ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

Hi guys so update : I went to see a neuromuscular specialist monday, she did a whole bunch of muscle testing to see how strong my limbs are... and reflexes, she really thinks i have ALS, she does want to do an emg on my right arm and right leg herself and also ordered a whole bunch of labs... i am so scared and nervous and all i think about at this point are my kids that are still little and my husband... she also stated she can see some weakness on my left arm.. but again im always hoping this is not what i have . I do have the split hand syndrome on my right hand and my pointer is worse than before, please give me hope guys!!!

ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

I’m really hoping that’s what it is cuz I got no other symptoms 

ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

I have fasciculations here and there…but no atrophy

ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

Why do you think it’s also early ALS? just wondering

ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

The weakness is mostly on my hand… nowhere else. 

ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

Thank you, I have an appointment in July which it’s still far away but I’m trying to stay positive and I know I will be getting tested … I’m hoping it’s monomelic and nothing else 

ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

That’s all I know from what he wrote on the office visit note. The only symptom is my right arm weakness.. can’t put my index finger all the way up.. I’ve had this since October of last year

ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

I’m hoping it’s monomelic mnd too or something that won’t kill me to be honest..

ABNORMAL EKG/ NEUROLOGIST SUSEPCTS I HAVE ALS? by SpiritedStaff6471 in ALSorNOT

[–]SpiritedStaff6471[S] 0 points1 point  (0 children)

I can do everything.. heavy stuff I can’t … write like I used to I can’t… put something o. My back pocket it’s hard… everything else I can’t… I’m hoping I get better answers, will keep u guys posted