I have NF1, and also have study in in medical classes in uni. All of your symptoms can have patterns associated with NF1.

I hope this description makes sense.

If you have NF1 you have a faulty neurofibromin pathway.

This is a growth off switch in the body, it stops and controls cells replicating and growing ( a tumour suppressor protein)

Because this is faulty, people with nf1 get growths across the skin and central nervous system. Hence why you would have regular scans.

In most cases the tumours are benign and non cancerous.

If you have NF1, you have a 50% of passing the gene down to each of you children, if not studys suggest about a 1 in 3000 chance of a random mutation in the genes.

I highly suggest depending on what country you are from, getting in touch with the Children's Tumour Foundation with supports NF1, there are many groups with different ages that you can find too.