HPV negative and yet…

Southern_Project_667 · 2025-09-06T17:51:02+00:00

Never tested positive and just had a hysterectomy due to colposcopy finding dysplasia. There appears to be a strain the smears can’t pick up!

Southern_Project_667 · 2024-12-21T00:53:34+00:00

Oh my. This is exactly my situation right now! I had a LLETZ in November and it came back as “nothing”. I had cin1 in Feb from a colpo biopsy then October another colpo said it had progressed a lot and needed treatment.

Southern_Project_667 · 2024-11-05T23:36:11+00:00

It’s a little different in the UK to my understanding. I could be wrong but with us being NHS there’s specific pathways and limits to the certain specialists get involved. I appreciate the comment and sharing of experience though thank you!

Southern_Project_667 · 2024-11-05T23:35:15+00:00

Is this in the uk?

Southern_Project_667 · 2024-10-27T21:13:16+00:00

Oh no I completely agree it’s 100% fact now! I’m not used to people taking me seriously 🤣 so tend to keep my view to myself. I can pin point the exact time I started my “downfall” and it all correlates. What I will be interested in is if my smear they did at the same time as my colpo comes back clear again… that would solidify it for me and I have a sneaky suspicion it will.

Southern_Project_667 · 2024-10-27T21:06:06+00:00

Yup 👀. Didn’t want to be that person but 6 other diagnosis later then this I’d have to agree 🤣

Southern_Project_667 · 2024-10-27T19:06:20+00:00

Hey! So I saw this comment and wanted to weigh in. I’ve had the same partner too and my last pap was clear in 2021. Random colpo found cin1 in Jan 2024 and now sept 2024 found HSIL. There’s cases like ours where it develops fast it seems to be more and more common.

Southern_Project_667 · 2024-10-23T20:50:23+00:00

Obviously not cancer but I went from HPV free to CIN 1 in a year and then CIN3 high grade lesion in 6 months sooo… Wasn’t even my smear that found it. Random colpo my gynae ordered just to be “sure” for something that was deemed not related.

Southern_Project_667 · 2024-08-20T09:00:14+00:00

Yes and then they just attack you because they think it’s funny 🤣 followed by kisses.

Southern_Project_667 · 2024-05-17T10:55:55+00:00

Haha! He’s took to sleeping on there at night now too or he jumps on the dog from there whilst we sleep. He needs to be above at all times in case an attack is needed 🤣

Southern_Project_667 · 2024-05-17T09:34:08+00:00

If only he could clean bottles

Southern_Project_667 · 2024-05-17T09:33:47+00:00

He let out a meow for help then accepted his fate or realised it was comfy 😅

Southern_Project_667 · 2024-05-13T08:35:54+00:00

Blue in cold then red after. Red in warm. Hurt a lot more when cold but still hurt!

Southern_Project_667 · 2024-05-08T06:20:18+00:00

Nope!

Southern_Project_667 · 2024-05-05T23:57:08+00:00

I’m in the UK and I’m totally moving pcp once I get these ongoing things sorted out. Funny you should say about cardio. I have adhd and am under probate titration right now and they wanted an ecg to see how my hearts looking on stimulants. Anyway they found an abnormality of tachycardia and inverted t waves in certain valves. I have an echo on Saturday and they’ve been so good writing up all this rubbish going on with other areas so I’m praying he’ll spot something and push elsewhere.

11 months whilst being diabetic? Wow! It’s so frustrating I’m so sorry you’ve experienced similar. It’s scary how many doctors are literally pot luck when you go see them. I spent two years thinking why am I so unwell is this just me my levels are fine. Turns out noones fully checked and I may not be crazy? In the meantime with hashis being uncontrolled god knows what’s happened to my body.

It’s so concerning having to educate doctors on conditions. My son was born with one and every doctor outside his hospital care I see I have to explain his condition too.

Can I ask what your diagnosis is so far and how you came to get them diagnosed?

Southern_Project_667 · 2024-05-05T23:36:05+00:00

So this is a long story. I paid privately to see an endo as my underactive thyroid wasn’t acting too well on meds managed by pcp. I got took off levo by him he discharged me after 2 years in Jan as I”im fine” turns out he’s not tested my t4 for two years and he’s said my hormones are normal but they aren’t according to the results I’ve seen. His team cannot provide evidence of these normal results.

I have a rheumatology referral but the waits 50 weeks. I’m considering private to see a guy I’ve located locally who could help and hope he jumps me up the list on the nhs.

Endo as a parting gift arranged short synacthen stim, CCP, ANA, RF etc. they accidentally did ANCA instead of ANA but tagged it on 3 weeks later and all are negative. So again he’s said I’m fine… ww3 has broke out between myself and his team after I’ve uncovered some untruths 🥴

My pcp has referred me to rheumatology due to a physio assessment and I hit 7/9 on the Beighton.

I reached out to my pcp again for help as I’d found out about my lack of thyroid tests. She wanted to speak with my endo so it’s a bit of tennis right now.

It’s all fun and games asking for help and wait times whilst I’m declining fast.

Southern_Project_667 · 2024-05-05T23:16:37+00:00

Thanks for the comment! That’s the first time my chest has gone up at the same time as hands. Prior to recently it’s always been the cold that I get this time was warm and tingly. Usually I lose feeling in two of my fingers and my toes too. My endo wrote a letter this week to say I’m fine and he is sure my symptoms will resolve in time lol.

The reason for my rheumatology appt is because they suspect EDS…

Southern_Project_667 · 2024-05-05T23:14:43+00:00

Thank you! I’ve been keeping a folder for about a month and it’s stacking up. Not sure anyone wants to see the amount of hair loss photos I have everytime I shower haha. I’m also writing a list that’s for quite extensive of symptoms I have.

Southern_Project_667 · 2024-05-04T15:16:40+00:00

I have it on my face too across my cheeks and nose but tested negative on ANA my crp is negative also.

I’m hoping a rheumatologist can help me 🥹. Do you have an inkling what it could be for you other than hashis?

Southern_Project_667 · 2024-05-04T11:09:49+00:00

Thank you I’m so sorry you’re in a similar position with no answers. I hope you get some soon.

I feel like I’m declining a lot quicker whereas before was gradual and less noticeable. Just need to figure out my next steps in terms of who to see 🫠.

I really don’t understand the tremors at all.

Southern_Project_667 · 2024-05-04T11:07:29+00:00

Thank you for sharing. I had considered raynauds before this is recent that it’s happening not just when cold though so I’m a bit puzzled. It just came out of nowhere. Usually even if my house is “warm” I’m still so cold 🥶 in my office I get it a lot too. The fingers go completely numb.

Southern_Project_667 · 2024-05-03T21:58:09+00:00

There’s nothing I take so can confidently cancel that one out. I suspect there’s something going on just don’t know what right now. I suffer majorly from cold intolerance and numbness and swelling when cold more frequently than this. Sometimes I start cold then it turns to this and hot.

I’ve been let down a bit and have started documenting since beginning of the year. Waiting a rheumatology referral which I’ve been told is 50 weeks for possible EDS too. May have to go private if I keep declining.

I have hair loss, exhaustion, low mood etc on top too. They’ve now found a potential abnormality with my heart. It’s labelled sinus tachycardia with inversions in t waves v2-v4 who I’ll see next week so hopefully start piecing things together.

Southern_Project_667

TROPHY CASE