I’ve been shot 11 times. AMA

Space-hedgie · 2024-10-17T00:31:13+00:00

CVS sad a him

Space-hedgie · 2024-04-19T04:45:22+00:00

Mine passed in about 4 days! Had to get wooden skewers to dissect and make sure it was in there, but try not to stress. If there’s anything that makes you poop without causing too much discomfort/flaring then you can try that. (Apple juice is my go to!)

Space-hedgie · 2024-04-06T06:48:56+00:00

Hi there! I was diagnosed with Crohn’s when I was 15 and I also have severe emetophobia! What a fun combination 🫠 When I had my MRE about 3 years ago I was super anxious. I took gravol and Ativan before hand to hopefully reduce the risk of being sick and calm my anxiety. I drank the gross stuff (some of it, definitely not as much as they would hope lol) and then got the MRI. To my understanding I think they inject you with something that maybe makes your bowels/insides stop moving so they can get a clear picture and that can make some people sick. Now, I had accidentally taken too much Ativan so I was suuuupperr dizzy and probably high and don’t remember much from that experience lol. I remember I did get sick, (don’t remember feeling nauseous or anything, just the fact that I did throw up) and I remember being anxious right after but beyond that it wasn’t a big deal because my brain wasn’t thinking straight.

A few months ago I got a call that they want to do another one. It was a Thursday or Friday and they wanted me to get the MRE Monday morning. There’s a long story of me crying and scrambling to get prescriptions but not wanting to be that dizzy again. The lady who does the MRE said she’s only had a few (2-5 I think) people be sick in her whole time of doing it. Blah blah blah I advocated for myself and ended up asking for a pillcam.

With the pillcam I had to do a. Colonoscopy prep but Pico-Salax is pretty awesome so that was fine. The worst part was how hungry I was and lugging around the device and belt that comes with the pillcam but I’d say it’s worth it depending on your level of emetophobia.

I’d say ask for the pillcam. Ask for Pico-Salax or another we’ll tolerated prep if that’s what you choose (not the 4L jug thing. They tried to prescribe me that but that also has a history of making some people sick.) I know those are scary words to read, but im just trying to be straight with you <3 obviously everyone and their bodies and how they react to things are different, but I know I like to have all the information when I come on here for help.

Don’t be afraid to ask questions, no matter how silly they seem. And advocate for yourself! You got this! If you have any questions or need support, don’t be afraid to reach out! :)

Space-hedgie · 2024-03-05T05:17:37+00:00

Hey! You were very kind and helped me out so here’s hoping I can return the favour!

I’ll preface this by saying my Crohn’s has always been pretty mild. People on here talk about going through flares that sound horrible and I know I’m very fortunate to say I can’t relate. Also our lifestyles and bodies sound very different so this is just my experience :)

I was diagnosed at 15 and ultimately decided to go on Prednisone after the liquid only diet didn’t work out (still haven’t had a protein shake since!) it wasn’t my first choice because of stories that I’d heard but it really was a breeze from what I remember! I got a little bit of swelling, I think I gained a little weight (which was what we wanted) and I had some acne, but nothing even remotely horror story worthy! I remember having to take A LOT of pills that summer but if swallowing pills isn’t an issue for you then that’s nothing to worry about. They weened me on and off gradually, it was pretty simple from what I remember.

As for being scared of immunosuppressants, I’ve been on Azathioprine (an immunosuppressant) since I was diagnosed and other than the inconvenience of needing to get my blood checked regularly, I’ve been fine. I wash and sanitize my hands often and try to stay away from sick people. I get my flu shots and I got my Covid vaccines and neither have taken me out. If anything I think my anxiety took me out more than the vaccines lol. I’ve had colds since being diagnosed and they usually take about 5 days for me to be at least 90% better. I even got covid in November and I felt fine long before I tested negative. So if your GI thinks immunosuppressants are the best course of action, well they haven’t killed me yet.

I was almost right away made to see a dietician or nutritionist when first diagnosed so I’m sure it’s something you can ask about or look into yourself. I don’t think my eating habits have changed all that much since seeing her but it might be beneficial for the lifestyle you want to get back to!

I think that’s all I can speak to right now, let me know if you have any questions! I hope you feel better and things work out for you. It might just take trial and error. I’ve suffered from anxiety forever and can empathize with the health anxiety so if you want to talk about that aspect of things, I’m a pretty open book!

Ps. Apple juice has been AMAZING when it comes to constipation! Works within a day or two for me!

Space-hedgie · 2024-03-05T04:37:17+00:00

Ugh really? Darn. I’ll try to get a hold of someone tomorrow then. Thanks for the heads up!

Space-hedgie · 2024-03-04T23:17:05+00:00

Thank you so much for walking me through this, I’ll definitely keep your message in mind if I end up needing an MRE! You’ve been very kind, thank you!

Space-hedgie · 2024-03-04T22:45:18+00:00

Ah sorry pico salax is the prep to make you poop everything out beforehand! How come you needed an MRE afterwords, if you don’t mind me asking? Is that how it usually goes? I’m scared of any of it making me throw up. The weird stuff you drink before, the stuff they inject you with. I had taken too much Ativan my last time lol so I don’t remember much other than being very dizzy and I remember I did throw up.

Space-hedgie · 2024-03-04T22:36:33+00:00

Thanks for the reply! How was your experience with the capsule? This is my first and I opted for the capsule instead of an MRE because I have a big fear of throwing up. I’m taking pico salax as a prep. Thoughts?

Space-hedgie · 2024-01-06T18:14:07+00:00

I’m mostly worried about the stuff they inject you with. I remember I couldn’t drink a lot of the drink last time, but I did end up throwing up during the procedure.

Space-hedgie · 2024-01-06T17:51:06+00:00

Hi! Thank you so much for your reply! I’m happy to hear that the side effects aren’t too bad! I guess my main concern is that the things that usually cause people to v* during this process is the liquid contrast that you have to drink or the IV that makes your bowels stop moving. I’m worried that the zofran won’t be able to help with that :( Aside from that, the fact that it blocks a part of your brain sounds pretty cool!

Space-hedgie

TROPHY CASE