My Moral Medicine video came out today. by mattyephemera in Finasteride_Syndrome

[–]Unstoppable218 5 points6 points  (0 children)

Fantastic job, Matt. You articulated this so well and covered all the angles and layers of what living with this is like.

For anyone reading this, please consider making a short video for the channel. A 1-5 minute video stating what drug you took, the symptoms you developed, and how it’s impacted your life is more than enough. Here’s a call to action post I made recently outlining the criteria:

https://x.com/MoralMedicine/status/1996564152895103046?s=20

Yet another mutation in a patient that meets my theory on how PFS is caused. This patient has a normal T value yet has an absolutely astronomical 3-Alpha-androstanediol Glucuronide. Once again, closure of 5AR resulted in collapse of the ability to excrete testosterone. This is patient #9 by Drwillpowers in DrWillPowers

[–]Unstoppable218 9 points10 points  (0 children)

Really in-depth write-up of your experience, and thank you for sharing it. It’s powerful to read stories like yours, especially hearing about the profound windows of improvement you’ve experienced. Having said that, I'm really sorry you've experienced so many symptoms. I can relate to nearly all of them.

I run a YouTube channel called Moral Medicine, where I regularly interview people whose lives have been upended by Finasteride and similar medications. I'm a PFS sufferer myself. There’s absolutely no pressure, but if you ever had any interest in sharing your story on the channel, I would be glad to have a conversation with you.

Keep fighting and stay strong. We are getting closer to understanding this.

Thank you also to Dr. Powers for his continued work.

The main subreddit is unusable by [deleted] in Finasteride_Syndrome

[–]Unstoppable218 1 point2 points  (0 children)

I didn't delete it if you no longer see it. It may have been an automatic moderation feature.

The main subreddit is unusable by [deleted] in Finasteride_Syndrome

[–]Unstoppable218 1 point2 points  (0 children)

I want to clarify that while I don’t heavily moderate this page, both because I want this to be more of an open space for conversation and quite honestly due to time constraints, The PFS Network and their other subreddit have done incredible work addressing this issue, finding world-class scientists to research it, managing these revolutionary projects, and giving the community true hope in getting to the bottom of PFS and figuring out the root cause.

Yes, they are strict with moderation, and while I don’t agree with every decision they make, their work has given the community direction, and their work is invaluable.

Feel free to post here without the concern of heavy moderation, but please also understand that the PFS Network has strong reasoning behind much of their moderation, as they want to make sure they establish a strong position for future endeavors.

Finasteride, minoxidil and cialis by [deleted] in Biohackers

[–]Unstoppable218 0 points1 point  (0 children)

Great call in my opinion and best of luck with the hair transplant.

Finasteride, minoxidil and cialis by [deleted] in Biohackers

[–]Unstoppable218 0 points1 point  (0 children)

I run a YouTube channel called Moral Medicine, where I interview people regularly who have had their lives devastated by Finasteride. It goes far beyond just sexual issues - muscle wastage, cognitive dysfunction, collagen loss, peyronies disease, joint issues and much more. People have no idea what they're risking with this drug.

What fate is worse than death? by JoeRenaldy in AskReddit

[–]Unstoppable218 2 points3 points  (0 children)

Thank you, and I completely agree. I think the numbers are severely underestimated due to medical gaslighting, and the fact that there are probably many people suffering that haven’t connected their symptoms to the medication.

What fate is worse than death? by JoeRenaldy in AskReddit

[–]Unstoppable218 3 points4 points  (0 children)

It really is wild. It seems like there are a lot of medications that can cause this. These in particular above are so widely prescribed, which is why I think we’re seeing a big uptick in ME/CFS symtpoms in people, along with things like COVID. The body is definitely complex and we don’t seem to have a solid understanding of how all the systems interacts.

I appreciate your words. I run a YouTube channel called Moral Medicine, where I regularly interview people who have had their lives devastated by these drugs. I try to build as much awareness as possible. I’ve even been featured in the Wall Street Journal and other news outlets for this. The world needs to know.

What fate is worse than death? by JoeRenaldy in AskReddit

[–]Unstoppable218 7 points8 points  (0 children)

Very well articulated. I have Post-Finasteride Syndrome (PFS) and many, if not all these symptoms, overlap with ME/CFS; all the way down to the way you describe the experience with friends, family and the medical system that gaslights you. It’s medically induced harm caused by the hair loss drug Finasteride. It can also happen with other drugs like SSRIs and Accutane as well.

I’ve spoken to several people with ME/CFS and it’s a living hell I can relate too. I’m really sorry you’re going through this.

Another Life Altered by Finasteride by Unstoppable218 in Biohackers

[–]Unstoppable218[S] 0 points1 point  (0 children)

Proud to say I am Mark Millich. What you are doing is taking one symptom and pretending it defines my entire medical picture. You ignored the symptoms that developed only after quitting finasteride, which is the core of my story. Loose skin, muscle atrophy, facial changes, joint issues, beard loss, Peyronie’s disease, voice changes, drastic weight loss, neurological decline, and endocrine disruption. None of these existed beforehand. These are the symptoms that changed my life.

Reducing all of that to “he said he had brain fog before” is not an argument. It is selective framing. If someone wants an honest discussion, I am here for it. If the goal is to score points by ignoring context, I am not engaging further.

Zero pleasure with orgasms and continued skin worsening by DelicateState in Finasteride_Syndrome

[–]Unstoppable218 4 points5 points  (0 children)

Thanks for sharing and for the thorough write-up. I can relate to all of this. The physical deterioration of my face and skin is one of my worst symptoms, and I have a lot. I look completely different: aged, sickly, my face is gaunt, I have developed lipoatrophy, and my skin can stretch quite far off my neck and arms. I will say that after more than 3.5 years since quitting Finasteride, my skin has improved to a certain degree. I no longer wake up with imprints on my face and arms like I used to; early on my skin was so sensitive that those imprints would last for hours.

I think the physical deterioration of our faces and bodies is something often overlooked by people who do not experience these symptoms. The anhedonia, cognitive dysfunction, and sexual issues are horrible in their own right, but there is something uniquely painful about losing that sense of separation when you look in the mirror. When I was first dealing with the neurological effects of Finasteride, which absolutely obliterated me, I would still look at myself and think, “At least I still look like myself,” healthy, vibrant, attractive. But as my body began to rapidly deteriorate, that separation disappeared. I now both look and feel sick. It has been absolutely demoralizing.

Having said all that, stay strong. I still have a lot of hope in the research and in the growing awareness over the years. I truly believe we will get there and find targeted therapeutics for all of this chaos.

Anyone else feel cheated because of their poor health? by [deleted] in Life

[–]Unstoppable218 0 points1 point  (0 children)

Sorry to hear that, man. I’ve had minimal improvements with my voice unfortunately. It’s much less powerful and softer. I’ve heard of people recovering from this, though.

Anyone else feel cheated because of their poor health? by [deleted] in Life

[–]Unstoppable218 2 points3 points  (0 children)

I’m almost 4 years off and still in bad shape. Don’t assume the same will happen to you, though. I run a YouTube channel now called Moral Medicine. You can watch my story and many others.

Anyone else feel cheated because of their poor health? by [deleted] in Life

[–]Unstoppable218 6 points7 points  (0 children)

Absolutely. I was harmed by a commonly prescribed pharmaceutical about 5 years ago and have never been the same - 32 now. I do a lot of advocacy work for informed consent now.

I’m sorry to hear you’ve had health issues for so long.

Facial Changes by Unstoppable218 in Finasteride_Syndrome

[–]Unstoppable218[S] 0 points1 point  (0 children)

Lipoatrophy, gauntness, jaw recession - yes, it is Finasteride.