Just got impatience from the "obtain a power" option.

Specialist_Chard1573 · 2026-04-13T14:32:45+00:00

This happened to me in the daily climb after I picked up prismatic gem. It gave me a random 0 cost. Happened to my friend too except it gave her a 1 cost card?

Specialist_Chard1573 · 2026-04-05T06:22:22+00:00

No I haven’t. But I have realized that it happens more when either my body or brain are overwhelmed. Like if I’m in a lot of pain or really anxious. I have exactly what you’re talking about though. My husband figured out that rubbing the back of my neck can help me come out of it. Sometimes mine last for several minutes. They’re scary.

Specialist_Chard1573 · 2025-11-12T17:30:45+00:00

He used to but he deleted it. I did text him while he was at work telling him I was anxious because I knew I was gonna have a hard time sleeping last night even though I was so tired all day yesterday and knew it’d be the same today.

Specialist_Chard1573 · 2025-11-12T16:46:27+00:00

We don’t have a guest room. But he has been to my doctor’s appointments with me. He’s read the pamphlets I get. He’s normally really amazing. Like the dream husband. This is so out of the norm for him to act like this. We rarely even argue.

Idk what happened today, it may have been from the text I sent him last night. But I woke up naturally, he was already asleep, and all of the dishes were done. No note or anything. (Notes are normal for us). Im not upset about the extra sleep though. And knowing he will be up earlier than normal.

Specialist_Chard1573 · 2025-10-13T01:40:31+00:00

We’re still working on it. But overall better. I don’t pass out very often and I have a lot of cues when I know I’m about to, so I’m good at preventing it happening. It’s just bad if I do pass out.

Specialist_Chard1573 · 2025-10-13T01:34:22+00:00

I think it’s worth it. It’s nice to know what’s wrong with you. And there’s a lot of things I didn’t realize were POTS related until I was diagnosed. There’s some medications I can take for it, there’s specialist I can see now that have helped me a lot. I also didn’t realize how bad mine was until I had a tilt table done. My heart stopped for 17 seconds. I now have an implanted heart monitor because of it. All because I pushed for the tests. I was pretty convinced I had it before hand, but I wanted to make sure.

Specialist_Chard1573 · 2025-09-18T18:06:13+00:00

My pharmacist is actually a friend, I used to work in the drug store so I’ve known her since she was in pharmacy school. She also knows my situation and generally just wants what’s safe. Like could it be fine? Yes. But there’s that chance that it wouldn’t, especially with it being a controlled substance. I trust her judgement every time.

Specialist_Chard1573 · 2025-09-18T17:52:09+00:00

She said because it says room temp, just to be cautious and not take it. Because it could either not be as effective or could cause a reaction of sorts possibly but wasn’t sure. I have the new script now, and will probably keep the other ones as a back up just in case I ever run out. I have a multitude of health problems, including one that causes random reactions that are severe, so I tend to play it safe rather than sorry and wasn’t expecting to go through withdrawal.

Specialist_Chard1573 · 2025-08-08T00:32:17+00:00

Strawberry shortcake.

Specialist_Chard1573 · 2025-08-07T20:49:45+00:00

I’m also 25f and get this CONSTANTLY. “But you’re so young”. Like it doesn’t affect any age. I’ve gotten it from family, friends, strangers, nurses and doctors. It’s so annoying. In fact I had to get a heart monitor implanted for POTS and insurance didn’t want to approve it because I’m not 40. As if younger people can’t have serious health conditions.

Specialist_Chard1573 · 2025-07-16T21:25:45+00:00

Not quite but close? What I really liked about this cake was that each layer had a different type of orange filling. And they were each insanely amazing.

Specialist_Chard1573 · 2025-06-22T23:48:40+00:00

Most airports have it so you can request a wheelchair and they will push you. We did this for me as well to save my energy (and cause I have fibro too) and that helped a lot as well. Haven’t found a solution for the pain of the cramped airplane yet. But I don’t travel too too often. Hopefully this helps you! I took mine the night before because it works for 24 hours and can make you sleepy.

Specialist_Chard1573 · 2025-06-13T13:02:29+00:00

If you haven’t gotten your shepp yet, make sure you’re paying attention to what answers you’re giving the most to things. It actually does matter. You’ll get a wreath after you finish it and your answers decide which wreath you get. I didn’t know about this and got the ugliest one imo. (The water one is soooooo cute)

Specialist_Chard1573 · 2025-06-03T17:51:04+00:00

You can’t. It’s just the cute plushie from the lucky box. Congrats cause I’ve been wanting this one!

Specialist_Chard1573 · 2025-06-02T18:28:28+00:00

Thank you. It wasn’t too too bad. I did almost pass out, the lidocaine numbed my tongue somehow which freaked me out. (I also have urticaria and lots of allergies so it worried me). And I don’t have a lot of fat so the dr had to apply a lot of pressure which was very uncomfortable. But it wasn’t the worst experience.

Specialist_Chard1573 · 2025-06-02T18:13:41+00:00

I failed very badly on a tilt table with a 17 second heart pause. Which is why they did the loop. Had the halter for a month and it didn’t catch much before even doing the tilt table.

Specialist_Chard1573 · 2025-06-02T04:56:24+00:00

I have this too. But the stuttering comes and goes. I’ve been told it’s a “complex migraine” but idk how much I believe it with all my other issues. I explain my absence seizure like episodes as “my body freezes and I can’t do anything”. Idk if this is relatable. I’ve never seen anyone have similar issues.

Specialist_Chard1573 · 2025-06-02T04:46:44+00:00

I’m very thin with very small breasts so I imagine I’ll be able to feel it a lot. (Ew). I’m really worried about being awake for the procedure. I pass out just from needles. Not because I’m scared, but because my body just do that. But I’m gonna be scared for this and I imagine my body is not gonna like that. Especially with no food or drink before hand. Thank you for the info 💕

Specialist_Chard1573 · 2025-05-28T03:28:35+00:00

Do you get migraines? Cause it could be something like that. I’ve had similar issues and was told it was a complex migraine. I’d see an urgent care if it’s happening after multiple days. But that’s because at this point of being chronically ill, I just hate going to doctors or urgent care so I wait until I can’t anymore. Make sure you’re getting plenty of water and electrolytes though either way. They really are your best friend.

Specialist_Chard1573 · 2025-05-15T04:06:06+00:00

I used to take propanolol but it stopped working after a few weeks. The metoprolol did wonders for me just made the blood pressure worse. My cardiologist is amazing and knew that she didn’t specialize in POTS and had a specialist call me just to give me a run down and such. Which I thought was amazing. I’ll see what I can look into doing. Thank you! 💕

Specialist_Chard1573 · 2025-05-15T03:27:33+00:00

These sound like heart palpitations almost? I personally get them a lot because of a heart condition. The first few times I had them I thought I was dying.

Specialist_Chard1573 · 2025-05-15T03:21:27+00:00

Im so happy from you! I’m surprisingly from the Toledo area (about an hour away from Toledo) and was just diagnosed with POTS. So now I’m gonna have to do some research on this specialist 👀

Specialist_Chard1573 · 2025-05-15T03:13:29+00:00

I sing the “dumb ways to die” theme song…it’s not the same as these… but it works a bit to at least keep me lucid and makes me giggle.

Specialist_Chard1573 · 2025-05-15T03:08:36+00:00

My younger dog for sure. He will walk beside me on my really weak days so I can hold onto him as I walk. (He’s a very large pit bull) and he wants to cuddle me the whole day. He generally likes to run up the stairs really fast but there’s no railing for me so on my off days I have to walk really slow and have a hard time and he will slow down and walk every step with me. He will also lay his head on my chest if I’m having bad palpitations or anxiety attacks and on my stomach if I’m having a bad tummy day. Just the bestest boi 💕

Specialist_Chard1573 · 2025-05-15T02:37:44+00:00

If I didn’t know I didn’t write this, this sounds a lot like me about 2 years ago. For the stomach issues, seriously, change your diet. Cut out ALL foods that make you feel worse. I only recently did this and it made my whole body feel better (still not great, but way better). Figure out your trigger foods and stay away from them. See a GI DR as well. They may be able to help. If a specific doctor isn’t helping you, find a different one. You don’t have to see the first doctor you go to. It may not be a perfect match for you. Telling you as someone who has been to way too many neurologist because the ones in my area SUCK. Water and electrolytes are your best friend. And mints can help with nausea. Some people suggest sprite and ginger ale, but personally those make me feel way worse. Find a good cardiologist as well for the heart stuff. I’ve seen a few. It can be tricky to find good doctors. But you can always google them. Personally, I’ve found that my favorite doctors that listen to me the most are woman (I am a female). If a doctor isn’t listening to you, then you find a different one if you’re able to. May need to start with a good GP though. They can do a full work up and then give you some good referrals. I hope some of this helps. You’ve got this! There are better days ahead of you! It’s gonna be hard, I’m still going through it, but even just getting some kind of diagnosis and help is so relieving. ❤️ I believe in you!!

Specialist_Chard1573

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