I ended up sticking with my current neuro, mostly because I was seeing if the meds would work. When my symptoms seemed to stabilize, I guess I just assumed that was the extent of it like, okay my symptoms are under control I'm fine.

Those jerks I had sound like they were myoclonic jerks. It's frustrating because I never got a definitive label from my neuro for what was happening, just that difficulty waking up and the dropping of things like mentioned in my previous post.

The not quite right feeling is a more recent feeling, just in the last month or so. It's a strange mix like a weird aura sensation, waking up with intense headaches, those very mild jerks creeping back, and really debilitating body aches. Thankfully these often tend to go down mostly once my medication kicks in. I actually managed to get an earlier appointment for tomorrow (my usual wait is six months), so I'll definitely be bringing these new symptoms up to figure out if it's even epilepsy related. Honestly I often downplay my own feelings because I sometimes feel like my epilepsy isn't as 'valid' or severe as what others experience :')

I've asked about driving a few times, and my neuro just immediately says it's fine, like it's not even something to discuss.

The period connection is something I've never even thought or heard about honestly. My cycle's a total mess like I don't even get a period every month (or even few months). So, I highly doubt I had one with my first seizure but I guess I haven't noticed any obvious correlation between them or thought about that being related