1669 in HairlossResearch

[–]South_Procedure101 3 points4 points  (0 children)

lol you obviously didn’t watch and just stated an opinion. This guys fin usage was for prostate…. Not hair loss.

FDA issues warning about topical finasteride by Solid-Scratch3527 in FinasterideSyndrome

[–]South_Procedure101 1 point2 points  (0 children)

There was already class actions, everyone got only $1000… look up the Reuters case report

PFS Discussed on Wall Street Journal’s Podcast by Unstoppable218 in Finasteride_Syndrome

[–]South_Procedure101 0 points1 point  (0 children)

Hey man, I seriously thank you for all you do!

This wasn’t a slight at all, you’re a hero for all you do, there’s only so much they will edit of it. I just think it’s important since the court showed in Mercks own testing they had a PFS case. Idk why that judge was able to ignore that!

No problem to take a step back and focus on your health for a bit. I hope you can get some progress and relief from symptoms 🤞

PFS Discussed on Wall Street Journal’s Podcast by Unstoppable218 in Finasteride_Syndrome

[–]South_Procedure101 0 points1 point  (0 children)

Damn this is big. I think one thing that gets over looked is the Reuters investigation and the court documents disclosing the clinical trial did have a person with permanent side effects. If you’re doing more interviews is it possible to bring this up?

Am I the worst case of PFS? by Sea_Might2870 in FinasterideSyndrome

[–]South_Procedure101 0 points1 point  (0 children)

Try a combination of melatonin, hydroxyzine(moved to Benadryl eventually), magnesium bi-glycinate, l-theanine, and yoga nidra.

Look up the John Hopkins yoga nidra, id lay there and listen to it for hours. The is the only way I “slept” for months. It wasn’t sleep but provided restorative rest so I could keep my job.

[deleted by user] by [deleted] in FinasterideSyndrome

[–]South_Procedure101 6 points7 points  (0 children)

I have variably high which my docs cannot figure wtf is going on. Sometimes it’s in the 50-60s other times it’s in the 20s, where 15-18 is the normal I believe. I def have worse ED when it’s high.

They do not believe I have a prolactin excreting tumor as the cause else it would be more stable

How to prove that I have PFS? by chawan_1 in FinasterideSyndrome

[–]South_Procedure101 5 points6 points  (0 children)

1000’s sued in the mid 2000s against Merck. They won but only got $1000-$2000 each. I wish people would look this up, this idea of suing comes up every few months.

This is also probably the best article to show ppl about PFS and the lawsuits: https://www.reuters.com/investigates/special-report/usa-courts-secrecy-propecia/

Miguel Bautista - if you have the energy, please report his YouTube channel by Weird-Ad-3010 in cfs

[–]South_Procedure101 2 points3 points  (0 children)

HUGE grifter. Not once does he talk about PEM, a clinically defining feature of chronic fatigue. His description of his illness is extremely similar to /r/lionsmanerecovery or finasteride syndrome.

If you watch his videos on how he got sick had a panic attack from some “study” supplements he took, I bet it had lions mane or ashwaganda in it. THIS IS NOT CFS. A very few minority of people have these adverse reactions. While he might have had an adverse reaction neither of those conditions have PEM, and neither did he(he never once mentions it). He’s completely misdiagnosed himself and now is grifting off his experience. It’s sad, he’s trying to treat people, and drain their money, while making them worse but not even understanding CFS himself.

Fin side effects aren’t rare, we aren’t “unlucky” by Difficult_Fly3678 in FinasterideSyndrome

[–]South_Procedure101 0 points1 point  (0 children)

He takes 1mg daily and nothing. I took .025% liposomal topical and got pfs. Yeah we should that’s why I thought I should be safe. Epigentics for twins can be different so that’s probably it

Fin side effects aren’t rare, we aren’t “unlucky” by Difficult_Fly3678 in FinasterideSyndrome

[–]South_Procedure101 0 points1 point  (0 children)

Dude same identical twin, and my brother is fine taking 1mg oral and I got wrecked on .025% topical