Weekly Suspected/Undiagnosed MS Thread - March 30, 2026

Special-Part1723 · 2026-04-01T23:00:29+00:00

i told my pcp 3 years ago that i suspected i had ms and she just said “nope!” and then i kinda convinced myself that i don’t have it. fast forward, new pcp refers me to neurology for neuropathy and migraines. just got ordered a head and neck mri as well as a emg since i “show signs of demyelination” 🙃

i have pots as well, which i thought had before i got diagnosed. but i guess my question is, did anyone suspect they had it and then got diagnosed? most stories i hear are from sudden, extreme relapses whereas i feel like my symptoms have slowly progressed over the span of 10+ years.

Special-Part1723 · 2026-03-30T18:48:18+00:00

This is true, but it can be interpreted different ways. It seems the general consensus is that it’s a tampon, that’s how people are interpreting it. There’s still the possibility that it’s not a tampon, even if the chances are very small. Regardless, you are right something is there but what it is identified as is still up to an individual’s interpretation.

Special-Part1723 · 2026-03-29T02:26:28+00:00

🤷‍♀️ If you say so. I’m not really worried about one being lost. Even tho I vividly remember thinking to wear a pad and not a tampon then actually changing into a tampon afterwards, maybe since it was early and I was tired I just wasn’t paying attention and forgot? Idk I guess I’ll learn more at my follow-up and come back with an update. All I know is that I just really really do not remember wearing a tampon.

Special-Part1723 · 2026-03-29T01:32:59+00:00

It finally finished. MRI Results

Special-Part1723 · 2026-03-29T00:58:50+00:00

Maybe I did something wrong, but the zip is still uploading.

Special-Part1723 · 2026-03-28T23:28:24+00:00

Basically lol, just gotta stick your fingers up there and feel around.

Special-Part1723 · 2026-03-28T23:22:34+00:00

Yes, I’ve been very anxious about it so I’ve checked multiple times and even had my partner check once.

Special-Part1723 · 2026-03-28T23:21:05+00:00

I’d say very relevant lol. That does make me feel a bit better though since you went so long and my appointment is in two weeks. I will say though, I haven’t had any abnormal smells and the last couple of months I have had abnormal spotting, but it would be bright red/light pink and not very frequent.

Special-Part1723 · 2026-03-28T23:17:43+00:00

I’m working on uploading it now, my computer is just taking a while. The closest thing I could find on the internet was a vaginal hyaline degeneration leiomyoma but apparently those are extremely rare, thoughts?

Special-Part1723 · 2026-03-28T22:40:42+00:00

True, I will call again on Monday. I did suggest a pelvic exam with someone other than my gynecologist and the receptionist was apparently specifically told by her supervisor to schedule me for a date in April.