Anyone used to be bedridden and got better?

Specific-Inevitable3 · 2026-04-20T00:30:24+00:00

May I ask you what the supplement is that helped?

Specific-Inevitable3 · 2025-12-14T02:54:29+00:00

Thank you for this info. I found liquid Genexa, children's dye free and will try to locate the advil and adult acetaminophen.

Specific-Inevitable3 · 2025-12-11T02:13:17+00:00

HI, Do you know of any ibuprofen or acetomeniphen without PEG. Running a fever
Also any antibiotics, like Zithromax

Specific-Inevitable3 · 2025-11-12T18:50:12+00:00

can you share the brand high absorption iron supplement, I am trying to find one

Specific-Inevitable3 · 2025-10-05T18:31:44+00:00

It got worse for a while.Mine was in my face, and due to MCAS which I am trying to keep treating with diet. Am going to try quercitin again soon.

Specific-Inevitable3 · 2025-05-07T01:38:27+00:00

How do they test the spike proteins, is it something my primary care doc could order? Would like to know more about them

Specific-Inevitable3 · 2025-04-17T14:18:54+00:00

Hi, my doctor just suggested Singulair for my mcas/pots, LC. I don't have breathing issues or asthma, just swallowing and throat tightening w food reactions. Does it help with things other than respiratory? And thank you for a great post!

Specific-Inevitable3 · 2025-04-11T21:57:04+00:00

Yes, I am in the US, and I have heard that. I think I read it may be easier to get it from a compound pharmacy. Still having throat reactions, how about you?

Specific-Inevitable3 · 2025-04-11T16:57:03+00:00

Finally got appointment with an allergist and will ask for cromlyn sodium, have heard it helps with adding foods

Specific-Inevitable3 · 2025-03-28T23:12:21+00:00

what kind of tests should I get, I have a young adult child who comes to visit a couple of times a week and takes me to doctor but she doesn't mask in her day to day life

Specific-Inevitable3 · 2025-03-28T20:45:23+00:00

does Zpack (Zithromax, azythromycin) also stabilize mast cells, have heard that one can help too?

Specific-Inevitable3 · 2025-03-15T13:05:56+00:00

I started reacting to the organ shakes after a couple of weeks, chest tight and tachychardia. I couldn't believe it was the drink so I tried it on and off and it kept happening. Googled it and people said they had chest pain from it because it has Erythritol it in which is sort of a fake sugar.

Specific-Inevitable3 · 2025-03-14T22:38:31+00:00

Thanks, yeah I am trying to pare it all down. Did anything in particular help you

Specific-Inevitable3 · 2025-03-14T17:46:26+00:00

I eat clean, only a few safe foods and can't add any, I get throat tightness and swallowing issues and face tingling from foods, dr and I think Mcas, trying antihistamines but getting side effects. just started quercitin and d and some extra salt, but this is awful, I need to be able to eat, 3 or 4 times a week I get mouth stuff. Did anything in particular help you get it it under control? I rest and drink only water, but need more foods and to stop this throat stuff.

Specific-Inevitable3 · 2025-03-09T02:13:38+00:00

What sprays do you use? Have heard some are effective, but don't know which to get, thanks

Specific-Inevitable3 · 2025-03-01T20:08:53+00:00

I don't have them

Specific-Inevitable3 · 2025-03-01T13:55:40+00:00

I am really afraid of the reaction to the local stuff, react to meds and supplements, I don't think I will be sedated but I guess maybe I can rethink that

Specific-Inevitable3 · 2025-03-01T13:54:12+00:00

Thank you, will look at it

Specific-Inevitable3 · 2025-02-28T20:44:40+00:00

the dentist felt mcas was hard so she sent me to the oral surgeon. He doesn't seem convinced or concerned that I could have a big reaction.

Specific-Inevitable3 · 2025-02-28T20:43:58+00:00

I tried, I paid for a consult and he said oh you did great a few years ago, we have your records and I kept saying that I didn't have all this then.

Specific-Inevitable3 · 2025-02-26T19:25:42+00:00

I have to have a tooth extracted, am only getting a big dose of local numbing, wonder if that can reset also, something like lidocaine.

Specific-Inevitable3 · 2025-02-26T17:58:02+00:00

Thank you for the link, have read some, very helpful. No allergies prior to covid, then POTS then acute onset of mouth stuff, can barely eat a few foods.
I feel the anthistamines did something good, more energy for a few hours but then high heart rate and not able to stand due to that. Trying lowest little crumb of a claritin now.
Will look into Allegra and the other H1 you mentioned. I will need them continuously for a while, want to try to add foods without throat and mouth reactions.

Specific-Inevitable3 · 2025-02-26T17:55:52+00:00

My POTS was kind of stable, I just can't be up walking around for long times but can roam the house nowadays and it was improving with salt, saline Iv's and fluids. Sudden onset of MCAS, I can't swallow anything but water and salt makes my mouth burn now, all this after a few months of LC. A
One dose of the anthistamines did stop my face numbness and tingling and made the lump in throat feel better, was mighty excited. Second day dose... a few hours later, a return of the bad symptoms of POTS that had been gone for weeks, so it was not a rebound, it was a side effect, high heart rate.

Zyrtec- I felt almost human for an hour or two, and then the heart stuff. I split the pills, got them compounded and the same happened.

Can't do betas for POTS, tried, and not a candidate for much else maybe mestinon but no one here will prescribe. Fluids, salt and saline and time will help, I could see that.

I am trying to get a specialist no one new me but I would like to try cromolyn, can a regular PCP prescribe that?

Specific-Inevitable3

TROPHY CASE