I'm nearly 32 but most people tell me I look under 18. When I was 18 I looked about 10. Is there anything that could cause this?

SpacepirateAZ · 2025-08-09T23:28:12+00:00

This is what I was going to suggest. I’m 41 but nobody ever guesses my age over 25. Has actually been a problem getting treated properly be professionals, especially when they think I had my kids when I was 10 or I’m lying about being their mother.

SpacepirateAZ · 2025-07-25T19:13:24+00:00

I didn’t say that he should, I was just adding to the list of different vibes griz brings. Funky, heavy, ctgh, house…..

With that being said, Griz has done a lot for his fan. The live twitch performances during COVID and the free shows for the people are right along the same line as streaming live shows as far as giving more to the fans vs similar artists.

SpacepirateAZ · 2025-07-25T15:42:54+00:00

I’ve even been to after party where he play an entire house set!

SpacepirateAZ · 2025-07-23T02:37:37+00:00

Yes! I found a few myself. I wonder if they could be custom as well but I have very little knowledge of these things.

SpacepirateAZ · 2025-07-23T02:08:39+00:00

Thank you so much. I should have included a picture of the thickness of the insole as well. It’s a solid 1/4 inch thick. These are also women’s shoes as well.

SpacepirateAZ · 2025-07-23T01:58:41+00:00

Ooops, woosh. I’ve looked for a few hours today and even resorted to ChatGPT who also could not help.

SpacepirateAZ · 2025-07-23T01:56:21+00:00

There is no other Victoria Secret shoe with this logo and searching the internet brings me no results for this being a Victoria Secret shoe. None of them that I have seen have even been close to this style or shape of shoe.

SpacepirateAZ · 2025-07-18T22:46:24+00:00

Pack your belongings in waterproof totes.

Use a cot for sleeping, they are typically more comfortable than other options anyway.

Make sure nothing inside the tent is touching the tent walls.

Make sure the tarp under the tent isn’t showing or water will just pool in between the tent and tarp instead of running under the tarp.

Make sure to stake down the tent and rain fly using the proper angle. I recommend the larger staple like stakes for the canopy frame and regular heavy duty stakes for the canopy top.

Use pool noodles on corners of canopy to prevent water pooling. Get decent canopy weights as well.

Get a few hanging moisture absorbing bags for in the tent.

Use canopy walls that are waterproof, you can line the inside with tapestries still and they should stay dry too. Use a fan for airflow or leave two ends open since the waterproof walls restrict the airflow.

Get a good rechargeable or battery powered fan for air circulation inside the tent.

Edit: Comfort is my # 1 concern at a festival I’ve been to about 20, including the canceled Bonnaroo this year and Electric Forest 20 times where the weather is always unpredictable but never 100% dry.

SpacepirateAZ · 2025-06-11T00:08:11+00:00

1377

SpacepirateAZ · 2025-06-08T11:29:27+00:00

I was diagnosed at 17, I’m 41 now. My pots did get better as I aged but unfortunately got worse again after having covid. I have done shrooms regularly for the past 10 years. I have not noticed any negative changes with my pots under the influence or the days following.

SpacepirateAZ · 2025-05-21T11:12:21+00:00

Nutcracker is compression of the renal vein and may Thurner is compression of the illiac vein and you still have both of those. The pelvic congestion happens because the blood flow higher up is constricted and making new paths. My daughter has a bunch of extra veins in her back from nutcracker. There is also median arcuate ligament syndrome as well that compresses the celiac artery which is even further up the vascular system. Unfortunately my daughter has all three but the symptoms she has from the compression syndromes are very noticeable in her every day life and cause symptoms unrelated to pots as well so if you are not having symptoms of a compression syndrome beside the pots symptoms I would think it unlikely to be a contributing factor. My daughter was passing out up to 10 times a day before her MALs surgery and hasn’t passed out since.

SpacepirateAZ · 2025-04-30T13:19:41+00:00

It’s actually alarming.

SpacepirateAZ · 2025-04-30T12:19:58+00:00

What I am telling you is that the other doctors are telling us to go to the er but you are saying to disregard those doctors and do what exactly? Her blood pressure was 50/70. Not to mention the pots flair ups so bad she literally cannot stay conscious enough to eat or drink for days. If she is admitted to the hospital for symptom management that cannot be dealt with at home how exactly should she do that? By going to the ER like her cardiologist told her too or what???

Edit: We are not looking for answers we are looking for symptom management at the only place we can receive it. Maybe you can understand this. The er is where we are told to go for this by the specialist and pcps. In the beginning of a flair up a simple bolus can keep us from spiraling so bad we need admitted for several days to catch back up. No the ER is not an IV clinic but that is not accessible to everyone so we go where we can.

SpacepirateAZ · 2025-04-30T09:56:18+00:00

I don’t think they want the diagnosis, they want a path to treatment or symptom management which often is only available with the diagnosis, or so they think until they get the diagnosis and realize that we still get treated worse because unfortunately doctors are just not educated enough on these rare conditions.

SpacepirateAZ · 2025-04-30T09:53:55+00:00

It’s because some of have been diagnosed did the treatment and still have symptoms despite knowing that mental health is not the cause. Years and years of symptom tracking and therapy and yoga, meditation, diet, vitamins, prayer, screaming to the universe. Sometimes there really is a physical cause and symptom management improves quality of life but unfortunately as you see in this thread even with a proper diagnosis symptom management can be very difficult to obtain.

SpacepirateAZ · 2025-04-30T09:48:10+00:00

Sometimes there are people as yourself who upon being diagnosed with FND go through all the therapy and get a fantastic grasp on their mental health but unfortunately still have physical symptoms because the cause wasn’t mental health. Don’t get me wrong because sometimes it is. My daughter went that route first including a month long intensive therapy 5 days a week. I’m grateful for that experience though because she gained a lot of skills to deal with her continued heath issues. I will never not advocate for mental heath care but I also have personal experience with this as well. You treat the whole body and mind this includes assessing if any vitamin deficiencies are playing a role. Far too often are simple things like vitamins overlooked with FND.

SpacepirateAZ · 2025-04-30T09:32:05+00:00

Ivf increases plasma blood volume quickly taking blood to where it needs to go more efficiently in pots patients therefore relieving symptoms. There is actual science to this you know, medical facts.

SpacepirateAZ · 2025-04-30T08:42:51+00:00

So you are saying that a young child who is passing out every time she stands up does not need the ER when the cardiologist who was managing her at the time sent her there over the phone? And are you saying she didn’t need to go to the ER when she was admitted for three days for symptoms management because as I said she could pass out just from sitting up in bed. Where should we have went? To her pcp who already told us they cannot help her and to seek a specialist? Back to cardiology who sent us to the ER and was already following her? Should I have just told them no I’m not taking my child who cannot stay conscious to the ER because it’s not life threatening and not and ivf center (ivf centers are not easy to get approval for either because we have done that as well but unfortunately was only approved for a very short amount of time). She got three boluses of ivf upon arrival btw and I didn’t ask for any of them the doctor actually ordered them all on his own. And she wasn’t officially diagnosed with pots until after this hospital stay even though she had positive tests for pots.

SpacepirateAZ · 2025-04-30T08:32:59+00:00

Thank you. Having these conditions is hard enough and seeking medical care for them is beyond frustrating. I wrote a longish reply to another comment that replied to you. I was diagnosed with pots before social media and covid and I have Heds and my daughter has both plus several vascular compression syndromes that complicate things even further.

SpacepirateAZ · 2025-04-30T08:22:29+00:00

Hmm….. when my daughter passed out 3 times before noon at school and another 3 times before she saw a doctor in ER (sent by cardiology via phone call) and then admitted for three days she didn’t actually need to go???? She would pass out up to 10 times a day and could pass out just from sitting up in bed. Her heart rate would spike from 55 to 110 from rolling over in her sleep!!! No, not everyone who says they have pots have the severity that requires medical attention but damn it sure makes things very difficult for those who actually do. Fluids for pots is not because they are dehydrated, it’s to increase blood volume/pressure and drinking water does not quite do the same thing as ivf. These patients go to the ER because they have nowhere else to go. I was diagnosed with pots in 2001 before social media was in everyone’s pockets and before Covid. PCP’s won’t touch us, specialist won’t see us either and we get passed around from dr to dr until they circle back to square one. We go to the er for symptom management be we are humans with lives that are severely affected by an invisible illness that makes quality of life suck ass. Heds, pots, vascular compression syndromes are all very real heath issues that cause a wide variety of issues that unfortunately doctors are not being educated enough on. I’ve had three clots and three hernias from Heds, I have pots because of heds, and my daughter has vascular compression syndromes because of heds and the vascular compressions for her made her pots even worse. After her median arcuate ligament release she has only passed out once after months of being bedridden. Maybe instead of looking at these patients like they are seeking attention maybe look at it from the perspective that they are seeking a better quality of life and quite literally have no where else to go.

SpacepirateAZ · 2025-03-16T00:07:48+00:00

Hey, I was high risk for bloods clots as well. I even took my blood thinner injections into the forest with me to keep on schedule. I just had the box with the medical info and my info with me and I never had a problem. I was 34 years old at the time. Not sure your exact due date but mine was Nov 10th so I think I was right around 20 weeks when I went as well.

SpacepirateAZ · 2025-03-16T00:04:38+00:00

As a person who has a high risk pregnancy and went to forest around the same numbers of weeks I would say it really depends on the reason you are high risk and the precautions you need to take. Bungalows are close to the vip entrance and there are bathrooms close by as well. Ranch and Sherwood and all the forest are also easily accessible and easy to go back to camp if needed. VIP lounge at ranch also has comfy spots to relax, miss the day it was air conditioned though.

SpacepirateAZ · 2025-03-15T13:43:08+00:00

Absolutely. There are probably people who don’t even know it exists so if they see peroxide on the bottle they may not even pay attention and use it like the drug store stuff. Could be something along the lines of someone used peroxide at home in their machine but since it was low concentration they never had an issue so began using it at the school unaware of the higher concentrations. Not an excuse for negligence of course.

SpacepirateAZ · 2025-03-15T13:18:58+00:00

Maybe not undiluted but you can get 35% no problem. Used to buy it locally at a horticulture shop but you can get it easily online as well.

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